Episode Transcript
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does the brain process memories? Why
1:02
is AI a solution and a problem
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for our climate? What is
1:06
leadership in 2025 and beyond? The
1:09
TED Radio Hour explores the biggest
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greatest thinkers. Listen now to
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the TED Radio Hour from NPR. This
1:32
is the Moth Radio Hour from PRX, and
1:35
I'm Katherine Burns. This
1:37
time, we'll hear stories about genetics. We're
1:40
learning more and more about our DNA, for better
1:42
or for worse. Genetics
1:44
can shed light on mysteries in our lives, but
1:47
can also sometimes reveal things that folks would
1:49
rather have kept in the dark. DNA
1:52
can shake the family tree, settle
1:54
disputes, stir up old secrets,
1:57
and pass on traits that are beloved or
1:59
may be feared. That's
2:01
the case in our first story, told by
2:03
many time Moss storyteller and host Mike Brabiglia.
2:06
It concerns the genes that get passed
2:08
down from grandparents to parents to children.
2:11
We recorded Mike at a show we did
2:13
one evening in Greenwood Cemetery in Brooklyn. Cemeteries
2:17
are outdoors, obviously, so you can hear the
2:19
sound of cricket and even a few planes
2:21
going by. Here's Mike Brabiglia,
2:23
live at the mall. Thank
2:27
you guys so much. This
2:30
is a really special thing. I'm really honored
2:32
to be a part of it. It
2:35
is an ominous thing
2:38
to tell a story in a
2:42
graveyard. I've never done
2:44
it before. It's particularly
2:46
timely for me because
2:49
yesterday I turned 41 years old.
2:55
I celebrated with my wife Jenny and my
2:58
daughter Una, who's
3:00
four. But
3:03
it's got me thinking a lot about mortality
3:05
because my dad had a heart
3:08
attack at 60 and his
3:10
dad had a heart attack at
3:12
60. So I'm just
3:14
setting aside that whole year and
3:17
I'm getting an Airbnb by the
3:19
hospital and
3:22
I'm keeping a flexible schedule. It's
3:28
not just that. I actually
3:30
have a lot of medical issues.
3:32
I have a dangerous sleepwalking disorder.
3:34
I had a bladder tumor when
3:37
I was 19. Two
3:41
years ago, I went for my annual
3:44
checkup and my doctor took blood and he
3:46
called me and he said, you have Lyme
3:48
disease and? I
3:51
was like and diabetes.
3:53
And I was like one at a
3:56
time. Everybody's going to get a chance. But
3:58
it was. It
4:01
was truly shocking. A
4:04
39-year-old diagnosed with type 2 diabetes, he
4:06
says, is there anything in your diet
4:08
that might be spiking your blood sugar?
4:10
I said, sometimes I eat pizza until
4:12
I'm unconscious. He said, I think that
4:14
might be it. I
4:17
have terrible habits. I travel for
4:20
my job, and I never
4:23
drink the tiny liquor
4:26
bottles in the mini fridge, but
4:30
I'm triple digits on glass jars
4:32
of peanut M&Ms. If
4:36
you suck on a peanut M&M long enough,
4:40
it's just a peanut. And
4:45
if you suck on that peanut long enough,
4:47
you can taste pure shame. But
4:51
at a certain point, the shame pivots into pride,
4:53
and you start to think, actually, this is pretty
4:55
healthy. I've been meaning to
4:57
eat more nuts, and then you start
5:00
eating a couple hundred, and
5:02
you get a sugar high, and
5:04
you think, I should run a marathon, and
5:07
then you don't, and then you end up with type
5:09
2 diabetes. And so that's
5:12
unfortunate. But my doctor wanted
5:15
to put me on medication. I really didn't
5:17
want to do that. I
5:19
said, let me give it a shot. I'm
5:22
going to try to change my diet drastically.
5:25
I'm going to cut red meat and
5:28
sugar and fries, and as he's
5:30
continuing, I'm just thinking about sugar
5:32
fries, which isn't
5:35
even a thing, but I was singing
5:37
a song about it and everything. So
5:41
I give it a shot
5:44
for a few months, and I lose a few pounds, and
5:47
I go back in, and my numbers are lower, but he
5:49
has me take a pulmonary test,
5:51
which is this thing where you're essentially getting
5:54
blowing out a candle, but it's a little ball, and
5:57
he goes, do it, and I go,
5:59
I do it. I just did. And
6:03
he goes, oh wow. I
6:06
just do it again. And
6:09
I go, I just did. And
6:11
he goes, well if I were going by just
6:13
this, I would say you're having a heart attack
6:15
right now. And
6:17
I said, well am I? Because
6:20
if I were having a heart attack, I would
6:22
ask you. I
6:25
wasn't having a heart attack. I
6:28
just wanna make that clear. But
6:31
he was worried. He sent me to
6:33
the cardiologist and they both agreed that
6:35
I should be doing cardio
6:37
five days a week. And as a matter
6:39
of fact, they both suggested that
6:42
I start swimming at the
6:44
YMCA. This
6:47
was a sore subject for me. I
6:50
spent a lot of my childhood at
6:52
the YMCA in
6:54
Worcester, Massachusetts. I went to the
6:57
nursery school. I
6:59
spent hundreds of hours with the half
7:02
blown up basketballs and the rowing
7:04
machine that's also a fan and
7:07
the vending machine room
7:09
that has a coffee maker that
7:12
also makes soup. So
7:16
two years ago, I walked to my Brooklyn YMCA
7:19
and I don't need directions. You
7:22
just follow the chlorine smell. They
7:24
are not shy about their use
7:27
of chlorine in the
7:29
YMCA pool. And I go
7:31
up to the front desk and I'd made an
7:33
arrangement for a lesson with
7:36
a woman named Vanessa and
7:38
she said, where's your swim cap? And I go,
7:40
oh, I don't wear a swim cap. And
7:44
she said, well, it's mandatory unless
7:47
you're completely bald. And I said,
7:49
I don't like how you leaned
7:51
on the word completely. I'm not
7:53
actually bald at all. I
7:56
have four distinct tufts of hair
7:58
that. formed this
8:01
Voltron that is my
8:03
hair and she said you
8:05
can borrow my extra and so I put
8:07
on Vanessa's swim cap and I
8:09
look like a condom and and
8:12
we walk into the pool area
8:15
which is basically pure
8:17
chlorine and and
8:19
she says hop into the instructional lane.
8:21
Now the instructional lane is
8:23
also the walkers and joggers
8:26
lane and so she asked me to do
8:28
the crawl to show her what I got
8:30
and I try but I'm just
8:33
these these aggressive elderly walkers
8:36
are just blowing past me
8:38
and one of them drops
8:40
an elbow on my head
8:42
and and I'm like Vanessa
8:44
like is it always this
8:46
crowded and and she goes
8:49
no it's uh it's because it's the spring
8:51
and everyone's getting ready for the
8:53
summer and I go oh they want
8:55
a body like this which
8:57
is a joke it's not a great joke
8:59
it's not stage worthy but it's sort of
9:02
the kind of conversational witty repartee
9:04
you might have to forge a
9:07
bond with a swimming instructor. She
9:11
didn't hear it and she
9:15
just goes what? They
9:18
go they want a
9:22
body like this and
9:26
everybody in the pool looks
9:28
over all the elderly walkers and
9:31
toddlers and the and the
9:34
and the lifeguard and they're like this
9:36
has this guy seen his own body
9:39
there are there are mirrors
9:41
everywhere at the YMCA
9:44
and for the people only listening to this
9:47
and not seeing me I don't have
9:49
a swimmer's body I have what I
9:51
call a drowners body where it seems
9:53
like I'm drowning at
9:56
all times even when I'm not
9:58
in water And
10:01
so after about a
10:04
half hour of this, I get out of the
10:07
pool and I dry myself off
10:09
with 15 or 20 of those
10:11
YMCA dish rack towels. And
10:16
I even put two on my
10:18
feet because Vanessa explained that there
10:20
is fungus in the
10:22
puddles. And I was like, this place is a
10:25
death trap. I have to get
10:27
out of here. And she says something
10:29
significant to me. She
10:31
says, you know, you can take the lessons,
10:33
but really you're going to have to come
10:35
back on your own and practice. And so
10:38
that's what I did. For
10:40
the next two years, I went
10:42
swimming at the YMCA and I
10:45
also did pilates and I did yoga
10:48
and I even did, believe it
10:50
or not, kickboxing. And
10:55
a month ago I went to my doctor and he
10:57
took blood and he called me
10:59
and he said, you reverse
11:02
the diabetes. I
11:05
was quite shocked by
11:07
this. And
11:09
I thought, I'm thinking to myself, like, what was it? Like
11:12
was it a diet or the exercise? And
11:14
so the next time I saw my doctor, I said to him,
11:16
I go, what do you think it was that reversed the
11:19
thing? And he said this really
11:21
simple phrase that stuck with me. He
11:24
said, you chose
11:26
to live. And
11:32
I think that's true. I think I really did. I
11:34
think I chose to live.
11:36
I think I really want
11:38
to see my daughter grow up and go
11:40
to high school and maybe college. And
11:44
in 19 years from now, she'll
11:48
be 23 and she'll be
11:50
out of school and maybe out
11:52
of the house. And
11:55
I will
11:58
be 60 Years old. And.
12:02
Like my father. And
12:04
his father. I.
12:07
Will have a hard to test. But.
12:11
There will be a difference. Because.
12:13
I will be checking in. To.
12:16
My Air Bnb. And
12:20
it and if I have. Any say
12:22
in it? I. Would
12:24
choose to live. Eating
12:35
at all local comedian was so he
12:38
served a new was when all the
12:40
way to broadway the one the drama
12:42
desk or would. He expanded on
12:44
the so it is for. The new
12:46
I'm painfully true stories from
12:48
Reluctant Bad. She. Was also take
12:50
for Netflix and is available along with his
12:53
last two says. Thank God for
12:55
jokes and mcgrath. How.
13:02
Well known writer and comedians that he told
13:04
his first three way back in two thousand
13:06
and three and a month so we produce
13:08
from us com the arts festival and Aspen
13:11
Colorado. I got to work with Mike and
13:13
the story and was actually the first masri
13:15
I average arrested so we got our start
13:17
to gather. Here's my talking about his history
13:20
with a mass. I'd always how storytelling
13:22
and something I wanted to do but whenever
13:24
I would try to tell stories as stand
13:26
up as a stance me the time I
13:29
really felt and secure. Our
13:31
that I was losing the audience's attention
13:33
so. When the folks
13:35
who the moth ask me to
13:37
perform at Aspen seems like. A
13:40
really exciting opportunity him when I didn't realize
13:42
is that it would change the way that
13:44
I. Perform. The rest of
13:46
my career so I told a story and
13:48
aspirin it which is an early version of
13:50
a story there and have been my my
13:53
solo show. My girlfriend's boyfriend. and
13:55
was about my first girlfriend in high
13:57
school and how i was so excited
14:00
but that she told me not to tell anyone
14:03
that she was my girlfriend because she
14:05
actually had another boyfriend. And
14:08
that was a pride swallowing event in my life. And
14:10
I had literally never told
14:12
people, nevermind a
14:14
group of strangers. And so I was so nervous when
14:16
I told the story on stage and asked and that
14:18
I was literally trembling. And sometimes
14:20
I'll tell people who want to
14:22
try storytelling that I think if they're nervous about
14:24
telling a story, that it's actually a good sign.
14:28
So as a fan of The Moth, that's what
14:30
I've always found the most compelling and exciting about
14:33
their shows. When people tell their
14:35
most embarrassing and gut-wrenching confessions in a way
14:37
that we can all relate to, I
14:40
think that's really special. I mean, I remember after performing
14:42
at The Moth for the first time, I thought, I
14:44
think I'm better at this than just
14:46
traditional stand-up comedy. I think this is what I'm
14:49
supposed to do. So now
14:51
it's, I think, more than 15
14:53
years later and this is what I do. That
14:58
was Mike Rbiglia. Coming
15:01
up, a family takes a
15:03
DNA test just for fun, but then...
15:08
I need to read a book of the news. The
15:28
Moth Radio Hour is produced by Atlantic Public Media in Woods
15:30
Hole, Massachusetts and presented by PRX. For
15:35
over a century, Brooks has been propelled by
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a never-ending curiosity with how humans move. It
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drives their every decision and every innovation
15:42
because they believe movement is the key
15:46
to feeling more alive. And
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we're all moving towards something. It could be to run
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a 5K and raise money for a
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cause you believe in. To take
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the lead on your family's annual Thanksgiving Day hike
15:56
or... For
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me, I love how clear my
16:02
head feels after a long run. But
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living in Brooklyn means I'm running on
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cement. So my head feels great, but
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my knees, not so much. That's why
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I'm so happy to have the cushioning
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of the Brooks Ghost Max shoes that
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let me go a little bit further
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and feel a little bit clearer. And
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with my new reflective run visible vest,
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I can chase this high before the
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sun is even up and kickstart my
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day. So let's run there with gear
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and experiences specifically designed to take you
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to that place, whether it's a
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headspace, a feeling, or a finish line. Let's
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run there. Head to brooksrunning.com to
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learn more. This
16:40
is the Moth Radio Hour from PRX. I'm
16:42
Katherine Burns. In this show,
16:44
we're talking about genetics. DNA
16:46
doesn't lie, and having access to
16:48
our own genetic histories has fundamentally
16:50
shifted the world. That
16:53
was the case with our next storyteller, Carmen
16:55
Rita Wong. She tells
16:57
her story at the Terry Town Music Hall in
16:59
the Hudson Valley. So we partnered
17:01
with Music Without Borders. Here's Carmen.
17:07
Here's where in Manhattan in the
17:09
1970s to a Chinese father
17:11
and a Dominican mother. Now
17:14
there was no mistaking that my mother was my mother. Guadalupe
17:17
y otra gracias go mecere es. A.K.A.
17:21
Lupe. She was
17:23
the constant in my life and very
17:25
much my Latin mama. Now
17:27
when I was a toddler though, she divorced my
17:29
Chinese father, Papi Wong, as I call
17:31
him. But my older
17:33
brother and I still saw him on the weekends and
17:35
here and there. And we loved it
17:37
because he'd take us to Chinatown shopping or to
17:39
our favorite restaurants. I loved the
17:41
ones that had the fancy chopsticks. They went click,
17:43
click. And
17:46
even though he didn't live with us, I was
17:48
raised as his daughter. I was raised as a Wong.
17:52
Now my mother didn't stay single long. She
17:55
remarried and we picked up and moved from
17:57
Harlem to New Hampshire. Now,
18:03
I've got to say, my stepfather, my new
18:06
dad, Charlie, he was like
18:08
a dad out of the Golden Books when
18:10
you were kids, right? He was
18:12
a white guy, wore a suit and
18:14
tie, carried a briefcase to work every day,
18:16
and came home at the same time Monday
18:19
through Friday to dinner on the table. Well,
18:22
little Carmen thought she had hit the American
18:24
Daddy jackpot. Here's
18:28
the thing, the best thing he gave
18:30
me were my four little sisters, who
18:33
I loved and adored, pains in the butt,
18:35
but I loved them so much. And
18:38
I wanted to be a part of
18:40
that family. I wanted him to be my
18:42
daddy, too, but
18:45
he wasn't. And so
18:47
I grew up always feeling like an outsider,
18:49
like an other. And
18:52
you better believe, in 1980s New
18:54
Hampshire, I was an other. I
18:57
might as well have been an alien
18:59
that landed there, an unwelcome alien in
19:01
a place that was supposed to be my
19:03
home. The little
19:05
kids would make fun of me and pulling up their eyes
19:07
or bucking their teeth or all these
19:10
new creative slurs were thrown my way for
19:13
being brown. And
19:15
every once in a while, the grownups would get
19:17
on that train. When
19:19
I was in fourth grade at parent-teacher conference,
19:22
Sister Rachel said to my mother, my Latin
19:24
mother, mind you, that the reason why I
19:26
was getting all these straight A's well was
19:28
because, you know, it's Carmen's
19:31
Chinese side. Now,
19:36
I may have been only nine years old, but
19:40
I knew enough to be insulted
19:42
and embarrassed for my mother and me.
19:46
I liked Sister Rachel a lot less after that. Because
19:50
here's the thing, even though my mother wasn't
19:52
the Asian parent, she was what some people
19:54
would call a tiger mom, right?
19:57
Lupe expected excellence from me at
19:59
all. times. If
20:02
I dared to bring home anything but an
20:04
A, she would say, well,
20:08
are you an A or are you
20:10
a B? Lupe
20:14
saw education as a way of
20:16
escaping her fate, working
20:18
full time at 15 years
20:20
old to help support her family, married off by
20:23
her father at 19 and there at that conference
20:26
night in her 30s pregnant with
20:28
her fifth child. She
20:31
wanted more from me. So
20:34
in the car ride home from that parent teacher
20:36
conference though, I was still nice
20:39
and I just had to ask, I just had to
20:41
say, mommy, mommy, sister
20:44
Rachel said I'm smart because of Poppy
20:47
because I'm Chinese. And
20:50
my mother, the parent who was
20:53
actually present, the one who would kick
20:55
my butt if I didn't do well in school, she
20:58
just kept her eyes straight on the road and
21:00
there was a little smile. She
21:03
shrugged and she said, that's okay.
21:05
And in
21:08
that smile, which was more of a smirk, I
21:11
realized there was a lot of things my mother
21:13
wasn't telling me. See,
21:16
mommy came from a world of secrets.
21:19
In the 1950s, 1960s Dominican Republic,
21:23
this was a place where speaking your mind
21:25
or telling the truth could get you beaten
21:27
or killed or
21:30
kidnapped in the middle of the night like my
21:32
grandfather who was tortured but
21:36
then who later escaped the hospital dressed as a woman
21:38
by his sisters. I
21:41
mean, talk about secrets.
21:43
This is cloak and dagger on a
21:45
family level. This was my mother's normal.
21:51
By the time I was in my 30s,
21:54
my mother received a devastating cancer diagnosis. And for
21:56
the first time
21:58
in her life... She was about to
22:00
lose control of the narrative. My
22:04
stepfather Charlie called me months after we found out
22:06
that she was sick and said, he needed to
22:08
see me urgently and alone. A
22:12
couple weeks later, I'm sitting across the kitchen table from
22:14
him and he says to me, Carmen,
22:19
Poppy Wong is
22:22
not your father. I
22:24
am. The
22:27
first thing that came to my mind was, aya,
22:30
I'm not Chinese anymore? And
22:34
two, damn you two,
22:38
all these years that I so
22:40
much wanted to be a part
22:42
of that family, that picture book
22:45
American family, his family, and
22:48
they both knew it was
22:52
painful. Now
22:55
I had to confirm this story, of course, with my
22:57
mother. Who I then
22:59
told him, and she confirmed it pretty much with
23:02
a lot more dramatic flair. She
23:06
was mostly just upset that he'd gotten to me
23:08
before she did. But
23:10
mommy, even stage four colon cancer, how long were
23:12
you going to wait? Right? So
23:16
there was many tears and
23:18
questions and blame. But
23:20
I made peace with my mother before she
23:22
passed the following year. My
23:25
relationship with Charlie, however, unfortunately
23:28
has never been exactly the same. How
23:31
could it be? Well,
23:34
years go by and now we're living in
23:36
a time when genetic testing is
23:39
available to everybody, to the public, and
23:42
affordable. And there's one thing
23:44
my family loves, it's a sale. So,
23:47
we're at holiday season, we all bought up
23:50
a bunch of 23 and me and
23:52
took the test at the same time. Mom,
23:55
how about I result back
23:57
first? And I'm opening that up.
24:00
And what I'm expecting to see is I'm
24:02
expecting to see a confirmation of this family
24:04
secret, right? I'm expecting to
24:06
see that I'm half Charlie, which
24:08
is Italian, and then half
24:10
my mother, which would be African and Spanish.
24:15
Well, that's not what I thought. Portuguese.
24:20
It says I'm half Portuguese.
24:24
I frantically texted my sister Nina. She
24:26
texted right back. She said, okay, don't
24:28
worry about it, okay? Relax. Once we
24:31
all get our results back and we
24:33
connect, right? Because once we see our
24:35
relationships and we connect our data then
24:38
we'll know what's right, right? So
24:42
I pick up the phone and say my brother. He says pretty much the
24:44
same thing. He says don't worry about it. You know what?
24:46
Maybe it's a mix-up. Once we connect and see
24:49
our relationships and we're all linked up, then
24:51
you'll see. You know, plus Italy and Portugal
24:53
are kind of close to each other. So
24:58
no, no, that's not
25:00
what happened. Once we all
25:02
connected. Now remember my sister Nina, my
25:05
baby sisters, I'm supposed to be the
25:07
same as her. I was supposed to be full
25:09
siblings. And
25:11
there it was in large,
25:15
extra large font, half
25:18
sister. There
25:21
was a third father. Six
25:24
kids in my family and
25:27
I didn't share a father with any of
25:29
them. I
25:31
felt so alone. But
25:35
damn it, I was gonna solve this mystery. So
25:38
I went digging in the past and I dug
25:40
up my godmother who I hadn't spoken to in 20 years.
25:43
I tracked her down and I
25:45
called her up and I said, Pimpa. This is her
25:47
nickname. We called her Pimpa. I
25:50
said, we all took this genetic test and we found out
25:52
that any of a different father from everybody.
25:56
And she was really surprised because Pimpa, she thought
25:58
she knew all of them. So all my mother's
26:00
secrets, she was my mother's best friend, she lived
26:02
down the hall from us growing up. And
26:05
she was a scholar now, she was a dual
26:07
PhD. She looked at
26:10
historical records to find shipwrecks in
26:12
the Caribbean. My godmother
26:14
was a treasure hunter. That's
26:17
what I wanted right now, that's what I needed. But
26:20
she was surprised. Because
26:23
even though she knew as well,
26:26
seems like everybody knew, that Poppy Wong was
26:28
not my father, she also
26:30
thought that it had been Charlie. I
26:33
said, no, Bimba, it says
26:35
I'm Portuguese. Oh.
26:39
Oh. Oh. Oh. Oh.
26:42
Oh. Oh. Oh.
26:45
The Argentinian optometrist on Delancey Street.
26:47
Oh. Oh. Oh.
26:50
Oh. Oh. Oh,
26:52
what's his name? I'm
26:54
Bia, how can I remember his name? It was almost
26:56
50 years ago. Listen, your mother,
26:58
don't judge your mother. She was lonely. Poppy
27:01
was already kicked out of the house and
27:03
so she was dating, you know. And I
27:05
was babysitting your brother when the dates would
27:07
come and pick her up. So yeah, there
27:09
was Charlie. And then the
27:12
optometrist, you know. She had a part-time
27:14
job at an optician on Delancey Street. But
27:16
he's dead. My
27:22
heart could barely bake it. You
27:25
know, have people really thought about the
27:28
fact that, you know, with genetic testing, we're
27:31
looking at the end of family secrets.
27:33
You're looking at the member of probably
27:35
the last generation whose parents could futz
27:37
around about their futzing around. Oh.
27:42
Really? Here's
27:45
the thing. My
27:47
origin story, as I like to call it, or
27:50
mystery, is still
27:53
happening to this day. But
27:56
here's what I do know. I
27:59
know that... Lupe did
28:01
everything she could and came so
28:04
far and did so much to give me options.
28:08
I know that Charlie, I used to
28:10
talk with him about the stock market to bond and
28:13
I ended up hosting my own Finance Daily
28:15
TV show on CNBC. And
28:18
Bobby Wong, well he taught me
28:21
the street hustle that helped get me there.
28:25
I got a good deal, but
28:29
I rail at my mother's ghost sometimes,
28:32
Lupe, for
28:34
leaving out this incredibly important little detail
28:37
of my life. And
28:40
I ask her to visit me in my dreams, to
28:43
drop me a hint or a clue as
28:46
to who it is I'm looking at when I
28:48
look in the mirror. The
28:53
morning after I talked to Pimpa, I called
28:55
my sister Nina. I said,
28:57
Nina, what
28:59
if I never find out who this man is? And
29:04
Nina, who's super Zen, said,
29:06
you know, does
29:08
it really matter, girl? Because
29:10
you know who you are. You
29:13
know who you are. She's
29:18
right. How
29:30
many of the Wongs in the former national
29:33
TV host, the gay pianist and the preface,
29:35
who is looking at the success of the
29:37
movie? We recently sat
29:39
down to discuss how this story came about
29:41
and what's happened in the aftermath of all
29:43
these revelations. So
29:45
I was having breakfast with you and
29:48
at the end of the breakfast, you
29:50
ended up telling me this story. But
29:52
at the time, the story ended with
29:55
you finding out that Charlie was your father. And
30:00
then, so you agreed to tell the story, and
30:02
then you came to the office like a month
30:04
later. Mm-hmm. We had the
30:07
meeting scheduled, and the
30:09
night before, I had
30:11
gotten the results with my family
30:14
that it actually was a
30:17
third man, daddy number three. Because
30:19
I remember you saying, before
30:21
we start, I have something to tell you. I
30:25
said plot twist. Yes, you did. The
30:28
mystery continues. At
30:31
the end of the story, you're
30:34
searching for the daddy who's the
30:36
optometrist on Delancey Street, but then
30:39
yesterday, you send me your
30:41
bio, and I read it,
30:43
and da-da-da. It was
30:46
not the optometrist on the
30:48
Delancey Street. Not Argentinian
30:50
at all. I did speak with my
30:52
stepfather, with Charlie, and finally kind of broke
30:55
the news to him. And new
30:57
revelations came out. And here's the funny thing is
30:59
that I was so concerned about his reaction, because
31:01
he had been, I'd been living with him as
31:04
my father, stepfather for so many years. I
31:06
didn't want to break his heart. Yeah. Instead, I was
31:09
the one who fell apart, and he was holding me
31:11
together. But then I picked
31:13
myself up and said, okay, dad, so
31:15
do you know who the hell this is? Can you tell me
31:17
anything? And he said, you know, I used
31:19
to pick up your mother from this
31:21
clinic in the Bronx. She
31:23
was working there, and I go and drive and pick her up. There
31:26
was this Cuban doctor. I
31:29
was little. I had bad feelings about this
31:31
Cuban doctor, and I was like, okay. And
31:33
then I go, of course, just like the
31:36
optometrist. I was like, well, at least he was a
31:38
doctor. And then 23andMe had an
31:41
update on its system. So
31:45
they sent me a notice and said,
31:47
we have a more specialized report for
31:49
you. And there it was. It
31:52
had the origins, the most direct
31:55
origins outside the US of my
31:57
family, and half of it
31:59
was Havana. Cuba. So
32:01
that's where we're heading and
32:04
I hired a genealogist and we're tracking down my
32:06
mother's work records because no one can remember who
32:08
this man is and we're
32:10
just gonna try to figure it out. That
32:16
was Carmen Rita Wong. To
32:18
see a photo of Carmen's mother and
32:20
Pepe Wong at their engagement party go
32:22
to themos.org. While there you
32:24
can call our pitch line and leave us a two-minute version
32:26
of a story you'd like to tell. By the
32:29
way for future show we're looking for
32:31
stories about animals. Dogs,
32:33
cats, tarantulas, llamas,
32:35
geese, bring them on. The
32:37
number to call is 877-799-MOS or you can pitch
32:42
us your own story at themos.org. We
32:53
have a woman missing a difficult decision
32:55
when faced with her family's genetic history
32:57
and later a Nobel Prize-winning geneticist
33:00
just a scramble to get his
33:02
green card removed. That's when
33:04
the MOS radio hour... The
33:36
MOS radio hour is produced by
33:38
Atlantic Public Media in Woods Hole,
33:40
Massachusetts and presented by
33:43
the Public Radio Exchange, prx.org.
33:48
This is the MOS radio hour from
33:51
PRX. I'm Catherine Burns. Our
33:53
next story was told at one of our
33:55
open mic story slam competitions here in New
33:57
York City. We partner with Public Radio Station W.O.C.
34:01
Here's Buck Nooker, live at the Moss.
34:06
So, ten years ago
34:08
I underwent genetic testing for the
34:10
breast cancer gene. And I
34:13
did this because when I was five years
34:15
old I watched my mother die of breast
34:17
cancer. She was 26 when
34:20
she was diagnosed and she was 30 when
34:22
she passed away. And
34:24
her mother had also died when she was five
34:26
years old. And
34:28
my older sister died of a rare genetic
34:30
liver disorder when she was only nine months
34:32
old. So it really
34:34
only felt natural to me to try to
34:36
figure out why this kept happening to people
34:39
in my family. And
34:41
the person that had a front row seat
34:43
for all of this pain and death was
34:46
my Aunt Anna. Now
34:48
my Aunt Anna, she
34:50
took my mother in after their mother
34:52
died and she raised her along with
34:54
her eight children. She
34:57
left that sink in. And
35:00
then when my mother died she took in me
35:02
and my brother and she became
35:04
a mother all over again. And she
35:06
raised us with her brood of eight adult
35:09
children. And man,
35:11
she just did it. And she
35:13
did it well. And she did
35:15
it in that Irish Catholic, blue collar
35:18
way. You just, you put your head down
35:20
and you do what you need to do to take care of your
35:22
family. And she did
35:24
it with quiet strength. But
35:27
when I said quiet, I mean quiet. We
35:30
didn't talk about death. We
35:32
didn't talk about cancer. She
35:35
never talked about what she
35:37
had seen in her life. Until
35:39
I was older and in college and
35:41
on breaks I would drive down to
35:43
see her in Southwest Philly. And we
35:45
would sit around the table and drink
35:47
bad coffee and talk about life and
35:49
family and you know, you see stuff.
35:52
And then after enough of that she started to actually
35:54
open up about that time. And she
35:57
told me this story about my mom. And
36:00
she was in the hospital, which is a
36:02
lot. My mother died
36:04
a blind quadriplegic with steel rods
36:06
holding up her skull. She
36:09
suffered, unimaginably. But
36:13
that day, when Anna went to see her, she
36:16
went in and my mom was so happy and
36:18
she was smiling and she was excited. And
36:21
she grabbed Anna's hand and she said, Anna, you
36:23
never believe what the nurses told me this morning.
36:27
They're doing liver transplants. You're
36:30
doing it. You're doing it. That
36:34
was the thing that would have saved my sister's
36:36
life. And in 1975, they were
36:38
not doing that. And
36:42
it has really always amazed me that my mother
36:44
was able to find this joy and this happiness
36:47
despite being trapped in total health.
36:51
And I tried to remember that when my
36:54
own genetic test results came back and they
36:56
were positive for the BRCA1 mutation,
36:58
which was not a surprise, but
37:01
it took my risk from 12% to somewhere around
37:03
60 to 87% risk
37:06
of getting the disease that seemed
37:09
to get everyone. And
37:12
then around that time, we
37:14
buried Anna because
37:17
she got cancer and she
37:19
didn't tell anyone, because
37:21
she didn't want everyone to go through the same
37:24
thing that she had gone through and she didn't
37:26
want anyone to see what she's in. And
37:29
so quietly, she did. And
37:33
at that point, I had enough. I was really
37:35
done. So I elected
37:37
to have a prophylactic mastectomy. And
37:39
I made that decision ferociously.
37:43
And I made every decision after
37:45
that fearlessly and with strength. And
37:48
I was resolute right
37:51
up until I was alone in
37:53
a very small room in the hospital that
37:55
morning with my plastic
37:57
surgeon and bare ass
37:59
naked. naked with my hospital gown around my
38:01
waist. And he was making
38:04
all these marks on my breasts with this
38:06
dark blue grease pen. And
38:09
I got so scared. I
38:11
was so alone. And
38:14
then in that same instant
38:17
when I got so scared, I
38:19
felt over on the right hand side of the room
38:22
that there were people there. As
38:24
much as you all are here right now, they were
38:27
there. And it was my
38:29
grandmother, and it was my mother, and it was
38:31
Anna, and it was my sister. And
38:34
I was calm
38:37
and warm and
38:39
happy and excited. And
38:43
I thought about my mother and I looked over in
38:45
the corner and I went, look
38:47
mom, they're doing it. They're
38:51
doing this. And
38:54
that really is the spirit with which I've
38:56
moved forward after this, is every time I'm
38:58
walking through this world and I see something
39:01
awesome or amazing or just
39:03
beautiful, I look up at the sky and
39:05
I hear it within. And
39:08
then I tell them, look guys,
39:11
I'm doing it. Thank
39:13
you. So this
39:21
is Beth, who is
39:24
a passionate educator of students with learning
39:26
disabilities in ADHD. Having
39:29
ADHD herself, her mission is to show
39:31
her students what they're really made of and
39:33
prove to them that no matter what label
39:35
life throws at us, we can learn
39:37
to live beyond it. Since
39:39
this story aired, Beth celebrated her
39:42
40th birthday and underwent her
39:44
final risk-reducing surgery. She's
39:46
now considered to have the same cancer risk
39:48
as the general population. She
39:50
says that she's never been more thrilled to be average.
39:55
To get a link to Beth's website and to see
39:57
pictures of Beth and her family, go to themoth.org. Our
40:10
final story is a classic mock tale
40:12
that came out of our many year-long
40:14
collaboration with the World Science Festival. As
40:17
part of this annual event, we'd ask some of the
40:19
greatest minds in the world to stand
40:21
on stage and talk about themselves.
40:24
In our experience, most scientists would rather
40:26
be in a lecture hall talking about
40:28
anything with themselves, but every
40:30
year a few step up. One
40:33
year we were thrilled to have not one, but
40:35
two Nobel Laureate observers. Here's
40:38
one of them, the geneticist Paul Nurse,
40:40
live at the MOS. I'm
40:45
a geneticist. I study how chromosomes
40:47
are inherited in dividing cells, but
40:49
my story tonight will be more
40:51
to do with my own genetics.
40:55
You probably gather I'm English. As
40:58
brought up in the 50s and 60s in London,
41:01
my family wasn't very rich. I had
41:03
two brothers. I had a sister. My
41:06
dad was a blue collar worker. My
41:08
mum was a cleaner. My
41:10
siblings all left school at 15, and
41:13
I was a little bit different. I sort
41:15
of did quite well at school. I
41:17
passed exams, and then I somehow got
41:19
into university, got a scholarship, and then
41:22
did a PhD. But I wondered, why
41:24
am I different to the rest of
41:26
my family? Why did they all leave
41:28
school at 15, which is
41:30
in fact what happened? I
41:32
didn't really have much of an answer, but
41:34
I felt a bit unsettled about that. I
41:36
wondered about it occasionally, but I carried on
41:39
with my life. I got a job in
41:41
a university. I got married. I had two
41:43
children, Emily and Sarah, and just got on with
41:45
things. Then my parents,
41:48
who are living in London, they
41:51
retire to the country. We
41:54
used to visit them regularly, but the truth was it
41:56
was a bit boring. They Lived in the
41:58
middle of nowhere, nothing much. Happen there. and
42:01
then my kids who are packed
42:03
nine or ten or eleven got
42:05
a bit bored when they went
42:07
there and Sarah my eleven year
42:09
old had a project school and
42:11
the project was family trees that
42:13
to tell you family trees a
42:15
very bad projects that have a
42:17
spouse and them I said i
42:19
got a great idea You know
42:22
I know you get a bit
42:24
old grandmas why don't you talk
42:26
to grandma's about her family tree
42:28
so we get them. You. Know
42:30
we have dinner and then of
42:32
Sarah Trots takes Grandma next door
42:34
to talk about her family tree.
42:36
Five minutes later incomes My mom
42:38
absolutely right, absolutely right. and she
42:40
comes over to mean she said
42:42
sarah's been asking me about my
42:44
family tree. Am I have to
42:46
tell you something that I've never
42:48
told you? I was in my
42:50
thirties for news in my thirties
42:52
to success I never told you
42:54
My mom said is she says
42:56
it's actually I'm illegitimate This is
42:58
what my mom said she'd eat
43:00
or and religious myths she been
43:02
born in nineteen hundred and ten
43:04
a mom wasn't married, Am should
43:06
be born in the poor. How
43:08
she wouldn't put wasn't very. I'm
43:10
at from a wealthy family and
43:12
she was brought up by her
43:14
grandmother and her mother had married
43:16
somebody else who wants to was
43:18
my grandfather but that wasn't the
43:20
case. My grandfather was unknown side
43:22
lost a grandfather. Then
43:25
she turned to me and said and actually
43:27
the same for your father to. So
43:32
into sentences utmost to
43:35
grandfather's. Well
43:38
as with a bit of a shock and
43:40
then I began to think about it my
43:42
source for maybe this is where I got
43:44
some exotic genes from somewhere and they are
43:46
real combined and and that form of the
43:48
difference. And then I remembered that my middle
43:50
name was Maxime and I got it from
43:52
my my dad who was called Maxime. william
43:54
jones and you know he was a sort of
43:57
farm works in the country that's where he came
43:59
from in norfolk And I tell you,
44:01
in Norfolk, farm workers are not
44:03
called Maxime, usually. This is a
44:05
French-Russian aristocratic sort of name. And
44:08
it did seem a little odd, so I began
44:10
to sort of imagine that perhaps, you
44:12
know, I had an exotic grandfather's, you
44:14
know, French-Russian aristocrat and, you know, blah
44:16
blah blah, and that was why I
44:18
ended up how I was. And
44:23
so that seemed all okay, that seemed a
44:25
reasonable explanation, and, you know, I forgot about
44:27
things, and I got on with my career,
44:30
and I became an Oxford professor, then a
44:32
departmental chair, then they knighted me, and then
44:34
I got a Nobel Prize a few years
44:36
ago. So
44:38
that's all hunky-dory, and
44:41
then in 2003, I
44:43
decided to come to
44:45
New York City. Both
44:52
my parents had died, they lived to the 80s and 90s, and
44:56
so I came with my family to New York City
44:58
to be president of Rockefeller University, and
45:01
up at Eastside. And a
45:03
couple of years ago, 2007, I thought I should try
45:05
and get a green card. Have
45:08
you ever seen those poor bastards all there
45:10
queuing up when you come into immigration? They're
45:12
all people like me who have to wait
45:14
there for an hour and a half and
45:16
have their fingerprints all done anyway. And so
45:18
if you have a green card, residence card,
45:20
you avoid that, okay? So I applied for
45:22
a green card, huge amount of paperwork, you
45:24
have no idea. How complicated it is. Sent
45:26
the thing off, waited
45:29
a number of months, came back, and
45:31
I was rejected. And
45:34
I thought, how come I'm rejected? I'm a
45:36
knight, I've got a Nobel Prize, and I'm
45:38
talking about Rockefeller University, and they reject me
45:41
for a green card. I know home-known security
45:43
has high standards, but I mean, this did
45:46
seem more than a little
45:48
ridiculous. So
45:50
I looked through all the paperwork, and I
45:53
eventually found out they did not like the
45:55
documentation I'd sent with my application. So I
45:57
went through it, and I picked out. They
45:59
particularly did. didn't like my birth certificate, so
46:01
I got my birth certificate out. And it
46:03
was a so-called short birth
46:05
certificate, which we have in Britain, which names
46:07
who you are, where you were born, the
46:10
time you were born, your citizenship and so
46:12
on. It doesn't happen to quite name your
46:14
parents, okay? It's a perfectly official document, but
46:16
that's what I had. And so
46:18
I thought, well, I can go
46:21
and get the long certificate. I knew the registry
46:23
office would have it, so I phoned up London,
46:25
the registry office, and said, please send that in
46:27
the post. I told my secretary in my office,
46:29
when it arrived, bungled it all off again,
46:31
send it off to those silly jerks
46:33
in Homeland Security. I
46:36
went on holiday for a couple of weeks, went to
46:38
New Zealand, came back, undoing
46:41
all the mail, looking at my
46:43
emails and so on. Several people
46:45
in my room, I had my
46:47
secretary, her assistant, my wife came in,
46:50
my lab manager was around, so quite
46:52
a few people around. And then I
46:54
remembered, I told my secretary to get
46:57
this package sent off,
46:59
so I asked her, did you manage to do that?
47:02
And she turned to me and she said, well, I didn't
47:04
do it, she said, because the
47:06
certificate arrived, I
47:08
looked at it, and I thought, maybe
47:11
you got the name of your mother wrong. I said,
47:14
of course I didn't get the name of my
47:16
mother wrong, that would be absolutely ridiculous. So she
47:18
handed me the certificate, and everybody started to look
47:21
at me, a strange conversation to have. So I
47:23
open it, I look at it, and there, the
47:25
name nurse is my mother, and I say, well,
47:29
not a problem there. And then I look at
47:31
it again, and the name was Miriam
47:33
Nurse, and that was the name
47:35
of my sister. It was
47:38
not the name of my mother at all,
47:40
it was the name of my sister. So
47:43
I'm looking at this thinking, oh my
47:45
God, the registry office have cocked up again,
47:47
you know. And
47:50
then I look a bit further, and where it
47:52
says father, there's just a line, just
47:55
a dash, no father. And then my
47:57
wife comes up and says, you know
48:00
I don't know what this might mean, Paul. LAUGHTER I
48:09
was a bit slow, actually. LAUGHTER I
48:13
really didn't quite realise what it might
48:15
have meant. And
48:17
then slowly, you know, the clouds,
48:19
you know, roll away. My
48:23
sister was 18 years
48:25
and one month older than me. OK?
48:29
Now, I haven't told you, but
48:32
both, not only both my parents had died,
48:34
who are actually now my grandparents, but also
48:36
my mother. She died early
48:38
of multiple sclerosis three or four
48:40
years before. So I had
48:42
nobody, and all that generation had died, I
48:45
had nobody to confirm if
48:47
this story was true. However,
48:49
on the birth certificate was the place where
48:51
I was born, and it was my great
48:53
aunt's house, about 100 miles from London, in
48:56
a city called Norwich. And
48:58
my great-aunt had a daughter who was
49:00
11 years of age when I was
49:02
born, so I phoned her up and said, do
49:04
you know anything about this? And
49:06
she said, yes, I do. She said, your
49:10
sister became pregnant at 17 and
49:12
she was sent to her aunt's in Norwich, 100
49:14
miles away from home. This is like a Dickensian novel,
49:16
as you can see. And
49:20
she gave birth to you, and
49:22
her mother, my grandmother, came up
49:24
and pretended that the baby was hers.
49:27
And she sent your real mother back home,
49:30
and several months later she took you back with
49:33
pretending that she was your
49:35
mother. And we all
49:37
lived together in this two-bedroom department for two and
49:39
a half years, and then my real mother got
49:43
married and left home.
49:46
And there's a photograph of me in
49:49
this wedding. And my mother,
49:51
my real mother, was holding the
49:54
hand of her husband in one hand
49:56
and my hand in the other, because
49:58
you realize this was her mother's. leaving
50:00
me with her parents.
50:03
She never told her husband so
50:06
the whole thing was kept secret for
50:08
over half a century. Now
50:11
at the same wedding I crawled
50:13
under the table, a gate leg table, which
50:16
had the wedding cake and
50:19
I managed to move the leg and
50:21
the wedding cake fell off the table
50:23
and smashed into pieces. I wonder whether
50:25
I was revolting at the
50:27
thought of my mother being taken
50:29
away. Now this was a tragedy I'm
50:32
sure for my mother. I was brought
50:34
up happily, a little dully maybe by
50:36
my grandparents, but this is I'm sure
50:38
a tragedy for my mother. She had
50:41
three children and she kept
50:43
four photographs of babies by her bed.
50:45
I only learnt this after her death.
50:47
Three were her legitimate children and I
50:49
was her fourth illegitimate
50:51
child. Well what's
50:54
the final irony here really is I'm
50:56
not a bad geneticist and
50:59
my rather simple family kept my
51:01
own genetic secret for over half
51:03
a century. Thank you. That
51:15
was home. Dr.
51:17
Nurse is the former president of
51:19
the Royal Society and chief executive
51:21
and director of the Francis Cook
51:23
Institute. Along with two
51:25
fellow scientists he was awarded the
51:27
2001 Nobel Prize for discoveries of
51:29
protein molecules that control the division
51:31
of cells in the cell cycle.
51:34
Dr. Nurse was indicted by the Queen in
51:37
1999 in honor of his work in
51:39
cancer research. When I
51:41
wrote to Dr. Nurse and asked if he had any
51:43
updates on the story he wrote, The
51:45
only new thing to add is that
51:47
I've had a DNA analysis carried out and
51:49
definitely have close relatives that I don't know
51:51
and so may be related to my
51:54
unknown father. At present I've
51:56
not had a response from them. That's
52:01
it for this episode. We hope you'll join
52:03
us next time for the Moth Radio Hour.
52:19
With the Moth Artistic Director, Catherine Burns,
52:21
who also directed the stories in the
52:24
show, the rest of
52:26
the Moth directorial staff include Sarah
52:28
Haberman, Sarah Austin Genes, Jennifer Hickson
52:30
and Meg Bold, production support from
52:33
Emily Couch. Special thanks to the
52:35
World Science Festival. Moth Stories
52:37
Are True is remembered and affirmed by
52:39
the storytellers. Our theme music
52:42
is by The Drift, other music
52:44
in this hour from Corolla Dust,
52:46
Crung Bin, Wolfgang Moochfield and B.
52:48
Fleischmann. The Moth is
52:51
produced for radio by me, Jay
52:53
Allison, with Vicki Merrick at Atlantic
52:55
Public Media in Woods Hole, Massachusetts.
52:57
This hour was produced with funds
52:59
from the National Endowment for the
53:01
Arts. The Moth Radio Hour
53:03
is presented by PRX. For more about
53:06
our podcast, for information on pitching us
53:08
your own story and everything else, go
53:10
to our website, themoth.org.
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