Podchaser Logo
Home
The Moth Radio Hour: Skin Tight Genes

The Moth Radio Hour: Skin Tight Genes

Released Tuesday, 28th May 2024
Good episode? Give it some love!
The Moth Radio Hour: Skin Tight Genes

The Moth Radio Hour: Skin Tight Genes

The Moth Radio Hour: Skin Tight Genes

The Moth Radio Hour: Skin Tight Genes

Tuesday, 28th May 2024
Good episode? Give it some love!
Rate Episode

Episode Transcript

Transcripts are displayed as originally observed. Some content, including advertisements may have changed.

Use Ctrl + F to search

0:00

The Moth is brought to you by

0:02

Progressive, home of the name your price

0:04

tool. You say how much you want

0:07

to pay for car insurance and they'll

0:09

show you coverage options that fit your

0:11

budget. It's easy to start a quote.

0:14

Visit progressive.com to get started. Progressive

0:16

Casualty Insurance Company and affiliates. Price

0:19

and coverage match limited by state

0:21

law. Reboot your

0:23

credit card with Apple Card, the only credit

0:25

card designed for iPhone. It gives you up

0:27

to 3% daily cash

0:29

back on every purchase. Plus, Apple

0:31

Card has no fees, not even

0:34

hidden ones. Apply for Apple Card

0:36

now in the Wallet app on

0:38

iPhone. Apple Card issued by Goldman

0:40

Sachs Bank USA, Salt Lake City

0:42

Branch. Subject to credit approval. Variable

0:45

APRs for Apple Card range from 19.24% to 29.49% based

0:47

on credit worthiness. Rates

0:53

as of February 1, 2024. Terms

0:57

and more at applecard.com. How

0:59

does the brain process memories? Why

1:02

is AI a solution and a problem

1:04

for our climate? What is

1:06

leadership in 2025 and beyond? The

1:09

TED Radio Hour explores the biggest

1:11

questions and the most complicated ideas

1:13

of our time with the world's

1:15

greatest thinkers. Listen now to

1:17

the TED Radio Hour from NPR. This

1:32

is the Moth Radio Hour from PRX, and

1:35

I'm Katherine Burns. This

1:37

time, we'll hear stories about genetics. We're

1:40

learning more and more about our DNA, for better

1:42

or for worse. Genetics

1:44

can shed light on mysteries in our lives, but

1:47

can also sometimes reveal things that folks would

1:49

rather have kept in the dark. DNA

1:52

can shake the family tree, settle

1:54

disputes, stir up old secrets,

1:57

and pass on traits that are beloved or

1:59

may be feared. That's

2:01

the case in our first story, told by

2:03

many time Moss storyteller and host Mike Brabiglia.

2:06

It concerns the genes that get passed

2:08

down from grandparents to parents to children.

2:11

We recorded Mike at a show we did

2:13

one evening in Greenwood Cemetery in Brooklyn. Cemeteries

2:17

are outdoors, obviously, so you can hear the

2:19

sound of cricket and even a few planes

2:21

going by. Here's Mike Brabiglia,

2:23

live at the mall. Thank

2:27

you guys so much. This

2:30

is a really special thing. I'm really honored

2:32

to be a part of it. It

2:35

is an ominous thing

2:38

to tell a story in a

2:42

graveyard. I've never done

2:44

it before. It's particularly

2:46

timely for me because

2:49

yesterday I turned 41 years old.

2:55

I celebrated with my wife Jenny and my

2:58

daughter Una, who's

3:00

four. But

3:03

it's got me thinking a lot about mortality

3:05

because my dad had a heart

3:08

attack at 60 and his

3:10

dad had a heart attack at

3:12

60. So I'm just

3:14

setting aside that whole year and

3:17

I'm getting an Airbnb by the

3:19

hospital and

3:22

I'm keeping a flexible schedule. It's

3:28

not just that. I actually

3:30

have a lot of medical issues.

3:32

I have a dangerous sleepwalking disorder.

3:34

I had a bladder tumor when

3:37

I was 19. Two

3:41

years ago, I went for my annual

3:44

checkup and my doctor took blood and he

3:46

called me and he said, you have Lyme

3:48

disease and? I

3:51

was like and diabetes.

3:53

And I was like one at a

3:56

time. Everybody's going to get a chance. But

3:58

it was. It

4:01

was truly shocking. A

4:04

39-year-old diagnosed with type 2 diabetes, he

4:06

says, is there anything in your diet

4:08

that might be spiking your blood sugar?

4:10

I said, sometimes I eat pizza until

4:12

I'm unconscious. He said, I think that

4:14

might be it. I

4:17

have terrible habits. I travel for

4:20

my job, and I never

4:23

drink the tiny liquor

4:26

bottles in the mini fridge, but

4:30

I'm triple digits on glass jars

4:32

of peanut M&Ms. If

4:36

you suck on a peanut M&M long enough,

4:40

it's just a peanut. And

4:45

if you suck on that peanut long enough,

4:47

you can taste pure shame. But

4:51

at a certain point, the shame pivots into pride,

4:53

and you start to think, actually, this is pretty

4:55

healthy. I've been meaning to

4:57

eat more nuts, and then you start

5:00

eating a couple hundred, and

5:02

you get a sugar high, and

5:04

you think, I should run a marathon, and

5:07

then you don't, and then you end up with type

5:09

2 diabetes. And so that's

5:12

unfortunate. But my doctor wanted

5:15

to put me on medication. I really didn't

5:17

want to do that. I

5:19

said, let me give it a shot. I'm

5:22

going to try to change my diet drastically.

5:25

I'm going to cut red meat and

5:28

sugar and fries, and as he's

5:30

continuing, I'm just thinking about sugar

5:32

fries, which isn't

5:35

even a thing, but I was singing

5:37

a song about it and everything. So

5:41

I give it a shot

5:44

for a few months, and I lose a few pounds, and

5:47

I go back in, and my numbers are lower, but he

5:49

has me take a pulmonary test,

5:51

which is this thing where you're essentially getting

5:54

blowing out a candle, but it's a little ball, and

5:57

he goes, do it, and I go,

5:59

I do it. I just did. And

6:03

he goes, oh wow. I

6:06

just do it again. And

6:09

I go, I just did. And

6:11

he goes, well if I were going by just

6:13

this, I would say you're having a heart attack

6:15

right now. And

6:17

I said, well am I? Because

6:20

if I were having a heart attack, I would

6:22

ask you. I

6:25

wasn't having a heart attack. I

6:28

just wanna make that clear. But

6:31

he was worried. He sent me to

6:33

the cardiologist and they both agreed that

6:35

I should be doing cardio

6:37

five days a week. And as a matter

6:39

of fact, they both suggested that

6:42

I start swimming at the

6:44

YMCA. This

6:47

was a sore subject for me. I

6:50

spent a lot of my childhood at

6:52

the YMCA in

6:54

Worcester, Massachusetts. I went to the

6:57

nursery school. I

6:59

spent hundreds of hours with the half

7:02

blown up basketballs and the rowing

7:04

machine that's also a fan and

7:07

the vending machine room

7:09

that has a coffee maker that

7:12

also makes soup. So

7:16

two years ago, I walked to my Brooklyn YMCA

7:19

and I don't need directions. You

7:22

just follow the chlorine smell. They

7:24

are not shy about their use

7:27

of chlorine in the

7:29

YMCA pool. And I go

7:31

up to the front desk and I'd made an

7:33

arrangement for a lesson with

7:36

a woman named Vanessa and

7:38

she said, where's your swim cap? And I go,

7:40

oh, I don't wear a swim cap. And

7:44

she said, well, it's mandatory unless

7:47

you're completely bald. And I said,

7:49

I don't like how you leaned

7:51

on the word completely. I'm not

7:53

actually bald at all. I

7:56

have four distinct tufts of hair

7:58

that. formed this

8:01

Voltron that is my

8:03

hair and she said you

8:05

can borrow my extra and so I put

8:07

on Vanessa's swim cap and I

8:09

look like a condom and and

8:12

we walk into the pool area

8:15

which is basically pure

8:17

chlorine and and

8:19

she says hop into the instructional lane.

8:21

Now the instructional lane is

8:23

also the walkers and joggers

8:26

lane and so she asked me to do

8:28

the crawl to show her what I got

8:30

and I try but I'm just

8:33

these these aggressive elderly walkers

8:36

are just blowing past me

8:38

and one of them drops

8:40

an elbow on my head

8:42

and and I'm like Vanessa

8:44

like is it always this

8:46

crowded and and she goes

8:49

no it's uh it's because it's the spring

8:51

and everyone's getting ready for the

8:53

summer and I go oh they want

8:55

a body like this which

8:57

is a joke it's not a great joke

8:59

it's not stage worthy but it's sort of

9:02

the kind of conversational witty repartee

9:04

you might have to forge a

9:07

bond with a swimming instructor. She

9:11

didn't hear it and she

9:15

just goes what? They

9:18

go they want a

9:22

body like this and

9:26

everybody in the pool looks

9:28

over all the elderly walkers and

9:31

toddlers and the and the

9:34

and the lifeguard and they're like this

9:36

has this guy seen his own body

9:39

there are there are mirrors

9:41

everywhere at the YMCA

9:44

and for the people only listening to this

9:47

and not seeing me I don't have

9:49

a swimmer's body I have what I

9:51

call a drowners body where it seems

9:53

like I'm drowning at

9:56

all times even when I'm not

9:58

in water And

10:01

so after about a

10:04

half hour of this, I get out of the

10:07

pool and I dry myself off

10:09

with 15 or 20 of those

10:11

YMCA dish rack towels. And

10:16

I even put two on my

10:18

feet because Vanessa explained that there

10:20

is fungus in the

10:22

puddles. And I was like, this place is a

10:25

death trap. I have to get

10:27

out of here. And she says something

10:29

significant to me. She

10:31

says, you know, you can take the lessons,

10:33

but really you're going to have to come

10:35

back on your own and practice. And so

10:38

that's what I did. For

10:40

the next two years, I went

10:42

swimming at the YMCA and I

10:45

also did pilates and I did yoga

10:48

and I even did, believe it

10:50

or not, kickboxing. And

10:55

a month ago I went to my doctor and he

10:57

took blood and he called me

10:59

and he said, you reverse

11:02

the diabetes. I

11:05

was quite shocked by

11:07

this. And

11:09

I thought, I'm thinking to myself, like, what was it? Like

11:12

was it a diet or the exercise? And

11:14

so the next time I saw my doctor, I said to him,

11:16

I go, what do you think it was that reversed the

11:19

thing? And he said this really

11:21

simple phrase that stuck with me. He

11:24

said, you chose

11:26

to live. And

11:32

I think that's true. I think I really did. I

11:34

think I chose to live.

11:36

I think I really want

11:38

to see my daughter grow up and go

11:40

to high school and maybe college. And

11:44

in 19 years from now, she'll

11:48

be 23 and she'll be

11:50

out of school and maybe out

11:52

of the house. And

11:55

I will

11:58

be 60 Years old. And.

12:02

Like my father. And

12:04

his father. I.

12:07

Will have a hard to test. But.

12:11

There will be a difference. Because.

12:13

I will be checking in. To.

12:16

My Air Bnb. And

12:20

it and if I have. Any say

12:22

in it? I. Would

12:24

choose to live. Eating

12:35

at all local comedian was so he

12:38

served a new was when all the

12:40

way to broadway the one the drama

12:42

desk or would. He expanded on

12:44

the so it is for. The new

12:46

I'm painfully true stories from

12:48

Reluctant Bad. She. Was also take

12:50

for Netflix and is available along with his

12:53

last two says. Thank God for

12:55

jokes and mcgrath. How.

13:02

Well known writer and comedians that he told

13:04

his first three way back in two thousand

13:06

and three and a month so we produce

13:08

from us com the arts festival and Aspen

13:11

Colorado. I got to work with Mike and

13:13

the story and was actually the first masri

13:15

I average arrested so we got our start

13:17

to gather. Here's my talking about his history

13:20

with a mass. I'd always how storytelling

13:22

and something I wanted to do but whenever

13:24

I would try to tell stories as stand

13:26

up as a stance me the time I

13:29

really felt and secure. Our

13:31

that I was losing the audience's attention

13:33

so. When the folks

13:35

who the moth ask me to

13:37

perform at Aspen seems like. A

13:40

really exciting opportunity him when I didn't realize

13:42

is that it would change the way that

13:44

I. Perform. The rest of

13:46

my career so I told a story and

13:48

aspirin it which is an early version of

13:50

a story there and have been my my

13:53

solo show. My girlfriend's boyfriend. and

13:55

was about my first girlfriend in high

13:57

school and how i was so excited

14:00

but that she told me not to tell anyone

14:03

that she was my girlfriend because she

14:05

actually had another boyfriend. And

14:08

that was a pride swallowing event in my life. And

14:10

I had literally never told

14:12

people, nevermind a

14:14

group of strangers. And so I was so nervous when

14:16

I told the story on stage and asked and that

14:18

I was literally trembling. And sometimes

14:20

I'll tell people who want to

14:22

try storytelling that I think if they're nervous about

14:24

telling a story, that it's actually a good sign.

14:28

So as a fan of The Moth, that's what

14:30

I've always found the most compelling and exciting about

14:33

their shows. When people tell their

14:35

most embarrassing and gut-wrenching confessions in a way

14:37

that we can all relate to, I

14:40

think that's really special. I mean, I remember after performing

14:42

at The Moth for the first time, I thought, I

14:44

think I'm better at this than just

14:46

traditional stand-up comedy. I think this is what I'm

14:49

supposed to do. So now

14:51

it's, I think, more than 15

14:53

years later and this is what I do. That

14:58

was Mike Rbiglia. Coming

15:01

up, a family takes a

15:03

DNA test just for fun, but then...

15:08

I need to read a book of the news. The

15:28

Moth Radio Hour is produced by Atlantic Public Media in Woods

15:30

Hole, Massachusetts and presented by PRX. For

15:35

over a century, Brooks has been propelled by

15:37

a never-ending curiosity with how humans move. It

15:40

drives their every decision and every innovation

15:42

because they believe movement is the key

15:46

to feeling more alive. And

15:48

we're all moving towards something. It could be to run

15:50

a 5K and raise money for a

15:52

cause you believe in. To take

15:54

the lead on your family's annual Thanksgiving Day hike

15:56

or... For

16:00

me, I love how clear my

16:02

head feels after a long run. But

16:04

living in Brooklyn means I'm running on

16:06

cement. So my head feels great, but

16:08

my knees, not so much. That's why

16:10

I'm so happy to have the cushioning

16:12

of the Brooks Ghost Max shoes that

16:14

let me go a little bit further

16:16

and feel a little bit clearer. And

16:19

with my new reflective run visible vest,

16:21

I can chase this high before the

16:23

sun is even up and kickstart my

16:25

day. So let's run there with gear

16:27

and experiences specifically designed to take you

16:29

to that place, whether it's a

16:31

headspace, a feeling, or a finish line. Let's

16:34

run there. Head to brooksrunning.com to

16:36

learn more. This

16:40

is the Moth Radio Hour from PRX. I'm

16:42

Katherine Burns. In this show,

16:44

we're talking about genetics. DNA

16:46

doesn't lie, and having access to

16:48

our own genetic histories has fundamentally

16:50

shifted the world. That

16:53

was the case with our next storyteller, Carmen

16:55

Rita Wong. She tells

16:57

her story at the Terry Town Music Hall in

16:59

the Hudson Valley. So we partnered

17:01

with Music Without Borders. Here's Carmen.

17:07

Here's where in Manhattan in the

17:09

1970s to a Chinese father

17:11

and a Dominican mother. Now

17:14

there was no mistaking that my mother was my mother. Guadalupe

17:17

y otra gracias go mecere es. A.K.A.

17:21

Lupe. She was

17:23

the constant in my life and very

17:25

much my Latin mama. Now

17:27

when I was a toddler though, she divorced my

17:29

Chinese father, Papi Wong, as I call

17:31

him. But my older

17:33

brother and I still saw him on the weekends and

17:35

here and there. And we loved it

17:37

because he'd take us to Chinatown shopping or to

17:39

our favorite restaurants. I loved the

17:41

ones that had the fancy chopsticks. They went click,

17:43

click. And

17:46

even though he didn't live with us, I was

17:48

raised as his daughter. I was raised as a Wong.

17:52

Now my mother didn't stay single long. She

17:55

remarried and we picked up and moved from

17:57

Harlem to New Hampshire. Now,

18:03

I've got to say, my stepfather, my new

18:06

dad, Charlie, he was like

18:08

a dad out of the Golden Books when

18:10

you were kids, right? He was

18:12

a white guy, wore a suit and

18:14

tie, carried a briefcase to work every day,

18:16

and came home at the same time Monday

18:19

through Friday to dinner on the table. Well,

18:22

little Carmen thought she had hit the American

18:24

Daddy jackpot. Here's

18:28

the thing, the best thing he gave

18:30

me were my four little sisters, who

18:33

I loved and adored, pains in the butt,

18:35

but I loved them so much. And

18:38

I wanted to be a part of

18:40

that family. I wanted him to be my

18:42

daddy, too, but

18:45

he wasn't. And so

18:47

I grew up always feeling like an outsider,

18:49

like an other. And

18:52

you better believe, in 1980s New

18:54

Hampshire, I was an other. I

18:57

might as well have been an alien

18:59

that landed there, an unwelcome alien in

19:01

a place that was supposed to be my

19:03

home. The little

19:05

kids would make fun of me and pulling up their eyes

19:07

or bucking their teeth or all these

19:10

new creative slurs were thrown my way for

19:13

being brown. And

19:15

every once in a while, the grownups would get

19:17

on that train. When

19:19

I was in fourth grade at parent-teacher conference,

19:22

Sister Rachel said to my mother, my Latin

19:24

mother, mind you, that the reason why I

19:26

was getting all these straight A's well was

19:28

because, you know, it's Carmen's

19:31

Chinese side. Now,

19:36

I may have been only nine years old, but

19:40

I knew enough to be insulted

19:42

and embarrassed for my mother and me.

19:46

I liked Sister Rachel a lot less after that. Because

19:50

here's the thing, even though my mother wasn't

19:52

the Asian parent, she was what some people

19:54

would call a tiger mom, right?

19:57

Lupe expected excellence from me at

19:59

all. times. If

20:02

I dared to bring home anything but an

20:04

A, she would say, well,

20:08

are you an A or are you

20:10

a B? Lupe

20:14

saw education as a way of

20:16

escaping her fate, working

20:18

full time at 15 years

20:20

old to help support her family, married off by

20:23

her father at 19 and there at that conference

20:26

night in her 30s pregnant with

20:28

her fifth child. She

20:31

wanted more from me. So

20:34

in the car ride home from that parent teacher

20:36

conference though, I was still nice

20:39

and I just had to ask, I just had to

20:41

say, mommy, mommy, sister

20:44

Rachel said I'm smart because of Poppy

20:47

because I'm Chinese. And

20:50

my mother, the parent who was

20:53

actually present, the one who would kick

20:55

my butt if I didn't do well in school, she

20:58

just kept her eyes straight on the road and

21:00

there was a little smile. She

21:03

shrugged and she said, that's okay.

21:05

And in

21:08

that smile, which was more of a smirk, I

21:11

realized there was a lot of things my mother

21:13

wasn't telling me. See,

21:16

mommy came from a world of secrets.

21:19

In the 1950s, 1960s Dominican Republic,

21:23

this was a place where speaking your mind

21:25

or telling the truth could get you beaten

21:27

or killed or

21:30

kidnapped in the middle of the night like my

21:32

grandfather who was tortured but

21:36

then who later escaped the hospital dressed as a woman

21:38

by his sisters. I

21:41

mean, talk about secrets.

21:43

This is cloak and dagger on a

21:45

family level. This was my mother's normal.

21:51

By the time I was in my 30s,

21:54

my mother received a devastating cancer diagnosis. And for

21:56

the first time

21:58

in her life... She was about to

22:00

lose control of the narrative. My

22:04

stepfather Charlie called me months after we found out

22:06

that she was sick and said, he needed to

22:08

see me urgently and alone. A

22:12

couple weeks later, I'm sitting across the kitchen table from

22:14

him and he says to me, Carmen,

22:19

Poppy Wong is

22:22

not your father. I

22:24

am. The

22:27

first thing that came to my mind was, aya,

22:30

I'm not Chinese anymore? And

22:34

two, damn you two,

22:38

all these years that I so

22:40

much wanted to be a part

22:42

of that family, that picture book

22:45

American family, his family, and

22:48

they both knew it was

22:52

painful. Now

22:55

I had to confirm this story, of course, with my

22:57

mother. Who I then

22:59

told him, and she confirmed it pretty much with

23:02

a lot more dramatic flair. She

23:06

was mostly just upset that he'd gotten to me

23:08

before she did. But

23:10

mommy, even stage four colon cancer, how long were

23:12

you going to wait? Right? So

23:16

there was many tears and

23:18

questions and blame. But

23:20

I made peace with my mother before she

23:22

passed the following year. My

23:25

relationship with Charlie, however, unfortunately

23:28

has never been exactly the same. How

23:31

could it be? Well,

23:34

years go by and now we're living in

23:36

a time when genetic testing is

23:39

available to everybody, to the public, and

23:42

affordable. And there's one thing

23:44

my family loves, it's a sale. So,

23:47

we're at holiday season, we all bought up

23:50

a bunch of 23 and me and

23:52

took the test at the same time. Mom,

23:55

how about I result back

23:57

first? And I'm opening that up.

24:00

And what I'm expecting to see is I'm

24:02

expecting to see a confirmation of this family

24:04

secret, right? I'm expecting to

24:06

see that I'm half Charlie, which

24:08

is Italian, and then half

24:10

my mother, which would be African and Spanish.

24:15

Well, that's not what I thought. Portuguese.

24:20

It says I'm half Portuguese.

24:24

I frantically texted my sister Nina. She

24:26

texted right back. She said, okay, don't

24:28

worry about it, okay? Relax. Once we

24:31

all get our results back and we

24:33

connect, right? Because once we see our

24:35

relationships and we connect our data then

24:38

we'll know what's right, right? So

24:42

I pick up the phone and say my brother. He says pretty much the

24:44

same thing. He says don't worry about it. You know what?

24:46

Maybe it's a mix-up. Once we connect and see

24:49

our relationships and we're all linked up, then

24:51

you'll see. You know, plus Italy and Portugal

24:53

are kind of close to each other. So

24:58

no, no, that's not

25:00

what happened. Once we all

25:02

connected. Now remember my sister Nina, my

25:05

baby sisters, I'm supposed to be the

25:07

same as her. I was supposed to be full

25:09

siblings. And

25:11

there it was in large,

25:15

extra large font, half

25:18

sister. There

25:21

was a third father. Six

25:24

kids in my family and

25:27

I didn't share a father with any of

25:29

them. I

25:31

felt so alone. But

25:35

damn it, I was gonna solve this mystery. So

25:38

I went digging in the past and I dug

25:40

up my godmother who I hadn't spoken to in 20 years.

25:43

I tracked her down and I

25:45

called her up and I said, Pimpa. This is her

25:47

nickname. We called her Pimpa. I

25:50

said, we all took this genetic test and we found out

25:52

that any of a different father from everybody.

25:56

And she was really surprised because Pimpa, she thought

25:58

she knew all of them. So all my mother's

26:00

secrets, she was my mother's best friend, she lived

26:02

down the hall from us growing up. And

26:05

she was a scholar now, she was a dual

26:07

PhD. She looked at

26:10

historical records to find shipwrecks in

26:12

the Caribbean. My godmother

26:14

was a treasure hunter. That's

26:17

what I wanted right now, that's what I needed. But

26:20

she was surprised. Because

26:23

even though she knew as well,

26:26

seems like everybody knew, that Poppy Wong was

26:28

not my father, she also

26:30

thought that it had been Charlie. I

26:33

said, no, Bimba, it says

26:35

I'm Portuguese. Oh.

26:39

Oh. Oh. Oh. Oh.

26:42

Oh. Oh. Oh.

26:45

The Argentinian optometrist on Delancey Street.

26:47

Oh. Oh. Oh.

26:50

Oh. Oh. Oh,

26:52

what's his name? I'm

26:54

Bia, how can I remember his name? It was almost

26:56

50 years ago. Listen, your mother,

26:58

don't judge your mother. She was lonely. Poppy

27:01

was already kicked out of the house and

27:03

so she was dating, you know. And I

27:05

was babysitting your brother when the dates would

27:07

come and pick her up. So yeah, there

27:09

was Charlie. And then the

27:12

optometrist, you know. She had a part-time

27:14

job at an optician on Delancey Street. But

27:16

he's dead. My

27:22

heart could barely bake it. You

27:25

know, have people really thought about the

27:28

fact that, you know, with genetic testing, we're

27:31

looking at the end of family secrets.

27:33

You're looking at the member of probably

27:35

the last generation whose parents could futz

27:37

around about their futzing around. Oh.

27:42

Really? Here's

27:45

the thing. My

27:47

origin story, as I like to call it, or

27:50

mystery, is still

27:53

happening to this day. But

27:56

here's what I do know. I

27:59

know that... Lupe did

28:01

everything she could and came so

28:04

far and did so much to give me options.

28:08

I know that Charlie, I used to

28:10

talk with him about the stock market to bond and

28:13

I ended up hosting my own Finance Daily

28:15

TV show on CNBC. And

28:18

Bobby Wong, well he taught me

28:21

the street hustle that helped get me there.

28:25

I got a good deal, but

28:29

I rail at my mother's ghost sometimes,

28:32

Lupe, for

28:34

leaving out this incredibly important little detail

28:37

of my life. And

28:40

I ask her to visit me in my dreams, to

28:43

drop me a hint or a clue as

28:46

to who it is I'm looking at when I

28:48

look in the mirror. The

28:53

morning after I talked to Pimpa, I called

28:55

my sister Nina. I said,

28:57

Nina, what

28:59

if I never find out who this man is? And

29:04

Nina, who's super Zen, said,

29:06

you know, does

29:08

it really matter, girl? Because

29:10

you know who you are. You

29:13

know who you are. She's

29:18

right. How

29:30

many of the Wongs in the former national

29:33

TV host, the gay pianist and the preface,

29:35

who is looking at the success of the

29:37

movie? We recently sat

29:39

down to discuss how this story came about

29:41

and what's happened in the aftermath of all

29:43

these revelations. So

29:45

I was having breakfast with you and

29:48

at the end of the breakfast, you

29:50

ended up telling me this story. But

29:52

at the time, the story ended with

29:55

you finding out that Charlie was your father. And

30:00

then, so you agreed to tell the story, and

30:02

then you came to the office like a month

30:04

later. Mm-hmm. We had the

30:07

meeting scheduled, and the

30:09

night before, I had

30:11

gotten the results with my family

30:14

that it actually was a

30:17

third man, daddy number three. Because

30:19

I remember you saying, before

30:21

we start, I have something to tell you. I

30:25

said plot twist. Yes, you did. The

30:28

mystery continues. At

30:31

the end of the story, you're

30:34

searching for the daddy who's the

30:36

optometrist on Delancey Street, but then

30:39

yesterday, you send me your

30:41

bio, and I read it,

30:43

and da-da-da. It was

30:46

not the optometrist on the

30:48

Delancey Street. Not Argentinian

30:50

at all. I did speak with my

30:52

stepfather, with Charlie, and finally kind of broke

30:55

the news to him. And new

30:57

revelations came out. And here's the funny thing is

30:59

that I was so concerned about his reaction, because

31:01

he had been, I'd been living with him as

31:04

my father, stepfather for so many years. I

31:06

didn't want to break his heart. Yeah. Instead, I was

31:09

the one who fell apart, and he was holding me

31:11

together. But then I picked

31:13

myself up and said, okay, dad, so

31:15

do you know who the hell this is? Can you tell me

31:17

anything? And he said, you know, I used

31:19

to pick up your mother from this

31:21

clinic in the Bronx. She

31:23

was working there, and I go and drive and pick her up. There

31:26

was this Cuban doctor. I

31:29

was little. I had bad feelings about this

31:31

Cuban doctor, and I was like, okay. And

31:33

then I go, of course, just like the

31:36

optometrist. I was like, well, at least he was a

31:38

doctor. And then 23andMe had an

31:41

update on its system. So

31:45

they sent me a notice and said,

31:47

we have a more specialized report for

31:49

you. And there it was. It

31:52

had the origins, the most direct

31:55

origins outside the US of my

31:57

family, and half of it

31:59

was Havana. Cuba. So

32:01

that's where we're heading and

32:04

I hired a genealogist and we're tracking down my

32:06

mother's work records because no one can remember who

32:08

this man is and we're

32:10

just gonna try to figure it out. That

32:16

was Carmen Rita Wong. To

32:18

see a photo of Carmen's mother and

32:20

Pepe Wong at their engagement party go

32:22

to themos.org. While there you

32:24

can call our pitch line and leave us a two-minute version

32:26

of a story you'd like to tell. By the

32:29

way for future show we're looking for

32:31

stories about animals. Dogs,

32:33

cats, tarantulas, llamas,

32:35

geese, bring them on. The

32:37

number to call is 877-799-MOS or you can pitch

32:42

us your own story at themos.org. We

32:53

have a woman missing a difficult decision

32:55

when faced with her family's genetic history

32:57

and later a Nobel Prize-winning geneticist

33:00

just a scramble to get his

33:02

green card removed. That's when

33:04

the MOS radio hour... The

33:36

MOS radio hour is produced by

33:38

Atlantic Public Media in Woods Hole,

33:40

Massachusetts and presented by

33:43

the Public Radio Exchange, prx.org.

33:48

This is the MOS radio hour from

33:51

PRX. I'm Catherine Burns. Our

33:53

next story was told at one of our

33:55

open mic story slam competitions here in New

33:57

York City. We partner with Public Radio Station W.O.C.

34:01

Here's Buck Nooker, live at the Moss.

34:06

So, ten years ago

34:08

I underwent genetic testing for the

34:10

breast cancer gene. And I

34:13

did this because when I was five years

34:15

old I watched my mother die of breast

34:17

cancer. She was 26 when

34:20

she was diagnosed and she was 30 when

34:22

she passed away. And

34:24

her mother had also died when she was five

34:26

years old. And

34:28

my older sister died of a rare genetic

34:30

liver disorder when she was only nine months

34:32

old. So it really

34:34

only felt natural to me to try to

34:36

figure out why this kept happening to people

34:39

in my family. And

34:41

the person that had a front row seat

34:43

for all of this pain and death was

34:46

my Aunt Anna. Now

34:48

my Aunt Anna, she

34:50

took my mother in after their mother

34:52

died and she raised her along with

34:54

her eight children. She

34:57

left that sink in. And

35:00

then when my mother died she took in me

35:02

and my brother and she became

35:04

a mother all over again. And she

35:06

raised us with her brood of eight adult

35:09

children. And man,

35:11

she just did it. And she

35:13

did it well. And she did

35:15

it in that Irish Catholic, blue collar

35:18

way. You just, you put your head down

35:20

and you do what you need to do to take care of your

35:22

family. And she did

35:24

it with quiet strength. But

35:27

when I said quiet, I mean quiet. We

35:30

didn't talk about death. We

35:32

didn't talk about cancer. She

35:35

never talked about what she

35:37

had seen in her life. Until

35:39

I was older and in college and

35:41

on breaks I would drive down to

35:43

see her in Southwest Philly. And we

35:45

would sit around the table and drink

35:47

bad coffee and talk about life and

35:49

family and you know, you see stuff.

35:52

And then after enough of that she started to actually

35:54

open up about that time. And she

35:57

told me this story about my mom. And

36:00

she was in the hospital, which is a

36:02

lot. My mother died

36:04

a blind quadriplegic with steel rods

36:06

holding up her skull. She

36:09

suffered, unimaginably. But

36:13

that day, when Anna went to see her, she

36:16

went in and my mom was so happy and

36:18

she was smiling and she was excited. And

36:21

she grabbed Anna's hand and she said, Anna, you

36:23

never believe what the nurses told me this morning.

36:27

They're doing liver transplants. You're

36:30

doing it. You're doing it. That

36:34

was the thing that would have saved my sister's

36:36

life. And in 1975, they were

36:38

not doing that. And

36:42

it has really always amazed me that my mother

36:44

was able to find this joy and this happiness

36:47

despite being trapped in total health.

36:51

And I tried to remember that when my

36:54

own genetic test results came back and they

36:56

were positive for the BRCA1 mutation,

36:58

which was not a surprise, but

37:01

it took my risk from 12% to somewhere around

37:03

60 to 87% risk

37:06

of getting the disease that seemed

37:09

to get everyone. And

37:12

then around that time, we

37:14

buried Anna because

37:17

she got cancer and she

37:19

didn't tell anyone, because

37:21

she didn't want everyone to go through the same

37:24

thing that she had gone through and she didn't

37:26

want anyone to see what she's in. And

37:29

so quietly, she did. And

37:33

at that point, I had enough. I was really

37:35

done. So I elected

37:37

to have a prophylactic mastectomy. And

37:39

I made that decision ferociously.

37:43

And I made every decision after

37:45

that fearlessly and with strength. And

37:48

I was resolute right

37:51

up until I was alone in

37:53

a very small room in the hospital that

37:55

morning with my plastic

37:57

surgeon and bare ass

37:59

naked. naked with my hospital gown around my

38:01

waist. And he was making

38:04

all these marks on my breasts with this

38:06

dark blue grease pen. And

38:09

I got so scared. I

38:11

was so alone. And

38:14

then in that same instant

38:17

when I got so scared, I

38:19

felt over on the right hand side of the room

38:22

that there were people there. As

38:24

much as you all are here right now, they were

38:27

there. And it was my

38:29

grandmother, and it was my mother, and it was

38:31

Anna, and it was my sister. And

38:34

I was calm

38:37

and warm and

38:39

happy and excited. And

38:43

I thought about my mother and I looked over in

38:45

the corner and I went, look

38:47

mom, they're doing it. They're

38:51

doing this. And

38:54

that really is the spirit with which I've

38:56

moved forward after this, is every time I'm

38:58

walking through this world and I see something

39:01

awesome or amazing or just

39:03

beautiful, I look up at the sky and

39:05

I hear it within. And

39:08

then I tell them, look guys,

39:11

I'm doing it. Thank

39:13

you. So this

39:21

is Beth, who is

39:24

a passionate educator of students with learning

39:26

disabilities in ADHD. Having

39:29

ADHD herself, her mission is to show

39:31

her students what they're really made of and

39:33

prove to them that no matter what label

39:35

life throws at us, we can learn

39:37

to live beyond it. Since

39:39

this story aired, Beth celebrated her

39:42

40th birthday and underwent her

39:44

final risk-reducing surgery. She's

39:46

now considered to have the same cancer risk

39:48

as the general population. She

39:50

says that she's never been more thrilled to be average.

39:55

To get a link to Beth's website and to see

39:57

pictures of Beth and her family, go to themoth.org. Our

40:10

final story is a classic mock tale

40:12

that came out of our many year-long

40:14

collaboration with the World Science Festival. As

40:17

part of this annual event, we'd ask some of the

40:19

greatest minds in the world to stand

40:21

on stage and talk about themselves.

40:24

In our experience, most scientists would rather

40:26

be in a lecture hall talking about

40:28

anything with themselves, but every

40:30

year a few step up. One

40:33

year we were thrilled to have not one, but

40:35

two Nobel Laureate observers. Here's

40:38

one of them, the geneticist Paul Nurse,

40:40

live at the MOS. I'm

40:45

a geneticist. I study how chromosomes

40:47

are inherited in dividing cells, but

40:49

my story tonight will be more

40:51

to do with my own genetics.

40:55

You probably gather I'm English. As

40:58

brought up in the 50s and 60s in London,

41:01

my family wasn't very rich. I had

41:03

two brothers. I had a sister. My

41:06

dad was a blue collar worker. My

41:08

mum was a cleaner. My

41:10

siblings all left school at 15, and

41:13

I was a little bit different. I sort

41:15

of did quite well at school. I

41:17

passed exams, and then I somehow got

41:19

into university, got a scholarship, and then

41:22

did a PhD. But I wondered, why

41:24

am I different to the rest of

41:26

my family? Why did they all leave

41:28

school at 15, which is

41:30

in fact what happened? I

41:32

didn't really have much of an answer, but

41:34

I felt a bit unsettled about that. I

41:36

wondered about it occasionally, but I carried on

41:39

with my life. I got a job in

41:41

a university. I got married. I had two

41:43

children, Emily and Sarah, and just got on with

41:45

things. Then my parents,

41:48

who are living in London, they

41:51

retire to the country. We

41:54

used to visit them regularly, but the truth was it

41:56

was a bit boring. They Lived in the

41:58

middle of nowhere, nothing much. Happen there. and

42:01

then my kids who are packed

42:03

nine or ten or eleven got

42:05

a bit bored when they went

42:07

there and Sarah my eleven year

42:09

old had a project school and

42:11

the project was family trees that

42:13

to tell you family trees a

42:15

very bad projects that have a

42:17

spouse and them I said i

42:19

got a great idea You know

42:22

I know you get a bit

42:24

old grandmas why don't you talk

42:26

to grandma's about her family tree

42:28

so we get them. You. Know

42:30

we have dinner and then of

42:32

Sarah Trots takes Grandma next door

42:34

to talk about her family tree.

42:36

Five minutes later incomes My mom

42:38

absolutely right, absolutely right. and she

42:40

comes over to mean she said

42:42

sarah's been asking me about my

42:44

family tree. Am I have to

42:46

tell you something that I've never

42:48

told you? I was in my

42:50

thirties for news in my thirties

42:52

to success I never told you

42:54

My mom said is she says

42:56

it's actually I'm illegitimate This is

42:58

what my mom said she'd eat

43:00

or and religious myths she been

43:02

born in nineteen hundred and ten

43:04

a mom wasn't married, Am should

43:06

be born in the poor. How

43:08

she wouldn't put wasn't very. I'm

43:10

at from a wealthy family and

43:12

she was brought up by her

43:14

grandmother and her mother had married

43:16

somebody else who wants to was

43:18

my grandfather but that wasn't the

43:20

case. My grandfather was unknown side

43:22

lost a grandfather. Then

43:25

she turned to me and said and actually

43:27

the same for your father to. So

43:32

into sentences utmost to

43:35

grandfather's. Well

43:38

as with a bit of a shock and

43:40

then I began to think about it my

43:42

source for maybe this is where I got

43:44

some exotic genes from somewhere and they are

43:46

real combined and and that form of the

43:48

difference. And then I remembered that my middle

43:50

name was Maxime and I got it from

43:52

my my dad who was called Maxime. william

43:54

jones and you know he was a sort of

43:57

farm works in the country that's where he came

43:59

from in norfolk And I tell you,

44:01

in Norfolk, farm workers are not

44:03

called Maxime, usually. This is a

44:05

French-Russian aristocratic sort of name. And

44:08

it did seem a little odd, so I began

44:10

to sort of imagine that perhaps, you

44:12

know, I had an exotic grandfather's, you

44:14

know, French-Russian aristocrat and, you know, blah

44:16

blah blah, and that was why I

44:18

ended up how I was. And

44:23

so that seemed all okay, that seemed a

44:25

reasonable explanation, and, you know, I forgot about

44:27

things, and I got on with my career,

44:30

and I became an Oxford professor, then a

44:32

departmental chair, then they knighted me, and then

44:34

I got a Nobel Prize a few years

44:36

ago. So

44:38

that's all hunky-dory, and

44:41

then in 2003, I

44:43

decided to come to

44:45

New York City. Both

44:52

my parents had died, they lived to the 80s and 90s, and

44:56

so I came with my family to New York City

44:58

to be president of Rockefeller University, and

45:01

up at Eastside. And a

45:03

couple of years ago, 2007, I thought I should try

45:05

and get a green card. Have

45:08

you ever seen those poor bastards all there

45:10

queuing up when you come into immigration? They're

45:12

all people like me who have to wait

45:14

there for an hour and a half and

45:16

have their fingerprints all done anyway. And so

45:18

if you have a green card, residence card,

45:20

you avoid that, okay? So I applied for

45:22

a green card, huge amount of paperwork, you

45:24

have no idea. How complicated it is. Sent

45:26

the thing off, waited

45:29

a number of months, came back, and

45:31

I was rejected. And

45:34

I thought, how come I'm rejected? I'm a

45:36

knight, I've got a Nobel Prize, and I'm

45:38

talking about Rockefeller University, and they reject me

45:41

for a green card. I know home-known security

45:43

has high standards, but I mean, this did

45:46

seem more than a little

45:48

ridiculous. So

45:50

I looked through all the paperwork, and I

45:53

eventually found out they did not like the

45:55

documentation I'd sent with my application. So I

45:57

went through it, and I picked out. They

45:59

particularly did. didn't like my birth certificate, so

46:01

I got my birth certificate out. And it

46:03

was a so-called short birth

46:05

certificate, which we have in Britain, which names

46:07

who you are, where you were born, the

46:10

time you were born, your citizenship and so

46:12

on. It doesn't happen to quite name your

46:14

parents, okay? It's a perfectly official document, but

46:16

that's what I had. And so

46:18

I thought, well, I can go

46:21

and get the long certificate. I knew the registry

46:23

office would have it, so I phoned up London,

46:25

the registry office, and said, please send that in

46:27

the post. I told my secretary in my office,

46:29

when it arrived, bungled it all off again,

46:31

send it off to those silly jerks

46:33

in Homeland Security. I

46:36

went on holiday for a couple of weeks, went to

46:38

New Zealand, came back, undoing

46:41

all the mail, looking at my

46:43

emails and so on. Several people

46:45

in my room, I had my

46:47

secretary, her assistant, my wife came in,

46:50

my lab manager was around, so quite

46:52

a few people around. And then I

46:54

remembered, I told my secretary to get

46:57

this package sent off,

46:59

so I asked her, did you manage to do that?

47:02

And she turned to me and she said, well, I didn't

47:04

do it, she said, because the

47:06

certificate arrived, I

47:08

looked at it, and I thought, maybe

47:11

you got the name of your mother wrong. I said,

47:14

of course I didn't get the name of my

47:16

mother wrong, that would be absolutely ridiculous. So she

47:18

handed me the certificate, and everybody started to look

47:21

at me, a strange conversation to have. So I

47:23

open it, I look at it, and there, the

47:25

name nurse is my mother, and I say, well,

47:29

not a problem there. And then I look at

47:31

it again, and the name was Miriam

47:33

Nurse, and that was the name

47:35

of my sister. It was

47:38

not the name of my mother at all,

47:40

it was the name of my sister. So

47:43

I'm looking at this thinking, oh my

47:45

God, the registry office have cocked up again,

47:47

you know. And

47:50

then I look a bit further, and where it

47:52

says father, there's just a line, just

47:55

a dash, no father. And then my

47:57

wife comes up and says, you know

48:00

I don't know what this might mean, Paul. LAUGHTER I

48:09

was a bit slow, actually. LAUGHTER I

48:13

really didn't quite realise what it might

48:15

have meant. And

48:17

then slowly, you know, the clouds,

48:19

you know, roll away. My

48:23

sister was 18 years

48:25

and one month older than me. OK?

48:29

Now, I haven't told you, but

48:32

both, not only both my parents had died,

48:34

who are actually now my grandparents, but also

48:36

my mother. She died early

48:38

of multiple sclerosis three or four

48:40

years before. So I had

48:42

nobody, and all that generation had died, I

48:45

had nobody to confirm if

48:47

this story was true. However,

48:49

on the birth certificate was the place where

48:51

I was born, and it was my great

48:53

aunt's house, about 100 miles from London, in

48:56

a city called Norwich. And

48:58

my great-aunt had a daughter who was

49:00

11 years of age when I was

49:02

born, so I phoned her up and said, do

49:04

you know anything about this? And

49:06

she said, yes, I do. She said, your

49:10

sister became pregnant at 17 and

49:12

she was sent to her aunt's in Norwich, 100

49:14

miles away from home. This is like a Dickensian novel,

49:16

as you can see. And

49:20

she gave birth to you, and

49:22

her mother, my grandmother, came up

49:24

and pretended that the baby was hers.

49:27

And she sent your real mother back home,

49:30

and several months later she took you back with

49:33

pretending that she was your

49:35

mother. And we all

49:37

lived together in this two-bedroom department for two and

49:39

a half years, and then my real mother got

49:43

married and left home.

49:46

And there's a photograph of me in

49:49

this wedding. And my mother,

49:51

my real mother, was holding the

49:54

hand of her husband in one hand

49:56

and my hand in the other, because

49:58

you realize this was her mother's. leaving

50:00

me with her parents.

50:03

She never told her husband so

50:06

the whole thing was kept secret for

50:08

over half a century. Now

50:11

at the same wedding I crawled

50:13

under the table, a gate leg table, which

50:16

had the wedding cake and

50:19

I managed to move the leg and

50:21

the wedding cake fell off the table

50:23

and smashed into pieces. I wonder whether

50:25

I was revolting at the

50:27

thought of my mother being taken

50:29

away. Now this was a tragedy I'm

50:32

sure for my mother. I was brought

50:34

up happily, a little dully maybe by

50:36

my grandparents, but this is I'm sure

50:38

a tragedy for my mother. She had

50:41

three children and she kept

50:43

four photographs of babies by her bed.

50:45

I only learnt this after her death.

50:47

Three were her legitimate children and I

50:49

was her fourth illegitimate

50:51

child. Well what's

50:54

the final irony here really is I'm

50:56

not a bad geneticist and

50:59

my rather simple family kept my

51:01

own genetic secret for over half

51:03

a century. Thank you. That

51:15

was home. Dr.

51:17

Nurse is the former president of

51:19

the Royal Society and chief executive

51:21

and director of the Francis Cook

51:23

Institute. Along with two

51:25

fellow scientists he was awarded the

51:27

2001 Nobel Prize for discoveries of

51:29

protein molecules that control the division

51:31

of cells in the cell cycle.

51:34

Dr. Nurse was indicted by the Queen in

51:37

1999 in honor of his work in

51:39

cancer research. When I

51:41

wrote to Dr. Nurse and asked if he had any

51:43

updates on the story he wrote, The

51:45

only new thing to add is that

51:47

I've had a DNA analysis carried out and

51:49

definitely have close relatives that I don't know

51:51

and so may be related to my

51:54

unknown father. At present I've

51:56

not had a response from them. That's

52:01

it for this episode. We hope you'll join

52:03

us next time for the Moth Radio Hour.

52:19

With the Moth Artistic Director, Catherine Burns,

52:21

who also directed the stories in the

52:24

show, the rest of

52:26

the Moth directorial staff include Sarah

52:28

Haberman, Sarah Austin Genes, Jennifer Hickson

52:30

and Meg Bold, production support from

52:33

Emily Couch. Special thanks to the

52:35

World Science Festival. Moth Stories

52:37

Are True is remembered and affirmed by

52:39

the storytellers. Our theme music

52:42

is by The Drift, other music

52:44

in this hour from Corolla Dust,

52:46

Crung Bin, Wolfgang Moochfield and B.

52:48

Fleischmann. The Moth is

52:51

produced for radio by me, Jay

52:53

Allison, with Vicki Merrick at Atlantic

52:55

Public Media in Woods Hole, Massachusetts.

52:57

This hour was produced with funds

52:59

from the National Endowment for the

53:01

Arts. The Moth Radio Hour

53:03

is presented by PRX. For more about

53:06

our podcast, for information on pitching us

53:08

your own story and everything else, go

53:10

to our website, themoth.org.

Unlock more with Podchaser Pro

  • Audience Insights
  • Contact Information
  • Demographics
  • Charts
  • Sponsor History
  • and More!
Pro Features