Episode Transcript
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0:00
This is the BBC. This
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podcast is supported by advertising outside
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the UK. BBC
0:09
Sounds, music, radio, podcasts.
0:13
Welcome to Seriously from BBC
0:15
Radio 4. I'm Vanessa Casulay.
0:18
This podcast finds the world's best audio
0:20
documentaries and puts them all
0:22
in one place. OK,
0:25
right. Why don't you introduce yourself? Give us your age
0:27
as well. I
0:31
start most interviews like this. What's
0:33
your name? Who are you? My
0:36
name is Danny and I'm 20. For
0:39
Danny, who are you is a complex question.
0:43
Because Danny is just one of more than 200 personalities,
0:46
or alters, who
0:48
inhabit this small green-eyed figure sitting next
0:51
to me. I
0:54
believe that my brain has picked
0:57
out the alter that they believe, well,
0:59
that it believes is most
1:01
capable of handling this right now, and
1:04
in a way I feel honoured. But
1:07
Danny, it seems, was just here to
1:09
organise logistics and deal with
1:11
meeting me. Ten minutes
1:13
into the recording, he starts to
1:16
feel someone else hoping to get some airtime. Sorry,
1:19
my brain is not working. I
1:24
know I'm shaking, but it's not me who's shaking. We
1:27
pause while Danny works out what's happening.
1:30
He thinks he's about to switch, become
1:32
someone else. I'm not sure
1:35
yet. I'm going to look
1:37
through their playlists, because we have separate
1:39
playlists. He plays a
1:41
track he knows is a favourite of one of
1:43
the people he can sense coming through. OK,
1:46
so one of Mikey's triggers is the song
1:48
Brother by Gerard Way, which
1:51
I'm going to be trying because I can
1:53
feel somebody pushing front and I can't figure
1:55
out if it's Mikey or Joe. Jump
1:58
boost. Hi.
2:17
Hello. Hiya. Who's this? Mikey.
2:20
Hello Mikey. Do
2:23
you need me to go through what's happening? If
2:25
that's okay. Yeah. So should I stop recording for
2:28
a minute? If that's okay. Yeah. We
2:32
go for a walk and then I do
2:34
the rest of the recording with Mikey.
2:37
Hi, I'm Mikey. So
2:40
when we were around around 13,
2:43
so we had an old host called Dan
2:45
who he's not our host anymore, but
2:49
he was experiencing gaps in
2:51
his memory and he
2:53
thought that this kind of thing was normal. But
2:57
he started receiving messages
3:00
on like on our notes app on our phone. At
3:04
first it started out to
3:06
be from like there was no
3:08
name signed off, but slowly this guy
3:12
called Jack started like putting his name into
3:14
it. Dan
3:16
at this point was already leading quite
3:18
a complicated existence as a young trans
3:21
person, born female, but identifying
3:23
as a young man. Now
3:26
there was someone in his phone sending him messages.
3:30
Slowly over time Jack
3:32
started to like do
3:35
things like talk to people at school and he
3:37
would like do
3:39
our schoolwork and he used
3:41
to chase our bullies down the halls of
3:44
water bottles. Dan
3:46
only knew about Jack. When
3:48
others told him about things Jack had done or
3:51
Jack sent notes or drew cats on
3:53
things. But Dan
3:55
told no one about Jack. He
3:57
was convinced he'd be sectioned. And
3:59
it was It kind of went from there. He
4:01
introduced himself to a friend that
4:04
we still have now over text. Not
4:06
in the best way. He kind of
4:08
just said, this isn't Dan, but
4:11
I think they were assuming that something like that was
4:13
going on because they were like, oh, is this Jack?
4:17
Danny and Mikey and Jack are part
4:19
of what they call a system, a
4:22
modern term for a much older
4:24
phenomenon, which you've probably heard of
4:26
as multiple personality disorder. Their
4:29
TikTok account is part of an explosion
4:32
of interest in a condition that provokes
4:34
questions for us all about
4:36
identity, memory and the nature of
4:39
our realities. I'm
4:42
Lucy Proctor, and this is the story
4:44
of three people from three different eras
4:47
who switch between different
4:49
personalities. My
4:54
name's Melanie Goodwin, and
4:57
I co-founded an organisation for
4:59
people with dissociative identity disorder
5:02
and colleagues, friends, allies, therapists,
5:04
because I live with dissociative
5:07
identity disorder. The condition
5:09
has had many names, historical
5:11
neurosis, multiple personality disorder,
5:13
split personality disorder, and
5:15
from 1994 onwards,
5:18
dissociative identity disorder, or
5:20
DID. The vast
5:22
majority of people who are diagnosed
5:25
with DID are female. It's
5:27
not clear why. Melanie,
5:29
now in her 70s, has
5:31
gone through extensive therapy to get to where
5:33
she is now, able to
5:36
train for a sprint triathlon. I
5:38
have never had enough internal cooperation
5:40
to do anything like that, and
5:42
for me to be able
5:45
to join in a group and stay
5:47
grounded and do what I'm being asked
5:49
to do and to train over six
5:51
months to do a very, very small
5:53
triathlon is like a little
5:55
miracle, my own personal little miracle. It's
5:58
been a decades-long journey. and
6:00
it started in her 30s. I
6:04
was experiencing the world
6:06
as what I considered absolutely
6:08
very normal and ordinary. Melanie
6:11
thought everyone lost time or found themselves
6:13
in places and situations with no idea
6:15
how they'd got there. Then
6:18
a family member died and
6:20
Melanie's chaotic but familiar world
6:22
fell apart. The
6:24
dissociative barriers in my brain that kept
6:27
our two worlds so separate began to
6:29
break down because the person was somebody
6:31
I had to protect as a child
6:33
and the brain did its own thing
6:36
and went into, oh right
6:38
now's the time for memories
6:41
to start surfacing. So for
6:43
the next seven years I
6:46
walked around in trauma land. She
6:49
begins to become aware of other people
6:51
in her brain which she calls parts.
6:55
I am what we call co-conscious. So
6:59
in all honesty I could never
7:01
say I wasn't present as
7:03
an adult but it's
7:06
like being pressed back inside to the back
7:08
of your body. You can't change anything and
7:11
you don't have any input. I
7:13
witnessed what was happening and the different
7:15
parts talking and I
7:18
could feel my brain, it sounds extraordinary but I
7:20
could feel my brain being used in a completely
7:22
different way to how I used it and
7:25
I would hear a totally different use of
7:27
language coming from my mouth. It's
7:30
the 90s and Melanie has
7:32
no access to the internet to
7:34
research her increasingly strange life. I
7:37
worked in a library and a book came across
7:39
the counter called The Flock and
7:41
I picked it up and read it from cover to cover. The
7:43
story is very very different to mine but it was just, oh
7:46
goodness me, this just absolutely answered because
7:48
I couldn't understand why one moment I'd
7:50
be thinking of one thing and then
7:52
find myself doing something completely different and
7:55
then going off somewhere else and
7:57
this gave me a framework to begin
7:59
to. understand it, what I felt
8:01
was happening to me. And
8:03
I'd kept it to myself for about a year because
8:06
I just thought, oh goodness me, I'm just
8:09
trying to make life more complicated than it really
8:11
is, but actually deep down I knew that was
8:14
my reality. Books like
8:16
this in the 70s and 80s
8:18
and several films based on the
8:20
lives of people with multiple personalities
8:22
and their therapists had thrown DID
8:24
into the spotlight. Could
8:27
I speak with Eat
8:29
Black now? Eat Black?
8:33
No. Did
8:35
you enjoy the trip over today? And
8:38
these therapists, when they start mapping
8:40
out the many personalities in their
8:42
patients, find something shocking.
8:46
Often they eventually meet a
8:48
child personality. A
8:50
child subjected to severe, often
8:52
sexual abuse. The
8:55
therapists form a theory. If
8:59
a child experiences something horrific,
9:02
unbearable, their mind splits it
9:04
off from the rest of their life. Then
9:08
the mind parcels it up into
9:10
another child's experience and builds a
9:12
mental barrier between those two children
9:15
who both live in the same body. Up
9:18
until nearly 40, I had
9:21
no idea that I had had an abusive childhood. In
9:23
therapy, Melanie discovers she has a three-year-old part. I'm
9:29
so proud of our child parts who found
9:31
a way of making it. You know, I
9:34
think that innate
9:36
drive to stay alive is so, so important. We
9:38
see it all the time, don't we, in the
9:40
world situations. And it's there, I think, in most
9:43
of us as children. We just want to stay in life
9:47
and we find a way of managing it. It's
9:53
a challenging idea that you might have been
9:55
abused and not know about it. And
9:57
it meant that anyone diagnosed with DID in
10:00
the 1990s had to contend
10:02
not only with the condition, but also
10:05
with what were dubbed the memory wars. Because
10:09
for other clinicians and lawyers
10:11
for people accused of these newly remembered
10:13
crimes, these memories of
10:15
abuse, they're false. Fantasies
10:19
implanted by the therapists trying to help.
10:22
And I mean, there was a big drive then
10:24
with the false memory society. It's
10:26
still a controversial in some
10:29
places. It's still questioned. But
10:32
I think there was a time when
10:34
there was an overdrive to identify perhaps
10:37
multiple personality disorder as it was then known.
10:40
And I think therapists have to
10:42
be so careful and they really
10:44
are now to be absolutely ethical
10:47
how they work with people who
10:49
go to them for help. It has
10:52
to be client led, not therapist
10:54
led. But the
10:56
legacy of the memory wars has
10:58
stayed with dissociative identity disorder. Even
11:01
clinicians are on a spectrum from
11:03
those who specialize in DID to
11:06
those who don't really believe in it. Because
11:09
in the field of exploring other people's
11:11
minds, there's no hard evidence. There's
11:14
only the testimony of the patient, their
11:17
behavior and their response to
11:19
various treatments. I'm
11:21
Jess, I'm from Wales. And
11:25
I lived with a condition called Dissociative
11:27
Identity Disorder until I was 30
11:29
years old. It's
11:32
during drama at secondary school that Jess
11:35
has one of her first insights into
11:37
the truth about herself. Her
11:40
friends in class tell her she does a mean
11:42
American accent. Does it quite often in fact?
11:45
And I was adamant. I was like, I absolutely
11:47
do not do that. Like why would I be
11:49
doing that? And the one
11:51
time we had to be recorded. And
11:54
again, they were adamant that I had been doing it
11:56
all in American accent. And I was like, there is
11:58
no way. They showed me back. the
12:00
tape and actually when I watched the tape my
12:04
heart dropped and I felt really sick and
12:06
it just kind of like my
12:08
mind had connected that this was
12:10
Jake. So this was a an
12:13
altar called Jake that I remembered when
12:16
I was around about six years old almost
12:19
as an imaginary friend almost in that kind of
12:21
way that I kind of he
12:23
felt like a vague friend that I had grown
12:25
up with. And at
12:27
this time were you aware that you'd had
12:29
a traumatic past? Yeah so
12:31
again in part of everything that had gone on
12:34
and I don't know how things
12:36
started circulating but
12:38
again around about this time with the drama
12:40
class there was a bully in the class
12:42
who I was in maths
12:45
actually of all things and I remember
12:47
them announcing about the
12:49
person who had sexually abused
12:51
me so I
12:53
don't know how they found out I don't know but
12:56
it suddenly came back. Like
13:00
many people who suspect they have
13:02
DID Jess tries various NHS therapies
13:04
and doctors but she doesn't
13:07
find anyone who takes her completely
13:09
seriously or who has expertise. Amazingly
13:12
she heads off to university and
13:14
finishes a course in psychology. She's
13:17
now a trainee associate psychologist. All
13:19
this despite losing weeks or months
13:21
of time in chunks, finding
13:24
herself dressed in clothes and shoes she
13:26
didn't like, her grades all over the
13:28
place. Away
13:30
from home she says her parts felt
13:32
like they wanted to come out. By
13:36
this time people have formed
13:38
niche online forums for sexual trauma
13:40
survivors and Jess finds them. I'd
13:43
already kind of come to that conclusion before
13:45
coming to university that I probably had
13:47
something like this because I'd
13:49
come across a Wikipedia page about dissociation you
13:51
know kind of investigated it a bit more
13:54
and everything I read I was like this
13:56
is me this is exactly what I'm going
13:58
through. Back then. then, camera phones
14:00
had just started coming out and
14:03
so she begins to record herself or
14:05
themselves. So, I had
14:08
Jake who was just
14:11
a very sweet guy, he had the
14:13
best intentions, he was vegetarian
14:15
and kind of into meditation
14:17
and he was very gentle,
14:20
he had an American accent and
14:22
he was really into his acting and
14:24
drama and that kind of side.
14:27
And we had Jamie who
14:29
was very intelligent, logical, kind
14:31
of a posh English accent
14:34
I would say and then
14:37
there was Ed, originally I
14:39
was very frightened of Ed and I remember describing
14:41
him as a part that wanted to hurt me.
14:44
Finally there was Ollie who was a teenager, he
14:46
sort of grew up really, so originally he was
14:48
a child, I can't remember how old, I want
14:50
to say maybe about six or seven and
14:52
then kind of grew up alongside us.
14:55
Do you have any understanding of why
14:57
all of your parts apart from your
14:59
just part were male? I
15:02
have a sense of why they were
15:04
male. I
15:06
think when I was a six year old
15:08
girl understandably and I had gone
15:11
through sexual trauma, I had thought at the time
15:13
if I was a boy it wouldn't have happened
15:15
to me. Again, just seeing the
15:17
world through your six year old eyes, obviously I understand
15:20
that absolutely can happen and does happen to men but
15:22
from a six year old girl's point of view
15:26
if I was a boy I wouldn't
15:28
have been abused. It was essentially my
15:30
way of thinking. Her
15:33
worried course tutors helped Jess access
15:35
the main specialist centre for dissociative
15:37
identity disorder in the UK. I
15:40
got the diagnosis within three hours, three and a
15:42
half hours maybe and then it was
15:44
like a what next, how do I fix it? And
15:47
there was, well there's nobody
15:49
near you that sort of does
15:51
this work. So it's the early
15:53
2010s, you've had a
15:55
diagnosis but you don't really have access
15:58
to any support. these five
16:00
parts that you've become relatively
16:03
familiar with, what's your next
16:05
step? Well,
16:08
I had seen in
16:10
all my research, again, in all my kind
16:13
of looking online to try and find answers.
16:15
I come across a couple of communities that
16:17
were really helpful. And then I also came
16:19
across a really small YouTuber who just gave
16:21
me a bit of hope that
16:24
my life wasn't all going to be doom and gloom. And
16:26
they seemed to live really happily as
16:29
multiple. And at
16:31
the time, I couldn't wrap my head around
16:33
that because the prospect felt so frightening and
16:35
feeling so out of control was so terrifying.
16:37
But they did give me hope that things were going to
16:40
get better. And so when I had my diagnosis, I thought,
16:42
if I can help one other
16:44
person not feel so alone, I'm
16:47
going to make a video as well and just
16:49
put myself out there. And that was, I guess,
16:51
the beginning of things. Jess
16:53
would go on to be one of
16:55
the world's most well-known and well-liked DID
16:58
YouTubers, with a following that peaked
17:00
at hundreds of thousands. Her
17:02
channel, called Multiplicity and Me, was
17:04
bright and colourful. Her video is
17:06
one or two hours long, about
17:09
things like busting myths and later
17:11
domestic life, kids, husband, to-do list.
17:14
Today I'll be running you through some of the advice
17:16
and guidance of what to do if you feel that
17:18
you may have something like DID. All
17:21
hosted by one of her five
17:23
personalities, or alters. Whenever we're stressed,
17:26
anxious or overwhelmed, going into our
17:28
safe space allows us to ground
17:30
ourselves and sit with that emotion.
17:32
Yo, puzzles and pieces fam, it's Oli
17:35
from Multiplicity and Me. Channel
17:37
dedicated to ending the stigma, of course, of
17:39
DID. And
17:42
once DID YouTubers became a thing, it
17:45
wasn't long before switch videos
17:47
became sought-after content. usually
18:00
changing the way they spoke and their mannerisms,
18:03
but what turned up on my social media
18:05
timeline and what brought me into this
18:07
world. I
18:10
tell you what, there was a really
18:12
random video that appeared and
18:14
that has gone viral. I think it had just
18:16
hit the algorithm at, you know, right place, right
18:18
time kind of thing. And
18:20
it was of this person who
18:23
switched on camera. That was the whole premise
18:25
was. And I
18:28
know every experience is different, but I think when I
18:30
looked at that, I thought, oh, that's not how it
18:32
is for me. You know, it was a very obvious
18:34
switch. It was, you know, quite
18:38
a dramatic switch. So I think
18:40
I just kind of wanted to counteract that. And
18:42
I put out my own video, which again was
18:44
the same title as theirs, which was like switch
18:46
caught on camera. And it was kind
18:48
of just saying, actually for us, it's
18:51
absolutely hidden, very anticlimactic. Actually
18:53
it's quite boring. There,
18:58
did you see it? Let's try again. Guys,
19:05
are you putting the kettle on? Yeah,
19:07
I'll put it on there for you. What
19:09
did this small group of
19:11
YouTubers think when these more
19:13
dramatic switch videos started coming
19:15
through? Did you talk
19:18
about it together? Yeah, I think we, again,
19:20
we got a sense that we didn't want to be judgmental
19:22
of other people because we barely
19:25
knew ourselves, quite frankly. I think it was
19:27
such a new experience for us to all
19:29
be talking about anyway. We didn't want to
19:31
tread on any toes, but I think the
19:33
overall essence was that it also wasn't what
19:35
they experienced. DID YouTube
19:37
split. Other content
19:40
creators went towards those more fantastical
19:42
videos, looking for clicks and more
19:44
revenue. Jess carried
19:46
on doing more down-to-earth content,
19:49
warning against self-diagnosis. Although
19:51
looking back, she thinks at times she was
19:53
a little too invested in all these altars.
19:56
She made money too, though, and used
19:58
it to finally fund the special. therapy
20:00
she'd wanted for so long. And
20:03
in September 2022 she
20:05
posted her last and one of her
20:07
most famous videos titled Our
20:10
Final Fusion Journey, No
20:12
More DID. So basically
20:14
I'm happy to report that I
20:17
would consider myself now as like
20:20
in Final Fusion and if
20:22
you don't know Final Fusion is basically
20:24
kind of like end stage recovery for
20:26
DID and it kind of means that
20:29
all of you get reconnected
20:31
into just one, one
20:33
being. And signed off for
20:36
now from her Multiplicity and Me
20:38
channel. And don't forget whether or
20:40
not you have DID, each part
20:42
of you deserves self-love, self-care and
20:44
compassion. Thank you guys,
20:47
bye! One of
20:49
the fans of Jess's Multiplicity and Me
20:51
YouTube channel was Mikey. Multiplicity
20:54
and Me were amazing. I remember when we
20:56
were, when we were 16 and we
20:59
would put our headphones on and I could,
21:01
I could feel, you know, when you
21:03
go to an aquarium and let you press your nose
21:05
against the screen and you're like I want to know
21:08
everything about this, this is so cool. It was like
21:10
in that way but I don't know
21:12
how to take this in and like this is so
21:14
amazing that there is someone else like this. I feel
21:18
so much less alone. I'm sure
21:21
she'd be really pleased to hear that.
21:25
Mikey, Danny and the rest of the
21:27
system grew up with YouTubers like Jess,
21:29
acting as kind of cool older cousins. But
21:32
they're from the TikTok generation and
21:35
TikTok with its fast pace and
21:37
focus on imagery, makeup and short
21:39
grabby videos is different to
21:41
YouTube. Yeah, so show me
21:43
your account on TikTok. Okay, so
21:48
okay, so this is my account
21:50
on TikTok. We have 48.3k followers
21:54
which is amazing. Quite a lot. A lot,
21:58
it's astounding really. We
22:00
have had a few that have got
22:02
like if I scroll down there was
22:04
one At
22:07
some point if I can
22:09
find where it is. That'd be amazing that
22:11
had 25.7
22:15
K likes and 279
22:18
comments and 3346
22:22
saves which is Terrifying
22:25
and also really really cool because it
22:27
was just us saying that we moved
22:29
and We asked
22:31
our friend if they wanted if
22:33
they wanted to give different people a hug before we
22:35
left and another thing is people Watch
22:38
that video and they're like, oh You
22:40
did all of these switches in this amount of time.
22:43
You must be faking when in reality this took us
22:45
about two days to film So
22:47
it's there's a lot of misconceptions about that video.
22:50
I just wanted to clear up Another
22:52
switch video led to death threats. They
22:55
were basically saying that like we
22:57
deserve to be lobotomized or Sorry,
23:00
I've just seen your face. Yeah like
23:03
stuff like lobotomizing or Threatening
23:06
to kill us people like somehow
23:08
leaking our address and our location
23:11
Mikey steers clear of making switch
23:13
content now They're
23:16
homeless staying in a hostel so can't easily access mental
23:19
health services They're desperate for
23:21
a formal diagnosis of DID but at
23:23
the moment they're trying to work themselves out
23:26
all on their own To
23:32
help keep track of all their alters or parts they use an
23:34
app made for people with DID Kind
23:38
of a graphic Different
23:41
colors as well, which is really cool. So we've had Danny for 50 and
23:43
well 1051 days But 50 days 23 hours. We've had Ren. We've had Frank.
23:45
We've had Gerard Dalin I
23:49
don't know who who that is. Some people
23:51
don't leave their name It's
23:55
all just so complicated Some
24:01
people worry, don't they, that the
24:03
internet and seeing those kinds of
24:05
videos might put an idea into
24:07
your head or encourage you to
24:10
go along with an idea about DID that
24:13
isn't necessarily true. Have
24:15
you worried about that yourself? I
24:19
definitely have. It
24:23
has become extremely debilitating because we worry
24:25
that we are putting things on the
24:27
internet and we're not being
24:29
truthful about it. We go
24:32
through these really bad episodes of
24:34
denial and we
24:36
struggle to see that
24:39
we are existent
24:41
at all. But
24:44
also, there
24:47
have been a lot of people who fake
24:51
DID on the internet. I'm not going to
24:53
deny that because I'm not
24:55
going to point any fingers because I'm only
24:57
going off people who have come out and
25:00
said, I did this and it was bad.
25:03
But I also think that it
25:05
has massively grown
25:07
the stigma around DID. It went
25:10
from DID being this terrifying
25:13
thing and all these people are going to
25:15
come out and then kill you and turn
25:17
into monsters to, oh,
25:20
nobody has this, this isn't real and everybody
25:22
takes us as a joke. I
25:24
asked Mikey about Final Fusion. They're
25:27
wary of that option and want
25:29
to try for something more like what Melanie
25:31
from earlier in the programme has achieved, what
25:33
they call in the community functional
25:36
multiplicity. I've
25:40
grown to love all of these people, all
25:42
of these parts of myself so
25:46
much and I
25:49
don't think I could cope with us all being
25:51
one because I don't think I
25:53
could ever view myself as that
25:55
little girl who was
25:58
supposed to be a person of the same age.
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