0:00

Hi everybody, it's Susie Singer Carter and I just wanted to take

0:01

a minute to tell you about a

0:04

wonderful product I just

0:04

discovered. It's called sosiale.

0:08

And sosiale in Latin means to

0:08

share and unite. It is the

0:12

simplest way for older adults

0:12

and people with disabilities to

0:15

connect and engage with their

0:15

family and friends. There's no

0:18

username, no password, no login

0:18

and no app to choose from. It's

0:22

just a dedicated device. It's

0:22

the sociol, the C to M connect

0:26

to me device it's always on and

0:26

ready to use, and families and

0:31

caregivers just install the app

0:31

on their smartphone. And then

0:34

you can just begin sending

0:34

photos, videos, and even have

0:37

live live video chats and your

0:37

loved ones. They don't have to

0:40

do anything. They just love it.

0:40

And because all of us must fight

0:43

elder abuse and work together to

0:43

bring awareness to this issue.

0:46

Sociology is supporting my

0:46

efforts to produce my vital

0:49

documentary, No Country for Old

0:49

people. When you subscribe to

0:53

sociology for your loved ones,

0:53

they will donate the payments

0:56

received and you can help us

0:56

reach our goal while connecting

0:59

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0:59

simplest way CCRB connected

1:02

generations made simple

1:02

globally. To learn more, please

1:06

visit their website at www

1:06

sosiale.com. And when choosing

1:10

the payment, select the annual

1:10

subscription the proceeds will

1:13

go to help the production of our

1:13

documentary, No Country for Old

1:17

people and I thank you so much.

1:26

When the world has

1:26

got you down, and...

1:29

Alzheimer's sucks, it's an equal

1:29

opportunity disease that chips

1:34

away at everything we hold dear.

1:34

And to date, there's no cure. So

1:38

until there is we continue to

1:38

fight with the most powerful

1:41

tool in our arsenal. Love. This

1:41

is Love Conquers Alz, a real and

1:47

really positive podcast that

1:47

takes a deep dive into

1:51

everything Alzheimer's, The

1:51

Good, the Bad, and everything in

1:55

between. And now here are your

1:55

hosts Susie Singer Carter and

2:00

me, Don Priess.

2:03

Good morning, everybody. This is Susie Singer Carter.

2:07

And this is Don

2:07

Priess and this is love conquers

2:09

all. Hello, Susan.

2:12

Donald, I'm

2:12

wearing clothes today. They and

2:15

they're they're quite

2:15

fashionable. I am I'm a

2:18

fashionista they're wearing I'm

2:18

wearing like a denim ensemble

2:22

for those of you not looking and

2:22

on YouTube. But you should. CuzI

2:29

forgot how to dress anymore.

2:29

It's been like now that I can

2:33

now that we actually have it's

2:33

been three years since the

2:36

pandemic. I know.

2:38

That's right, march,

2:38

march of 2020. Oh my god.

2:41

Yeah. Three

2:41

years. Three years. I'm just

2:45

getting my high heeled legs back.

2:48

Thank God. You know,

2:50

right.?

2:50

Exactly. Because my calves, my

2:53

calves. Where am I without my

2:53

high heels? My calves? What to

2:57

do?

2:58

I don't even know

2:58

you without calves. So

3:02

I don't

3:02

know me either. But yeah, I and

3:07

here's some could, this isn't

3:07

one of the reasons why I'm

3:11

practicing my high heels is

3:11

because our other podcast I love

3:15

Lucifer was nominated for Best

3:15

Audio fiction by indie series

3:23

awards, and we're going to a red

3:23

carpet black tie event on April

3:28

12. So everybody send us good

3:28

vibes because poor, poor I love

3:34

Lucifer that we love so much has

3:34

taken a backseat to my

3:38

attention. But lo and behold,

3:38

it's it's it's the little

3:42

podcast that could.

3:44

Yeah, absolutely.

3:44

And, you know, it's, it's

3:47

something that you know, because

3:47

both of our podcasts have love

3:51

in it. I'm trying to draw

3:51

correlation, but I cannot you

3:55

can't say is no, I can't. My you

3:55

know, my brain right now is not

4:00

functioning. So I'm gonna say

4:00

very silly things today.

4:04

Right. Well, let me talk for you then. Yeah, yes, go ahead. Please do

4:06

so Don is working. He's just

4:10

delivering a beast of a project.

4:10

It's the documentary on the 30

4:17

year anniversary of Jack Warner.

4:17

from Warner so yeah,

4:20

it's it's it's 100

4:20

year anniversary of Warner

4:23

Brothers and it's a reimagining

4:23

of a documentary we did 30 years

4:27

ago so crazy around the clock

4:27

you know no days offs 14 hours a

4:33

day and which is exactly Susie

4:33

schedule as preparing for our

4:37

upcoming documentary No Country

4:37

for Old people. So which we're

4:40

still trying to raise money. You

4:40

know, if anyone has the spare

4:43

cash laying around, please feel

4:43

free to to give a tax deductible

4:47

donation to No Country for Old

4:47

people because we need to get

4:50

this thing done. It's so important.

4:52

We've already interviewed over 60 experts and caregivers. We're

4:54

going to move the needle for

4:57

sure, Donald, that's what we're

4:57

gonna do and we have to do it

5:03

because our long term care

5:03

industry that's what it is it's

5:08

an industry is out of control.

5:08

And it's broken. And it's

5:13

feeding, you know, very rich

5:13

people's pockets and making them

5:17

even richer. So which is

5:17

interesting because our guests

5:21

are we're like we're sort of

5:21

like Saturday Night Live Now we

5:25

have like returning guests like

5:25

hosts right so so we have a

5:28

three timer now he's gonna have

5:28

to get a jacket for him.

5:32

Yeah, he's he's our

5:32

first three timer for sure.

5:35

Yeah, yeah, setting record

5:35

setting records

5:39

Exactly! As

5:39

he does. But, you know, what

5:44

he's going to talk about today

5:44

is going to be so great because

5:47

it's about its assisted living,

5:47

but it's really the transition

5:50

of lifestyle. And how important

5:50

that that lifestyle is in the

5:55

quality of that lifestyle is no

5:55

matter what cognitive level

6:00

you're at, if you're if you're

6:00

dealing with cognitive

6:03

impairment, or just aging in

6:03

general, it's so important you

6:07

know, that we have a quality in

6:07

our life as we grow older, you

6:13

know, we we have so much

6:13

technology that's extending our

6:17

life and giving us an

6:17

opportunity to have a longer

6:20

life and experience more things

6:20

and yet we don't we don't have

6:24

an infrastructure set up to

6:24

support that so that's why we

6:28

need to get out there and really

6:28

galvanize the public and get

6:33

them to come get every all of us

6:33

need to really voice it because

6:38

otherwise it's just going to

6:38

stay the way it is. Yeah, yeah.

6:41

And if you and I mean Russell

6:41

Brand on on Bill Maher on on

6:47

March 3, you guys if you haven't

6:47

seen it, go back and watch it

6:50

because he says it as only

6:50

Russell Brand can so I was I was

6:55

applauding in my living room

6:55

last night. So anyway, why don't

6:58

you go out? Excited? Well,

6:58

because he just says it's so

7:04

right. He just says it and he

7:04

has no he has no shame.There's

7:07

no shame in the game. I love it.

7:07

Anyway, okay, so what let's

7:12

introduce our our guests that we

7:12

love so much.

7:15

I will our guest

7:15

today is living a remarkable

7:19

journey. Anthony Copeland Parker

7:19

and his beautiful wife,

7:22

Catherine were in their 50s when

7:22

they found out that he needed a

7:25

heart valve replacement and she

7:25

was diagnosed with early onset

7:29

Alzheimer's. With a history as

7:29

endurance athletes. Their

7:32

reaction to this news was

7:32

nothing less than extraordinary.

7:35

They retired from their jobs,

7:35

sold their home and became

7:38

nomads, running marathons and

7:38

half marathons all over the

7:42

world. Their book running all

7:42

over the world, our race against

7:46

early onset Alzheimer's is a

7:46

nonfiction account of their

7:49

years of flying, running,

7:49

walking, sailing and

7:51

sightseeing, from Atlanta to

7:51

Antarctica and back again. Now,

7:56

their life has entered a new and

7:56

incredible chapter. And we

7:59

cannot wait to turn the page and

7:59

learn more. So without further

8:03

ado, in a triple Encorp

8:03

appearance, let's say hello to

8:07

the inimitable Anthony. So we

8:07

like to call him Tony Copeland

8:11

Parker. Hello, Tony.

8:13

Hello,

8:13

how are you all doing? I did not

8:15

realize that I was a third timer

8:15

here. But that is fabulous. I

8:20

really appreciate you all having

8:20

me here. And when I was going

8:25

back around. You and Susie were

8:25

the first ones I contacted to

8:30

make sure I talk. Well.

8:33

Thank you.

8:33

Thank you and you better have no

8:36

I'm kidding. Well, thank you.

8:36

No, we love you. We love you.

8:41

And we love Katherine. And I

8:41

love your story. And of course I

8:46

listened to your book, because

8:46

that's how I roll I love I love

8:50

a good audio. And it is good

8:50

audio. It's like it but it is

8:55

really good. First of all the

8:55

books good and the audio is

8:57

good. It's so enjoyable. It's

8:57

like Obama's reading to you. It

9:02

is it just so it is wonderful.

9:02

And and it's such a it's such a

9:08

lovely book because it's it's

9:08

first of all it's so it's so

9:16

atypical from any book you've

9:16

ever read about Alzheimer's, any

9:20

journal any any chronicle

9:20

because first of all, they're

9:25

unique traveling all over the

9:25

world, you know, with someone

9:28

with or you know, early early

9:28

onset but you really

9:32

experiencing Tony has you have

9:32

such a good way of explaining

9:36

and describing me I don't know

9:36

how you did it. But you describe

9:39

so much of the travel down to

9:39

such detail that I felt like I

9:44

went with you.

9:45

Well,

9:45

that's everyone's good. I wanted

9:48

people to travel with us as we

9:48

picked up our suitcases and went

9:54

from hotel to cruise ship to

9:54

airplane every three to four

9:58

days for were turned out to be

9:58

eight years.

10:03

It's

10:03

amazing. It really is good. I

10:06

really enjoyed it. Because I'm

10:06

not a I'm not, you know, that

10:10

person that likes to read travel

10:10

books I want to go. But you took

10:14

me during COVID to all these

10:14

places, right? So it was it

10:19

really detailed. It was so

10:19

fleshed out, and I felt like I

10:23

was tasting the food even that

10:23

you were describing, you know,

10:27

so it's really good. I really

10:27

appreciated that. And then of

10:30

course, we you know, your

10:30

journey with Katherine and and

10:36

which was nothing less than, I

10:36

don't mean this in a flippant

10:41

way, heroic. And I say that

10:41

because I know what it takes. I

10:46

love my mom dearly like you love

10:46

Katherine. It still doesn't make

10:50

it easier. Hold on one second,

10:50

it's really noisy, much better.

10:56

I said it was heroic, I say your

10:56

heroic because even though

11:01

you're all in and you leaned in

11:01

as far as you could go, it

11:04

doesn't make it easier. It

11:04

doesn't. It's still a hard. It's

11:07

a hard role to take as a

11:07

caregiver and what you did was

11:13

so beautiful. And and you know,

11:13

and I know you enjoyed it, of

11:18

course, all the way. But still

11:18

it was it is it is it is a it

11:25

not everyone can do that. Let's

11:25

just put it that way.

11:27

Well,

11:27

one of the things that I looked

11:29

for was trying to figure out

11:29

what Catherine I both enjoy

11:34

doing. And that in turn made it

11:34

a lot easier for me to navigate

11:40

through the the trials and

11:40

tribulations of someone with

11:45

early onset Alzheimer's. The

11:45

other thing is that the travel

11:49

agents, industry is very caring.

11:49

And they helped out a whole lot,

11:56

from hotels to, to airlines to

11:56

airports, and all that

12:00

navigating. And then also there

12:00

was a number of groups that we

12:05

traveled with, they knew of our

12:05

situation, and they would assist

12:10

us whenever possible. So I had

12:10

those things going for us. The

12:15

fact that I love managing, and I

12:15

enjoyed doing what I was doing,

12:20

made it a lot more better. In

12:20

the fact that it I was trying to

12:25

find joy, you know, everywhere

12:25

we turned every, every place we

12:29

went, we were trying to find

12:29

something that would add to our

12:32

experience.

12:34

Well, you

12:34

did that. I know that because

12:37

I've got had the pleasure of

12:37

hanging out with you and cat.

12:40

And I know how joyful she is.

12:40

You can feel her joy with you.

12:45

You know, she's just a joyful

12:45

human being. And like my mom and

12:51

and that's, that's a lot to do

12:51

with your supportive her right.

12:55

So she feels safe. And she feels

12:55

heard. And she feels valued. And

13:01

so that makes a huge difference.

13:04

Yes, it

13:04

does. Absolutely. And that's one

13:08

And I think that's

13:08

so much because of what you

13:08

of the things that people often

13:08

comment about her even in her

13:13

stage of Alzheimer's, they can

13:13

still see that come out of her

13:17

when they meet her. know, the way you handled it, as

13:21

opposed to just saying, Okay,

13:23

we're now going to just hunker

13:23

in and deal with this and you

13:26

know, sit in a room and

13:26

everything you expanded her mind

13:30

constantly and her experience

13:30

and her heart. It's truly it's

13:37

something to even though no,

13:37

people aren't going to model

13:39

what you did as far as going out

13:39

and running marathons all around

13:41

the world. But it's showing how,

13:41

you know, new stimulation, new

13:46

things coming in can can really,

13:46

you know, I think it does, it

13:51

changes not only the mind, but

13:51

the heart too, is

13:54

Well,

13:54

what they say is that the early

13:58

stages of Alzheimer's things so

13:58

the first memory senses that are

14:06

affected are your short term

14:06

memory. And then you can have

14:10

those type of situations like

14:10

for example, having dinner a guy

14:16

Eiffel Tower, you know, those

14:16

were our long term memory, and

14:20

then me writing a book about it,

14:20

and the pictures that went along

14:24

with it. And then as you were

14:24

talking about the audio book, we

14:28

listened to that from time and

14:28

that reinforces you know, our

14:32

memory that she had and also

14:32

just makes her day a little bit

14:36

better.

14:37

Isn't that

14:37

a great thing? And isn't that we

14:39

like if you're not a writer like

14:39

Tony and you don't have you

14:43

know, that's not something in

14:43

your wheel in your bucket list

14:47

or you know, but you could still

14:47

like I made a picture book for

14:50

my mom, you know on back in the

14:50

day on Apple, you know, and I

14:55

did like the story of my mom in

14:55

in pictures and textBut now you

15:01

could do, you could do something

15:01

where you where you can read

15:05

along with it, they have those

15:05

kinds of books, they do it for

15:08

children, right? You could do

15:08

that for your loved one where

15:11

they can hear it spoken out

15:11

loud, which is nice because it,

15:18

it's your voice you get, then

15:18

it's recognizable. I mean,

15:22

there's all kinds of ways we if

15:22

you can't be with your loved one

15:25

every day, like you could write,

15:25

so you could do things like

15:29

that. I mean, that's a great,

15:29

that's a great example of why,

15:32

why it's so impactful. And, and

15:32

I mean, I mirror again with my

15:38

mom, because the year that she

15:38

lived with me and oh, you know,

15:42

I've moved her into this. This

15:42

facility, this this complex,

15:48

that was a live work complex. I

15:48

thought, oh my god, what am I

15:51

doing my she's gonna drive

15:51

everybody else crazy because

15:54

people don't know, Alzheimer's.

15:54

I was so wrong. Like, everybody

15:59

loved her. Everybody supported

15:59

her. Everybody just surpassed my

16:04

expectations of humanity. So

16:04

there is community out there.

16:08

And you they and it was so

16:08

healthy for my mom, she felt,

16:13

you know, alive. She felt like

16:13

she had a community. And she

16:16

felt like she had a purpose.

16:18

And there was stimulation. I mean, there's, it's not like, you know, I think

16:20

sometimes caregivers want to

16:23

isolate due to their own

16:23

embarrassment. And just because

16:27

it's you know, they don't want

16:27

to have, you know, they don't

16:30

want that behavior on other

16:30

people and everything. And it's

16:34

just, no, the isolation is what

16:34

you know that that's what's

16:37

going to kill somebody. It's,

16:37

it's exposing them to life,

16:41

which is what you did, both of

16:41

you did, I think it's important

16:44

to know this, because I think

16:44

that's the natural reaction is

16:48

when I'm just going to put them

16:48

there, I'll deal with them. But

16:51

I don't want the world to deal

16:51

with them or them to deal with

16:54

the world.

16:55

I don't know if that. I mean, I think that's changing a little bit,

16:56

Don, I just, yeah, I don't I

17:00

think people don't know. Not

17:00

everybody, but new people that

17:05

are just dealing with it. But

17:05

I'm so interested in what's

17:08

happening in your life, Tony now

17:08

because now you've transitioned

17:11

from traveling because cat's

17:11

diseases progressed, and it's

17:16

healthier for her now to be more

17:16

in one place. And now she's in

17:20

an assisted living facility

17:20

lightly. And Tony's moved in

17:24

with his wife there, which is

17:24

extraordinary. I don't know, I

17:27

don't I have not heard of this

17:27

from anybody else. I'm sure

17:30

you're not the only one. But I

17:30

think it's fascinating because

17:33

your cognitive abilities are

17:33

intact, and you're there

17:36

watching how this all plays out.

17:36

So a How did you make that

17:40

choice? Why did you make that

17:40

choice? And what, uh, what has

17:43

been what have been, here's all

17:43

the big questions, what has been

17:46

advantageous about it? What have

17:46

you liked about it, and what has

17:49

been the hardest challenges. And

17:49

I will repeat that?

17:52

Well,

17:52

what ended up happening was

17:54

about a year ago, we did our

17:54

last international flight, we

17:59

went over to Berlin, and

17:59

Scotland and we did some races

18:03

over there. So that was a year

18:03

ago, October, unfortunately,

18:06

right after that she started

18:06

having seizures, which required

18:12

us to take some medication and

18:12

go through a lot of different

18:16

testing for that. So that kind

18:16

of knocked her the legs out from

18:20

under the fact that she can no

18:20

longer run because of that. And

18:24

then the you know, the shear

18:24

going overseas, the nine hour

18:28

flight, that change of time

18:28

zones, and all that was just

18:31

going to be too much for so I

18:31

was looking at, well, we're not

18:36

going to be able to travel the

18:36

world anymore. But we still

18:40

enjoy traveling, she can still

18:40

travel we still we just came

18:43

back from Indiana, she gets on

18:43

airplanes goes through security,

18:46

all that. They they look at me,

18:46

they look at her, they know

18:49

something's up, and they assist

18:49

us right on through like we're

18:54

rock stars. As a matter of fact,

18:54

that is a you know, first class

18:58

and you know, everything's taken

18:58

care of, for us. And during that

19:03

period of time I started looking

19:03

at, so we're going to settle

19:07

down. And I went through an

19:07

actual three month look at and

19:13

asking people that have their

19:13

folks their parents in assisted

19:18

living or independent living or

19:18

memory care situations and try

19:22

to figure out what would be best

19:22

for us. There are three levels,

19:28

independent living, which is

19:28

actually what we're doing,

19:31

assisted living, and then also

19:31

memory care. And as we were

19:37

going through this process, most

19:37

people have ended up somewhere

19:42

near a relative. So you know,

19:42

you go say, okay, my son lives

19:47

here, her daughter lives there.

19:47

You know what, which where

19:50

should we move to? The other

19:50

thing was the fact that we were

19:55

still traveling so I wanted to

19:55

be close to a major airport. So

19:59

we picked Atlanta in the first

19:59

place, so we could travel in and

20:02

out and use it as a as a hub for

20:02

us. So we figured Atlanta would

20:06

be good. So we started looking

20:06

in Atlanta area. And we're here

20:10

in a facility called Brookdale

20:10

Senior Living solutions and

20:16

Roswell, Georgia, it's probably

20:16

one of the biggest facilities

20:21

I've ever run across. There's

20:21

actually right now 285 People

20:25

under roof, and then they have

20:25

another 20 beds for assisted

20:30

living. And then they have

20:30

another separate facility for

20:33

another 20 folks for memory

20:33

care. Of course, when we first

20:37

came here, the management here

20:37

was like, Oh, okay.

20:42

Catherine, Sky, Alzheimer's, so

20:42

we need to put her in a memory

20:48

care, and then you can come

20:48

visit. So you can get an

20:52

apartment somewhere, or you can

20:52

go to independent living, but,

20:55

you know, having her an

20:55

independent living, it's just

20:58

not going to work. We don't do

20:58

that. And I explained to them

21:02

that you telling me we don't do

21:02

that is not a good answer. As

21:08

you can tell from my lifestyle,

21:08

you know, running all over the

21:11

world and going from place to

21:11

place as nomads, you know, I

21:15

think outside the box, and I

21:15

knew that the best situation for

21:20

both of us, since, like you

21:20

said, I have all my faculties

21:25

and I'm, you know, 67 years old,

21:25

but I'm still running and I'm in

21:28

pretty good shape, that I could

21:28

be able to be in a position to

21:32

take very good care of her here.

21:32

The things I like about this

21:37

facility is the fact that it has

21:37

about two miles of carpeted

21:42

corridors indoors. So we

21:42

basically can walk out our door,

21:48

it is raining and snowing,

21:48

whatever sleeping outside and

21:52

stay indoors and walk two miles

21:52

without ever seeing the same

21:57

door. Again everybody decorates

21:57

their doorways, you know,

22:03

depending on the holidays for

22:03

Christmas and Easter, and the

22:08

like. And then there's a half

22:08

mile sidewalks, it's a off the

22:16

main drag in terms of the where

22:16

it's located. And you have trees

22:21

you have for landscaping.

22:21

There's a neighborhood right

22:24

behind us that we could go walk

22:24

another three miles. So half

22:30

mile around the facility,

22:30

another three miles behind the

22:33

facility and two miles indoors.

22:33

And Catherine right now. She

22:39

said what I refer to as stage

22:39

six, as if you go through the

22:43

seven stages of Alzheimer's, the

22:43

last one being being bedridden,

22:49

I basically do everything for

22:49

her, but she can still walk. So

22:53

she puts in six to eight miles a

22:53

day of walking. And we have all

22:58

sorts of places that we could

22:58

walk here and walk in them in

23:01

the nearby neighborhood. The

23:01

other thing is that they have

23:07

agency inside, which is called

23:07

Brookdale at home, and someone's

23:11

with her now. And they're

23:11

outdoors walking around while we

23:15

do this interview, and I found

23:15

two other individuals, they come

23:20

in three to four hours a day,

23:20

four days a week, to help out in

23:25

the morning. So we get up, we

23:25

have our breakfast someone comes

23:29

and they go walking with

23:29

Katherine, she's, you know,

23:32

loves it. And then I can get

23:32

some things done, go for a run,

23:36

take care of myself to some

23:36

meetings. So it turned out to be

23:41

a fabulous situation. You

23:41

mentioned where it was the

23:46

hardest thing, I would think

23:46

trying to convince the

23:49

management here that this is

23:49

where we needed to be. And they

23:54

have agreed that I was right.

23:54

And that this is something that

24:00

is very encouraging to others.

24:00

Unfortunately, this is a it's

24:04

not for everybody. Because in

24:04

some cases, like if you're older

24:09

woman and your husband has

24:09

Alzheimer's and he can be

24:13

somewhat combative, then of

24:13

course you have to look at a

24:17

situation where you you're not

24:17

able to actually take care of

24:21

her for take care of him

24:21

yourself. And I've had some

24:23

conversations with individuals

24:23

that are here that had that

24:27

situation and wish that they had

24:27

had the ability to take care of

24:32

their loved one but I do have

24:32

some folks that are here staying

24:37

in Independent Living and then I

24:37

can see them walking across the

24:40

street right across the sidewalk

24:40

to see their their loved one and

24:45

the the memory care situation.

24:48

You had a few other challenges in the beginning right like that you

24:50

had to source out do you want to

24:53

talk about those or should we not?

24:55

Well,

24:55

the other challenges that we had

24:58

were I found that there were

24:58

some individuals that were more

25:03

used to folks that had physical

25:03

disabilities as opposed to

25:08

mental disabilities. And they

25:08

always felt that those

25:13

individuals needed to be

25:13

separate from the general

25:16

population as you would put it.

25:16

And I think that they've come to

25:22

realize that maybe they just

25:22

didn't know, moving through

25:27

this, that this is something

25:27

that could benefit everyone.

25:32

Most of the individuals here are

25:32

single, you know, they, they

25:36

lost your loved one, there's

25:36

only probably, you know, less

25:39

than 1/10 of the population are

25:39

couples. And they, you know,

25:43

kind of look at us walking hand

25:43

in hand through the hallways,

25:47

seeing the love and care that I

25:47

have for Katherine, and all and

25:51

they, they stop us and, and tell

25:51

us how glad they are with, with

25:58

us being here. The other

25:58

situation was that there was

26:02

some folks that now that

26:02

Katherine is at the stage. And

26:05

she's, like I said, I need to do

26:05

pretty much everything for her,

26:09

which includes feeding her, and

26:09

they weren't very comfortable

26:12

watching that take place. But

26:12

me, the type of person who

26:18

always tries to figure out the

26:18

best, the best over whatever is

26:22

thrown my way. And it turns out,

26:22

you get two meals a day here,

26:27

and breakfast, and or lunch and

26:27

dinner. So what I do is I

26:32

ordered just about everything

26:32

off the dinner menu, and they

26:34

make lunch out of it for the

26:34

next day. So even though we're,

26:38

you know, we're in our

26:38

apartment, we come in, I bring

26:41

the food, we sit down 30 minutes

26:41

later, we're back out, you know,

26:46

walking around and seeing the

26:46

sights. So it turned out to be

26:49

to our advantage to the

26:49

situation. So I made, once

26:54

again, lemonade of out lemons.

26:56

It's

26:56

awesome. And what you're also

27:00

doing that's great, as you're

27:00

modeling, you know, you're

27:04

showing you're taking away a lot

27:04

of the bias, about ableism. You

27:10

know, there's a lot of ableism

27:10

that that exists within our

27:14

culture. And we don't want to

27:14

see it we were in denial, we

27:18

don't like it, we it. It offends

27:18

it is a lot as a laundry list of

27:24

things that it does, right it,

27:24

it frightens people, and so on

27:28

and so forth. And, and that's

27:28

because we've continued to

27:33

shield people shield ourselves

27:33

from it. And we have hidden away

27:37

people with any kind of mental

27:37

deficiency, whether it's autism

27:43

or schizophrenia, whatever it

27:43

is, and we don't want to look at

27:46

it and we marginalize those

27:46

people, we don't assign any

27:50

value to them. So what you're

27:50

doing is really important, to me

27:54

a really important thing because

27:54

there's ageism, for one, and

27:57

then you add on something like

27:57

Alzheimer's, or Parkinson's or

28:02

any mental illness. And now

28:02

you've got two strikes against

28:07

you. Now you're doubly not

28:07

worthwhile, you know, and what

28:11

you're doing modeling by your

28:11

actions now ready, you can see

28:15

people embracing that and

28:15

saying, I wish I could do that.

28:20

Because you're changing the

28:20

paradigm

28:22

Actually,

28:22

I have taken it a step further.

28:26

And as you pointed out that I do

28:26

have a book.

28:30

And what I've done is I, I keep

28:30

replenishing a copy of the book

28:35

in the library here. And so, you

28:35

know, folks know, oh, there's

28:40

another book. So they go pick it

28:40

up. And as we're walking around,

28:44

somebody else stops and says,

28:44

I'm reading your book today. And

28:47

then I'm going to pass it on to

28:47

chill. And then I got it from

28:50

already. And you know, I got it

28:50

from the library. So, you know,

28:54

we're, we're celebrities here.

28:54

And we're also giving them the

28:59

opportunity to read about what

28:59

we actually did in terms of

29:05

finding joy through this

29:05

diagnosis. And for us, for

29:11

Katherine, was diagnosed in

29:11

April, nine years ago. And I

29:15

knew something was was wrong a

29:15

year prior. So we're, we're

29:19

coming up on 10 years of going

29:19

through this, a lot of research

29:23

on my part. Right now I'm doing

29:23

some research on seizures. And I

29:29

write to a blog writing with cat

29:29

DICOM. And I updated probably

29:35

every couple of weeks and the

29:35

one I'm working on right now is

29:39

talking about proper hydration

29:39

for folks will Ciderworks it

29:43

also for folks with seizures and

29:43

I've I've seen some improvements

29:46

in terms of spacing the seniors

29:46

out by keeping Catherine

29:51

properly hydrated and tried to

29:51

pass on that information to as

29:56

many people as possible through

29:56

my writing and

30:00

So I swore I was never going to do

30:01

it. But I am working on a second

30:05

book. But that's, that's down

30:05

the road sometime. You crazy

30:10

guy? That's great, though you're

30:10

good writer.

30:13

Can you tell me in the audience?

30:13

What, what my mum didn't have

30:20

seizures. What What brings about

30:20

these seizures is that part of

30:23

the Alzheimer's? Well, there's

30:23

all sorts of different types of

30:28

seizures there. There are some

30:28

called absence seizures, which

30:32

actually some people they think,

30:32

is the beginning part of early

30:37

onset Alzheimer's is the fact

30:37

that Alzheimer's for that they

30:41

just kind of stare off into

30:41

space for a period of time,

30:44

while they're actually are

30:44

having a seizure, but they're

30:47

not going through all the

30:47

convulsions and, and in the life

30:51

that you normally would associate with seizures, like

30:54

epilepsy and things of that

30:58

nature. What Catherine has is,

30:58

is a type where her brain when

31:06

she's waking up, is going

31:06

through the waking process and a

31:10

dreaming process, and it just

31:10

kind of fritzing out. And she

31:16

usually has them upon waking.

31:16

Now she has one in the morning,

31:22

when she wakes up, that she's

31:22

more susceptible to have another

31:25

one sometime during the day, the

31:25

brain is is trying to

31:29

recalibrate as it were. So what I'm looking at is the

31:32

fact that there's a lot of

31:38

studies talking about hydration,

31:38

and how how that affects the

31:43

brain, how your brain actually

31:43

has to work harder, if you're

31:46

dehydrated, and then extra work

31:46

that you're going through, puts

31:51

a stress strain on your brain

31:51

and such. So did you end up

31:55

having a seizure seizures that

31:55

she has usually only lasts about

32:00

30 seconds to a minute. Normally

32:00

there, you know she's still in

32:04

bed, there, she does have

32:04

convulsions. And then normally,

32:08

that day is ruined. You know,

32:08

there's nothing we can do for

32:11

that day or two days, I really

32:11

knocks her down and puts her

32:17

behind the curve, as I've

32:17

mentioned one time before is

32:21

that her decline is like a sine

32:21

wave some days are better than

32:24

other days. And then when she

32:24

has a seizure is really a

32:28

downhill for her for a period of

32:28

time for sometimes a week or

32:32

two. So I can't keep them

32:32

totally gone. But what I'm

32:36

trying to do is just space them

32:36

out over time, like right now.

32:42

And I keep track of them. And

32:42

we're working on almost two and

32:45

a half months since she had the

32:45

last one. So we're hoping that

32:48

we can knock that we can do

32:48

that. Did she have? Does she

32:54

have any memory of them after?

32:54

Or is it just affect her mental

32:57

state just affects her mental

32:57

state? No, she has no memory of

33:00

them at all? Yeah, she you know,

33:00

I've talked about it, but she

33:03

has no consciousness of it, of

33:03

that fact.

33:08

So, you know, we just do they

33:08

say that there's a couple of

33:12

things that could be the cause

33:12

the brain shrinking. Overall, it

33:16

could be the cause. And the

33:16

amyloid buildup in the brain

33:20

could be the cause of it. So

33:20

surprisingly enough, there's not

33:26

a whole lot. You go to

33:30

clinic and you can get all wired

33:30

up. And they can say, Oh yeah,

33:35

she had one, you know, 48 hours

33:35

ago, whatever. So here's the

33:39

medicine. Speaking of medicine,

33:39

they put her on. Long name don't

33:45

know the name of it. The short

33:45

name for the drug is called

33:49

Keppra. And we were on it for

33:49

six months. And I would say that

33:52

was the worst six months of my

33:52

life in terms of dealing with

33:56

someone on a medication and also

33:56

with Alzheimer's. It just

34:02

really, really kept the seizures

34:02

away. But he brought up a whole

34:07

host of other things. As a

34:07

matter of fact, I was talking to

34:12

Teepa snow about it and she made

34:12

a quote that I'll always

34:17

remember is that you're damned

34:17

if you do and you're damned if

34:20

you don't, in terms of taking

34:20

the medication because of the

34:24

side effects are, are somewhat

34:24

is as bad as the seizures

34:29

themselves. So we did that for

34:29

six months. I said I've had

34:34

enough of that and getting

34:34

waffle took her off of it. And

34:38

we're just trying to go through

34:38

the process of trying to stretch

34:42

them out.

34:44

What was what were some of the

34:47

effects

34:47

from the drug? Well, it makes

34:50

her tired was it so you can go

34:50

from tired to agitated to sleepy

34:55

to, you know, walking around in

34:55

circles to sigh

35:00

It pains, muscle twitches.

35:04

It didn't get really bad until

35:04

she took away or asleep, she

35:09

could only sleep about three

35:09

hours a night before she would

35:12

wake up, wake up, get up wanting

35:12

to go somewhere, you know, at

35:17

two o'clock, three o'clock in the morning.

35:19

And then

35:19

the one that the doctors got

35:23

really concerned with was that

35:23

he started affecting her skin.

35:27

She started getting really red

35:27

rash that she was scratching

35:32

continuously waking her up

35:32

scratching. And then you know we

35:36

have that's so awful. You're

35:36

really have some serious

35:39

problems. Oh my god. Yeah, it

35:39

totally, totally wasn't right

35:44

for her. Now, I mean,

35:44

prescriptions are a big issue.

35:47

And you know, and it's funny you

35:47

were talking about like, like

35:51

some some men who have

35:51

Alzheimers will get agitated and

35:57

they can put other people at

35:57

harm because they don't know

35:59

what they're doing. They don't

35:59

realize it but they're you know,

36:02

they're they get get aggressive.

36:02

I have a friend whose father is

36:06

going through that right now.

36:06

He's probably well, if we're

36:10

gonna go through the stages, I

36:10

would say he's like stage five,

36:14

four or five. And she, the

36:14

family keeps getting calls

36:20

saying, we want to give your

36:20

dad's Seroquel it'll be good for

36:24

him and good for everyone else

36:24

will Seroquel is going to make

36:27

him a zombie. Right. And so

36:27

she's been asking me what do you

36:31

think and I and I keep saying

36:31

it's like putting a bandaid on

36:35

it on a on a, you know, on a

36:35

bullet wound, I mean, that's not

36:39

what's going to fix it, you

36:39

know, that's, that is, that's

36:43

going to help them more than

36:43

it's going to help him. Because

36:47

he you know, that's just part of

36:47

that. There's better ways

36:50

there's behavioral ways to

36:50

handle that. But drugs are so

36:58

they should be your last resort,

36:58

if you can do anything else,

37:03

because especially when you have

37:03

a cognitive impairment, and you

37:08

know, I cannot tell you the list

37:08

of drugs that say, Black Label

37:12

for people with dementia, not

37:12

good for people with dementia,

37:15

you know, and, and when I say

37:15

Black Label, that means death.

37:20

That doesn't just mean bad, you

37:20

know, bad bad effects from it,

37:23

it's all of them.

37:26

Because

37:26

it comes down so much, right. So

37:28

to give folks, you know, to keep

37:28

them from being agitated,

37:34

combative, unfortunately,

37:34

actually accelerated the

37:37

disease. So you're probably

37:37

taking it taking a year or two

37:41

after a lack of does by giving

37:41

him this drug. And most folks in

37:46

memory care are either medically

37:46

or actually physically

37:52

restrained. And you have to sign off on the

37:54

fact that that's what you're

37:58

going to allow them to do is so

37:58

but you know, for us, yes,

38:04

there's sundowning, that takes

38:04

place, everybody listening

38:08

probably understands that. And

38:08

for us after dinner, we hit the

38:13

hit the streets, hit the carpet,

38:13

as it were, and we just walk and

38:18

walk and walk. Most people because they're

38:20

inside the apartment or inside

38:24

the home, they have nowhere to

38:24

go say is gonna go around in

38:27

circles in their apartment or

38:27

home. Whereas we will open up

38:31

the compartment door, out of the

38:31

corridor. And we are saying

38:36

hello to everybody that's on

38:36

your way to listen to the music

38:40

or play cards or whatever the

38:40

activity is of the of the

38:43

evening. And we enjoy it. I will

38:43

mention something else that you

38:47

know, I'm a backup to something

38:47

that you talked about in terms

38:51

of photos. When I wrote the book, one of

38:53

the things I wanted to do is

38:56

have something that also

38:56

journaling helps people,

39:00

caregivers, by journaling,

39:00

what's going on in your mind and

39:03

talking about it. That's how I

39:03

came about the book. Also, I

39:06

wanted to be able to share with

39:06

Katherine. So write the book.

39:10

First you have audio book, we

39:10

can listen to the audio book.

39:14

It's something I found, I'm sure

39:14

everybody knows about this I

39:17

just found out from my daughter

39:17

is I don't call a fire stick

39:22

that you plug into your TV. And

39:22

then you can download all your

39:26

pictures onto your TV set. So I

39:26

have claimed during the day when

39:31

we're indoors having dinner or

39:31

breakfast, whatever, have some

39:35

music playing in the background.

39:35

And then I have a slideshow,

39:39

showing of all the pictures that

39:39

I've taken over the years. And

39:43

you know, she's not sitting here

39:43

staring at him. But you know,

39:46

every now and then she'll look

39:46

up, she'll see a picture of us,

39:50

you know, in Berlin, and she'll

39:50

start smiling because he clicks

39:55

something at our brain as to you

39:55

know, a memory that

40:00

was there and that's, that's important because, you know, she's lucky

40:01

enough to have you there, most

40:04

people don't have their loved

40:04

one living with them in this

40:06

situation. And that's something

40:06

that's, you know, it's not going

40:09

to solve all the problems, but

40:09

that's something that for the

40:11

person who's in their room alone

40:11

all day, or you know that, that

40:16

have something like that it's a

40:16

very easy, you know, simple

40:19

thing to do that, you know,

40:19

because, you know, most people

40:23

don't have somebody with them

40:23

living with them in that when

40:26

they're in this stage. Right. So

40:26

that's a really, yeah, that's a

40:29

that's a, something that could

40:29

easily be done.

40:33

And, and I think, like you said,

40:33

even if she just smiles for a

40:36

minute, and you know, the importance of

40:39

familiar,

40:39

familiarity, like I did that,

40:42

for my mom, I didn't have the

40:42

firestick. But I had a photo

40:45

frame that had video on it. So I

40:45

made a, you know, slideshow for

40:49

her with music. So when I

40:49

couldn't be there. So important,

40:55

so important. And it just feels familiar. You

40:57

know, it's familiarity, even

41:00

when you're sleeping, if you're

41:00

hearing a little bit of noise

41:03

like that, if it's soothing, if

41:03

you're agitated, or if you're

41:07

feeling lonely, or whatever. So

41:07

it's so important. It's really

41:11

important until we change this

41:11

system, but

41:16

what, so are your plans to stay

41:16

with her

41:21

to see

41:21

all the way through all the way?

41:24

Yes, as matter of fact, that was

41:24

one of the promises I made to

41:27

her. Her dad had vascular

41:27

dementia. And he, he only lasted

41:34

about two years, what he decided

41:34

to do was when they put him in a

41:39

nursing home, he decided that he

41:39

was just going to stop eating,

41:43

that was the one of the things

41:43

that you can control. And you

41:47

can't take that away from him.

41:47

He had his DNR and Catherine has

41:52

that also no feeding tubes. So I

41:52

plan on being here. And, you

41:57

know, we're gonna go through

41:57

this together dry right now my

42:00

goal is to keep her walking as

42:00

long as possible.

42:04

And, you know, she's outside of the Alzheimer's

42:07

season, probably better shape

42:10

than I am. In terms of Stan Amma

42:10

at all. So we plan on keeping

42:16

that going as long as possible

42:16

to try to keep her out of the

42:19

bed. And then we'll go from

42:19

there. We can,

42:24

in this apartment, do everything

42:24

that we need throughout

42:29

the decline. There are some

42:29

folks that you can get bring

42:33

hospice in to the facility. So

42:33

we've we've thought our way all

42:37

the way through that. How are you doing? Well, I tell

42:40

you what, I found two fabulous

42:47

ladies that, like I say, come in

42:47

three to four hours a day, four

42:52

days a week, I'm spaced out. So

42:52

why don't you know, they were

42:56

here at nine 830 In the morning,

42:56

we finished up breakfast, and

43:00

then they play their music and

43:00

off, they go for three to four

43:04

hours, I can get a lot done, I

43:04

can go run, I can talk, I can

43:08

set up appointments and

43:08

interviews and work on my

43:12

writing, which I enjoy doing.

43:12

Very much very cathartic for me

43:18

to do things like that, and

43:22

promote the book that the

43:22

abridged version is coming out.

43:26

May 2, you can preorder now,

43:26

through Barnes and Noble, Amazon

43:31

and Books a Million. And I'm

43:31

really excited about it. I got a

43:36

new publisher, Morgan, James

43:36

Publishing, which has the same

43:41

mindset as I do in terms of

43:41

trying to get this out in front

43:46

of as many people as possible,

43:46

because I think our story is, is

43:49

very important for folks to

43:49

think about

43:55

to dealing with Alzheimer's a

43:55

little bit different because

43:58

like I said, it's, it's yours

43:58

right now. And this is not

44:02

something that you're gonna get.

44:02

And so it's a journey, and you

44:06

have to look at it. And that's

44:06

exactly that's what I show in

44:11

the book. And I talk about this

44:11

to as many people as I can. And

44:16

I enjoy doing that. So, for me,

44:16

I'm doing great. I love it here

44:22

the food is great. Right now

44:22

it's, you know, 70 degrees here

44:28

and in Roswell, Georgia, sunny

44:28

out. And so it's a beautiful

44:32

day. I can't complain at all.

44:32

Wonderful, wonderful. What do

44:36

you think of the what what do

44:36

you think of the realities of

44:39

the model that you've created

44:39

there of becoming a model for

44:44

for others and other and other

44:44

facilities? Do you think it's a

44:47

reality or does this some kind

44:47

of, I think it's a reality and

44:51

to the, to the point that that

44:51

is one of the things that I want

44:56

to talk to as many people as I

44:56

can. So they

45:00

have it as an option. It's not

45:00

for everybody. But if they do

45:04

have it as option, so anybody

45:04

listening here, or anybody

45:07

reading it in my writings about

45:07

it, because I actually wrote an

45:11

article about a transition, and

45:11

how I went through it. Like I

45:17

said, most folks try to find

45:17

somebody that's nearby where

45:20

your relatives are nearby. So

45:20

when you're looking at

45:22

facilities, first thing they

45:22

want to do is they want to get

45:25

as much money as you as

45:25

possible. Memory Care is the

45:28

most expensive way they take

45:28

care of your loved one, assisted

45:31

living is the second and

45:31

independent living is the

45:36

cheapest. And it is everything

45:36

that you need to have all

45:41

activities, you have the ability

45:41

to have somebody come in and

45:44

help you watch, watch and take

45:44

care of your loved one. And you

45:49

can stay here throughout. And so

45:49

now folks will be able to go

45:54

into these facilities and talk

45:54

about the fact now I don't think

45:58

we're ready for memory care, I

45:58

don't think we're ready for

46:01

assisted living 889 $1,000 a

46:01

month, you know, I like to have

46:06

a nice one bedroom for three

46:06

grand, you know, the folks, you

46:10

know, all the all the places

46:10

here have fortunes outside and

46:14

you know, nice, you know,

46:14

walking areas, so you can have

46:17

something to look for when you go out, and you're

46:20

looking at making that

46:23

transition from the home to

46:23

somewhere to live. And so I I

46:28

know, folks that I've met, you

46:28

know, wish they they had thought

46:31

about that, you know, earlier,

46:31

but you know, it is what it is

46:35

so, but they're talking to their

46:35

sons and daughters and, you

46:39

know, grandkids, so hopefully,

46:39

over time, it will be something

46:43

that people can look at, as an

46:43

option. As opposed to just going

46:47

straight up. I've got

46:47

Alzheimer's, here, we need to

46:49

put them away. And that's the

46:49

that's the worst, that's the

46:52

worst form, and it takes the

46:52

burden off their staff to it, it

46:56

helps you know, it's it, it

46:56

actually is easier when you

46:59

know, there you have less have

46:59

to give less attention. You

47:04

know, because you're handling so

47:04

much of it. So it's it's kind of

47:07

a win win in that respect. It's

47:07

amazing. I love it so much. And

47:11

I love I love how happy you are.

47:11

Because you it just is. So it

47:17

makes me happy because and

47:17

everything you're saying is

47:20

resonating with me. Because my

47:20

parents, my stepdad and my mom,

47:26

I say they were like one good

47:26

person, one almost whole person

47:30

as they were aging because my

47:30

mom had, you know, cognitive

47:33

impairment, but she was

47:33

physically perfect. And my

47:36

stepdad who was 12 years older,

47:36

his mind was sharp, sharp as a

47:41

tack. He couldn't hear worth

47:41

crap, he couldn't see his eyes

47:44

were going. And then he ended up

47:44

using a walker and then a

47:48

wheelchair. And my mom would be

47:48

his ears and eyes and his legs

47:53

and he would be the brain. So

47:53

the two said the two of them

47:57

made almost one whole person and

47:57

they were able to live together

48:00

until he died at these assisted

48:00

livings and it was so good

48:04

because my mom was so happy.

48:07

And that's

48:07

you know, and because they had

48:09

each other it's important, it's

48:09

important we, isolation is the

48:13

worst. We saw that through, you

48:13

know, COVID and so many people

48:19

that didn't have cognitive

48:19

issues that living in long term,

48:25

or just facilities because

48:25

they're older. They need more

48:29

care. They died from Isolation

48:29

Isolation is, is lethal.

48:38

It's it's cruel, it's cruel.

48:38

It's a cruel thing to do to

48:42

people. So I applaud you and I'm

48:42

it makes it's great because

48:48

hearing you not really having a

48:48

downside to it is just a

48:52

beautiful thing. And you know, I

48:52

would I was thinking yeah, I

48:57

mean it's been it's fantastic.

48:57

So

49:01

I just say take take Tony as a

49:01

as a model role model. read his

49:06

book first. And you'll be moved

49:06

you'll love it. You'll laugh and

49:12

you'll feel amazing. You'll feel

49:12

good you'll feel exhausted.

49:19

That is what does one thing people do come up to me go oh my goodness,

49:21

I'm halfway through your book

49:24

but I'm tired of reading about

49:24

your because I make some I make

49:30

you feel like you're actually

49:30

running a marathon through some

49:33

of the

49:33

Oh yeah.

49:33

And also when you're running

49:35

late to your planes and

49:38

are

49:38

getting stuck in Argentina and

49:40

we can go on and on about some

49:40

of the crazy things

49:42

and you lose weight

49:42

you'll lose weight while you

49:45

because you'll feel like you've

49:45

eaten and so definitely go and

49:53

pre order pre ordered this.

49:54

Yeah, I'm so excited for you

49:56

I going

49:56

to make two shameful plugs,

49:58

please do

49:59

You see

49:59

my T shirt here. And we're going

50:01

to go running with cat. And

50:01

that's where you can go running

50:04

with cat.com. Our race against

50:04

early onset Alzheimer's, and I'm

50:08

really, really happy about the

50:08

new book cover that they put

50:12

together. James, they did a really good

50:13

job there. So I'm looking

50:18

forward to it hitting hitting

50:18

the streets, I got advanced

50:22

copies. Speaking of which, I

50:22

don't know how you all work this

50:26

but they want to contact you or

50:26

want to contact me by giving

50:29

away one autographed, advanced

50:29

copy to whoever you select or

50:35

you figure out how you want to do. Oh, that's awesome. Okay. Well,

50:36

I'll tell you what,

50:41

go ahead. Go ahead. I'm just

50:41

gonna say no, I'm just saying

50:44

that. I was gonna say that, you know,

50:46

I'm paying for shipping and all

50:50

that. So all I gotta do is

50:50

either contact me or contact

50:54

you. And you let me okay.

50:55

Are you white? I'll put I'm gonna put something in the in the show

50:57

notes. And then we'll figure out

51:01

something and we'll put it in

51:01

the show notes. And then we'll

51:04

make that happen. You got it. So

51:04

that's a great offer. That's a

51:07

really a very generous offer.

51:07

And what else or anything else

51:13

we missed? Talking about? Oh,

51:13

wanted to say

51:18

to say

51:18

goodbye here whenever you all

51:20

want to close us out. On our love our

51:23

I Sure will.Well, I get my big

51:23

hug. Yeah.

51:26

Big hug!

51:27

Yeah,

51:28

I totally

51:28

wait. I'm gonna do this for when

51:31

you watch it back. I want to

51:31

just say Catherine we I love

51:34

you. You're amazing. I wish I

51:34

was there to give you a big hug.

51:40

And I you are a fierce, fierce

51:40

woman. You are a role model for

51:46

everybody. And just keep on

51:46

keeping on. And that's it. I

51:52

love it. I love love. Love you.

51:55

Absolutely.Love Love

51:55

time. More Love.

51:58

Best of

51:58

luck with you and your thing.

52:01

Luck with you in your project

52:01

and you to Susie

52:05

Yeah, no, we're just

52:05

glad we

52:05

were able to work this out. So

52:07

W're the

52:07

first ones. That's because we

52:08

you guys could be the first love you and you love us and

52:11

it's all about love. Right Don?

52:14

Why is it about love?

52:15

You know why? You

52:15

know why? Because love is

52:18

powerful. Love is contagious.

52:18

And love conquers Alz. We thank

52:23

everyone for watching and

52:23

listening today. If you like

52:27

her, or like we just saw or

52:27

heard please like, share, follow

52:31

do all those fun things.

52:31

Definitely check out Tony's

52:35

book. And again, thanks for

52:35

thanks for attending.

52:39

Attendee

52:39

take care

52:46

Hey, this

52:46

is Susie singer Carter. And I

52:48

just wanted to take a minute to

52:48

talk to you about bed sores. I

52:52

know. But if you're like I was

52:52

you probably don't have a clue

52:55

what a bed. So really is. Most

52:55

people don't. I mean, no one

52:58

told me and I really just

52:58

assumed it was part of the body

53:01

that was like the name says sore

53:01

from lain in one position too

53:06

long. And then if you change the

53:06

position, all better. Wrong.

53:09

That sore is really a euphemism

53:09

for more appropriate names such

53:13

as pressure wound, and to keep

53:13

it as ulcer. Unfortunately, I

53:17

discovered what a bed sore

53:17

really was. When my mom was

53:19

admitted into the hospital last

53:19

year with a stage four ulcer,

53:23

that is the worst level, you

53:23

don't ever want that to happen.

53:27

bed sores can develop quickly

53:27

and worsen rapidly and can lead

53:30

to serious health issues, even

53:30

death if they're not properly

53:33

treated, or properly treated.

53:33

And that includes cleaning and

53:36

dressing the wound, but most

53:36

importantly, reducing pressure

53:40

off the sore by frequently

53:40

changing the position of the

53:42

person off of their wounds so it

53:42

can heal and that can mean

53:46

propping the person up 30

53:46

degrees to the side, far enough

53:49

to be off the lower back, but

53:49

not too far as to be on the side

53:53

hip where there isn't much

53:53

cushion right between the skin

53:55

and the bone. This is why I'm so

53:55

excited to tell you about that

53:58

sir rescue, which was designed

53:58

by an amazing woman when jewel a

54:02

nurse who was tired of fooling

54:02

around with simple pillows and

54:06

bulky wedges that just don't

54:06

work. The beds are rescue

54:08

positioning wedge cushions are

54:08

uniquely designed to provide

54:12

ergonomically correct and

54:12

comfortable support for a

54:15

sustained period of time without

54:15

touching the sore and the

54:18

curvatures and bilateral angles

54:18

and make it possible for the

54:21

bedside cushion to be used to

54:21

support many other body parts as

54:24

well. You can flip the heels you

54:24

can put it under the head, you

54:28

can put it under the arms behind

54:28

the knees, both sides. You can

54:31

even use it as a breakfast in

54:31

bed table, the curvatures of the

54:34

bed sore rescue fit the

54:34

curvatures of your person's body

54:37

and it's made to meet all the

54:37

patients safeties, and bed bound

54:41

positioning standards for acute

54:41

and long term care facilities. I

54:45

wish I had it for my mom, I

54:45

really do. So chances are if you

54:49

have a loved one in long term

54:49

care facility or at your home,

54:53

you may become a pressure injury

54:53

soldier to but bedsores should

54:56

never never get to stage four

54:56

and one way to ensure

55:00

that they don't is to make sure

55:00

that as soon as one begins to

55:03

develop, you keep the pressure

55:03

off. You can do that easily with

55:07

beds so a rescue and you can

55:07

find bedsore, rescue and many

55:10

other pressures solutions online

55:10

at jewel nursing solutions home

55:14

of the patented bed so rescue

55:14

positioning which cushions pads

55:18

and pillows that's jewel, je w e

55:18

l l nursing solutions.com. And

55:21

when you use the special code

55:21

and C F O P the entire amount of

55:25

your purchase will go to support

55:25

our important documentary No

55:29

Country for Old people, which

55:29

chronicles my mother's journey

55:32

navigating the nursing home long

55:32

term care crisis that literally

55:36

began with an unreported

55:36

untreated pressure wound. So

55:39

take the pressure off yourself

55:39

and your loved one with the

55:43

bedsore rescue