Mike comes from a career in public policy, international development and strategy.  Previous roles have included establishing a new program at New America, a DC think tank, Budget & Planning at both the Gates Foundation & Emerson Collective, healthcare consulting at BCG, developing world university support for the World Bank Group, managing a refugee program for the International Catholic Migration Commission in Zimbabwe, and teaching math in Peace Corps Namibia.

Graglia has an MBA from Columbia where he was a Bronfman Fellow, an MA from Johns Hopkins School of Advanced International Studies where he was a Soros Fellow, and a BS in mathematics from Gonzaga University, S.J.

Graglia lives with his wife Ashley & two sons in Palo Alto, California.

About SRF

Michael Graglia’s son Tony was diagnosed with SYNGAP1 in 2018, he was 4.  Together with his wife, Ashley Evans, he founded the SynGAP Research Fund, 501c3, to accelerate the science around SYNGAP1 in order to make sure there is a therapy developed in a time frame that matters for his son, and children like him.  SRF expects to have granted over $3M to scientific labs by the end of 2022.

There are over 1,055 cases of Syngap globally, we are aware of ~330 cases in the USA.  SYNGAP1 is a disease that has multiple symptoms. 

Our children present with epilepsy, autism, intellectual disability, sleep disorder, & numerous other symptoms.  SynGAP patients are disabled for life requiring huge investments from society & sacrifices from their families. 

The patients are often on a range of medications for epilepsy, sleep & other symptoms.

The disease results from spontaneous (not inherited) mutations on the critical neurological gene, SYNGAP1.  We all have two copies of every gene, one from each parent.  As a result of the mutation causing one of those genes to be unable to make the associated protein our patients only have 50% of the necessary SynGAP protein.  It is the lack of this protein that causes this disease and all their symptoms.

SRF has multiple programs to serve patients and their families:

* We have a patient ambassador program to support newly diagnosed families.


* We engage with scientists via grants, conferences and our Webinar series.


* We are rolling out a cutting edge medical records-based digital natural history study on September 1st, 2020 in partnership with Citizen.


* SRF has a Scientific Advisory Board that includes a number of leading scientists and leaders in the genetic epilepsy space.


SRF is governed by a board of twelve different families of affected individuals.

Connect with SYGNAP1 Research Fund

Website: https://www.syngapresearchfund.org/

Facebook: https://www.facebook.com/cureSYNGAP1

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Connect with the Mindful Inspiration Champion

Website: https://www.themindfulchampion.com

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Instagram: https://www.instagram.com/mindfulchampion/

Follow My Daughter Aria

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