You have your first few seizures and people tell you not to share your diagnosis of epilepsy because they are afraid for you. Afraid of the potential shame and discrimination you will face. While this is well-intentioned, you do the opposite.
In this podcast episode, we hear from Jon Tuteur, who shares his experiences of living with epilepsy after being diagnosed at 30. Jon talks about enduring over 500 seizures and undergoing three brain surgeries. Despite these challenges, he focuses on the positives that have emerged from his condition and emphasizes the importance of staying optimistic.
Jon discusses how his journey has taught him about resilience, the real timeline of recovery, and the value of being open about one's condition. He highlights how being honest and vocal about his struggles has helped to build connections and foster support from others.
The episode isn't just for those who have epilepsy. Jon's insights are universal, offering lessons on overcoming obstacles and the power of community support. His story is a testament to the strength found in vulnerability and the impact of sharing one's experiences to educate and reduce stigma around invisible conditions.
Takeaways:
Jon is an Executive Coach, Facilitator, Speaker, Author, and Management Consultant with over 20 years of experience working across numerou
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Email: tim.reitsma@gmail.com
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