Some of our board members traveled to the UCSF Benioff Children's Hospital in Oakland, California. They were one of the first sickle cell clinics in the U.S. and are celebrating their 50th anniversary. Clinical trials are an essential part of t

Teonna Woolford-Sickle Cell Reproductive Education Directive (SC RED)

Jul 21st, 2021 42m 53s

We are joined by Teonna Woolford, the Co-Founder + Chief Executive Officer of Sickle Cell Reproductive Education Directive (SC RED). https://sicklecellred.org/

Liz Helms-California Chronic Care Coalition

Jul 5th, 2021 47m 38s

We are joined by Liz Helms, President and CEO of the California Chronic Care Coalition, an alliance of non-profit, social consumer and provider organizations united to improve the health of Californians with chronic conditions or diseases.

Sickle Cell-Stem Cell Update April 2021

Apr 6th, 2021 32m 10s

We are joined by doctors Donald Kohn of UCLA and Mark Walters of UCSF to discuss Stem Cell Research and Sickle Cell Disease.

Moms' Talk #1

Nov 14th, 2020 33m 21s

Mothers of children with Sickle Cell disease, Adrienne Shapiro and Francesca Valentine, discuss when they received news of their child's diagnosis and how it impacted their families' lives.

Axis Advocacy Update October 2020

Oct 26th, 2020 20m

Axis Advocacy Founder Adrienne Shapiro discusses the 1st 5 years of the organization, and embarks on the next five years as a grassroots organization serving the Sickle Cell Disease community.

Juneteenth SCD Art & Film Festival

Jun 2nd, 2019 54m

We are joined by Casey Gibson and Shabreon Howard of the 1st annual Sickle Cell Disease Art & Film Festival, taking place on the Axis Advocacy campus in Pasadena, Ca on June 19, 2019.Tickets are free but you need to have a ticket. https://www.e

J.Snow/SCD Art & Film Celebration

Apr 7th, 2019 53m 51s

We are joined by Jared Snow (aka J.Snow) who is an actor, writer, and stand up comedian hailing from Compton California. He began producing comedy sketches on YouTube– and over thirty million views and several years he's working on a new film c

Sickle Cell Month - Axis Advocacy

Sep 4th, 2018 53m 59s

Celebrating the accomplishments of the past year in the Sickle Cell Community, we're joined by Shabreon Howard,a Mother, Photographer/Filmmaker, Sickle Cell Advocate and Writer. Plus we're joined by Nurse Pat Corley and writer Marissa Cors.

Bill Cummings 2 - Axis Advocacy

Mar 25th, 2018 53m 58s

Bill Cummings (father, Axis Advocacy board member and blogger) joins us again to talk about some of the legislation taking place with regards to rare diseases.

Reverend Gordon Clay Bailey - Axis Advocacy

Dec 30th, 2017 54m

We're joined by Reverend Gordon Clay Bailey of the Unitarian Universalist Church of the Verdugo Hills. We're talking about how music plays such an important part of our lives.

Shamonica Wiggins & Jewel Darbone - Axis Advocacy

Dec 10th, 2017 53m 58s

Sickle Cell Advocactes Shamonica Wiggins and Jewel Darbone of Bold Lips For Sickle Cell join us to discuss their organization and what brought them together.

Dr. Steve Froelich (Grief) - Axis Advocacy

Dec 3rd, 2017 54m 1s

Dr. Steven Froelich joins us again to discuss the various forms of grief. He'll discuss possible ways to cope. Dr. Froelich is a Team member on the Beverly Hills Police Department’s Crisis Negotiations Team as well as being a member of their Pe

Bill Cummings - Axis Advocacy

Nov 19th, 2017 53m 57s

Bill Cummings (father and blogger) talks about his son's struggles with sickle cell disease and why there is a need for better treatments for this condition.

Tanya Price - Axis Advocacy

Nov 13th, 2017 53m 56s

Our guest is Tanya Price, the President and Co-Founder of Sickle Cell Houston.Serving as Houston’s leading sickle cell Community Based Organization and Coordination Center, they provide various services aimed at achieving healthier outcomes for

Ashley Gregory - Axis Advocacy

Oct 29th, 2017 54m

Our guest is Ashley Gregory of the Hemophilia Foundation of Northern California. They provide advocacy, support, and resources to over 3,000 Northern California families (in 47 counties) with a myriad of inherited and acquired blood related con

Andy Thorburn - Axis Advocacy

Oct 17th, 2017 53m 58s

We're joined by Andy Thorburn, a nonprofit founder, a former classroom teacher and an advocate for people living with chronic illness. He is also running for Congress in CA-39.

HD Care Gala

Oct 9th, 2017 53m 59s

Today we’re speaking with many of the presenters and attendees of the recent HD-Care symposium on Huntington’s Disease at UCI. Dr. Neal Hermanowicz, Stem Cell Ambassadors from Americans For Cures, Allen Fernandez of I’m Curable, Frances Saldañi

Bishop Bob Kabugi/Nurse Pat Corley - Axis Advocacy

Sep 16th, 2017 54m 2s

We're joined by Bishop Bob Kabugi from Kenya, Africa and Nurse Advocate Pat Corley to discuss the world wide issues of Sickle Cell Disease.

Dr. Steven Froelich - Axis Advocacy

Jun 20th, 2017 54m

Dr. Steven Froelich joins us to discuss possible ways for people living with Sickle Cell disease to reduce the added stress of going to the ER. Dr. Froelich is a Team member on the Beverly Hills Police Department’s Crisis Negotiations Team as w

Nita Thompson - Axis Advocacy

Jun 9th, 2017 53m 59s

We're joined by Super Advocate Nita Thompson. Nita has dedicated her life to correcting incorrect perceptions about Sickle Cell Disease. We're talking about World Sickle Cell Day, Juneteenth and the current challenges facing those living with t

Amy Mason - Axis Advocacy

May 31st, 2017 53m 59s

We have a very inspirational conversation with Amy Mason. Amy is the director of the Sickle Cell Freedom Cruise, a nanny and someone living with Sickle Cell Disease.

Dr. Thomas Coates/CHLA - Axis Advocacy

Apr 22nd, 2017 51s

We're honored to be joined by Dr. Thomas Coates, a pediatric hematologist-oncologist in Los Angeles, California and is affiliated with multiple hospitals in the area, including Children's Hospital Los Angeles.

1st Anniversary - Axis Advocacy

Apr 10th, 2017 54m

Axis Advocacy co-founders Adrienne Shapiro and Nancy Rene recall some of their favorite podcasts, the huge strides our organization has made in the past year and what the future holds for people living with Sickle Cell Disease.