This is a difficult subject to talk about. For many of us it is our biggest fear. What if they out live us? What if we out live them?  It is a fear that haunts many of us, but when you live in the "rare" community chances are you know more children who have passed away than adults. 

We  really wanted to talk about this, because it is a real thing that we deal with, and for many becomes a horrible reality. 

In this episode we talk about what most don't want to say outloud. We spoke with parents who have experienced the tragedy of losing their child, and share some of their views. 

Please let us know any comments or feedback. This episode was created with respect and love for the families who have experienced the loss of their children and for the families that are scared it may be their child.

With Love,
Michelle and Donna

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