‘It’s like being trapped in a room with a terrifying creature.’A few months after her son was born, Helena realises something is wrong. Her search for answers leads to a difficult decision.

In Room 5, Helena Merriman interviews people who - like her - were changed by a diagnosis.

Written, presented and produced by Helena MerrimanComposer: Jeremy Warmsley Sound Design: Eloise Whitmore

Production Co-ordinator: Janet Staples Editor: Emma RipponCommissioning Editor: Richard Knight

#Room5

End song: Miffed by Tom Rosenthal

If you have a story you’d like to share you can email: room5@bbc.co.uk