The final episode of Bringing Sickle Cell Disease to Life explores the concepts of putting research into practice, implementation science, and advocacy. Dr. Wally Smith hears from sickle cell pioneer and researcher Dr. Marilyn Hughes Gaston abo

Connections Across the Globe

Aug 8th, 2022 24m 14s

Sickle cell disease (SCD) affects people all over the world. In this episode, Dr. Wally Smith interviews Dr. Russell Ware, an SCD provider and researcher who assembled an international team of experts to participate in global clinical trials. I

Everyone Has a Place

Jul 29th, 2022 14m 33s

Not enough hematologists specialize in sickle cell disease (SCD) to reach all the people who need care. Host Dr. Wally Smith talks with Dr. JJ Strouse about outreach programs he has developed to reach individuals in rural communities. SCD exper

Home Is Where the Care Is

Jul 22nd, 2022 21m 25s

Researchers, patients, and providers discuss the importance of a quality “medical home” for people living with sickle cell disease (SCD). ASH Research Collaborative Community engagement Manager Shauna Whisenton, an SCD warrior, describes the be

Fighting Racism From the Lab Bench to the Patient Bedside in Sickle Cell Research

Jun 10th, 2022 17m 40s

Translational research discoveries have been critical in improving care for people living with sickle cell disease (SCD). In this episode, Dr. Courtney Fitzhugh shares her passion for translational research and how it can directly help individu

Improving Emergency Care: The Painful Truth

Jun 3rd, 2022 17m 23s

Emergency departments (ED) are inevitable for people living with sickle cell disease (SCD). Many clinicians in the ED, however, misunderstand the disease and perceive patients as drug seekers. This episode explores how education can help shif

Waiting for Mercy

May 27th, 2022 22m 37s

Structural racism and implicit bias are prominent in the care of people living with sickle cell disease (SCD). Dr. Marilyn Hughes Gaston shares how she unwittingly showed bias early in her career and learned from her mistake. Host Dr. Wally Smi

Chwechweechwe: Relentless Perpetual Chewing

May 20th, 2022 29m 33s

Severe pain, which is the most common complication for people living with sickle cell disease (SCD), severely affects their quality of life. This episode starts with a passage about the excruciating pain a person living with SCD endures read by

Making the Leap From Physician to Researcher

Apr 15th, 2022 21m 20s

In the final episode of Season 1, Dr. Courtney Fitzhugh encourages medical students interested in sickle cell disease to get involved and reach out to a mentor. She shares her journey to becoming a physician scientist with a lab at the National

Finding a Purpose Through Sickle Cell Disease Research

Apr 8th, 2022 19m 32s

In this episode, Dr. Betty Pace explains her path to conducting research in sickle cell disease. As a clinician and researcher, she shares how she was able to bring the clinical perspective to the lab. Learn some important techniques to secure

Ubuntu: I Am Because We Are

Apr 1st, 2022 22m 17s

Young individuals living with sickle cell disease eventually age out of the pediatric units and struggle as they transition to adult care. In this episode, we hear from Kyle, a person living with sickle cell disease, about his experience transi

An Unpredictable Childhood

Mar 25th, 2022 22m 56s

In the past, children with undiagnosed sickle cell disease were at risk of dying in as little as nine hours of sepsis. In this episode of Bringing Sickle Cell Disease to Life, we hear more from Kyle, an individual living with sickle cell diseas

Progress Over Decades: We’ve Come a Long Way

Mar 18th, 2022 24m 15s

In the first episode of Bringing Sickle Cell Disease to Life, Kyle Smith, an individual living with sickle cell disease and a leader in community advocacy, will share his story with us. Our host Dr. Wally Smith interviews a legend in the field

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Coming Soon: Bringing Sickle Cell Disease to Life

Mar 11th, 2022 1m 47s

Coming soon: This podcast, hosted by Dr. Wally Smith of Virginia Commonwealth University, features interviews of diverse leading experts including researchers, physicians, and individuals living with the disease, exploring the history of the di

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