Episode Transcript
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0:02
Play whippin joint once again by Professor
0:05
Hannah fry, a mathematician
0:07
at University College London and
0:09
is also an author and broadcaster and
0:12
the Familia guest. Hero number
0:14
for Hanna's always great fun,
0:16
quick with a joke yet We're
0:19
talkin about matters life and death. That's
0:21
because about a year-and-a-half ago and
0:24
it was diagnosed with cervical cancer.
0:27
It was extremely serious.
0:29
They were fees. It was spreading within
0:31
a month. hadn't had radical
0:33
and life-changing surgery including
0:36
a hysterectomy it was a move
0:38
which has hopefully saved her life that
0:41
is a why for a mother of two young girls
0:44
and experience the season emotions
0:46
you'd expect from any one facing
0:48
cancer she's also a person
0:50
supposedly well versed in the
0:52
details of risk probability
0:55
special analytical read
0:57
that change the way she thought about cancer
1:00
well had assumed much
1:02
of her experience and that deeply
1:04
personal footage is going to form part of
1:07
a program about to be broadcast on
1:09
the baby say the shows cold making
1:11
sense of cancer today
1:13
we're going to hear more about it but first
1:16
i asked her about her diagnosis
1:18
and how she spent many months setting
1:20
aside a routine less inviting
1:23
her to be screened he
1:28
, in symptoms
1:30
that i just dismiss them because i just had a bay
1:32
they stay here your total
1:34
over the place and yeah was it
1:36
was busy so have had since his but they weren't like these
1:39
really strong you know when the lights
1:41
and doubled over and i can a or and a thing as
1:43
is that whatever miles enough that i just that i just
1:45
dismisses the i'm really trying close to missing
1:48
it and then you had this letter telling you to come
1:50
in and did i have a screening but you will i
1:52
am too busy and
1:53
alyssa here which i think happens quite no actually
1:56
i mean i think it's as a nice
1:58
may maybe it's just me though i don't think that when
2:00
women get a text message saying that kismet
2:03
as that life right drop everything everybody
2:06
emergency say since side
2:08
to get down to the nurses it
2:10
serves like our okay opposite on this is a
2:12
lists and i will allow like so that
2:14
a half it and it was really one of those
2:16
it was it was one of those i i popped on as and
2:18
little pile on my desk as if to to
2:21
do things and , with
2:23
the pandemic and sisters lots
2:25
of stuff going on it just it did it didn't reach
2:27
the top of the pile for six months of that on tv
2:30
and movies and that some i'm being told to have cancers
2:32
like this this , is
2:34
that what it was like is it or or that like
2:36
a series of steps so it might be this
2:38
might be this and a gradually becomes more more serious
2:41
a reservist serious is catastrophic
2:43
moment where you're sat down in a room and someone says
2:46
of got something terrible to terry is sources
2:48
as it is a little sad face actually sets
2:51
a little this and he
2:53
noticed something up say they detect his maternal
2:55
muscles and then they to they biopsy
2:57
and the biopsy right okay that's abnormal cells
3:00
but as i can
3:00
hint that they might be something more serious
3:03
and then they don't get
3:05
into more and then it's
3:08
, it got more and more and more more serious
3:10
bar when they actually sit you down
3:13
and say this is your diagnosis
3:16
the have a special room that they take you to
3:18
the had no idea about this before so
3:21
you go in and there are
3:23
ah these these
3:26
of nhs white claim on
3:28
says and managed to have them facing
3:30
each other and like a little size
3:32
coffee table in the middle with a boxes
3:35
to see that looks like priests prefer
3:37
priests and then the reason why
3:39
i knew that it was like oh okay
3:41
i'm in the cancer m s's nics
3:44
hit the wall there was like
3:46
as freetown ninety nine at picture
3:48
as a as an altered from ikea
3:53
altered , that is very strange out of body
3:55
experience is obviously i need seriousness
3:58
of the submissive i was like imagine
4:00
the moment that someone had that
4:02
decision to be like you know was gonna make
4:04
this guy's arm that a a three ninety nine
4:07
hooks it reminds us that excited sake
4:09
what pictures you think they should have had on the whoa i
4:11
mean distance to all kids would
4:13
be enough exercise
4:16
although let's go to sweden we know it wouldn't be war
4:18
says there was no windows in the red zone forty
4:20
be dying and maybe don't mind dying
4:23
or get on the same yes
4:25
doesn't matter so nunes will not
4:27
win all the
4:29
the bad news is raining upon you and
4:31
these huge decisions that the mouse what
4:33
point or did that kind of mathematical
4:37
analytical hannah brain in
4:40
order that just ogre at the window and you suddenly became
4:42
just like you know and an emotional
4:45
person what about my children what about my husband
4:47
am i gonna die or did state that
4:50
that massey sort of he ended
4:52
the training take over from the the
4:54
chain takeover of , so i
4:56
think think think i think
4:59
that is this is sent me to for me anyway
5:01
but it but i think that they're almost two versions
5:03
almost yourself think that of have
5:19
i i i
5:25
i a
5:47
in one at a tailspin
5:50
i had no idea of western i had no idea what
5:52
to i didn't i didn't didn't work
5:54
at that time and that's the thing that sort of
5:56
it need i needed for comfort you know and
5:58
and sort of my my true self who
6:00
cobra on with very very scared and
6:03
was very very ah
6:06
radha in the headlights basically i just had no
6:08
idea what to do or western
6:11
completely terrified and ,
6:13
would repeatedly try a new statistics
6:16
and try and use reading medical papers
6:19
as a sort of comfort as it were
6:22
were the more and more and more you read i just
6:24
wanted to read something that says
6:26
this is what's gonna happen to you and you can't
6:28
find it's not out there said is
6:30
only so far that that said the mathematics
6:33
and statistics will ever be able to take you in that
6:35
moments and and i've spoken to
6:37
a few other people including
6:39
a day to speak to how to him so and my
6:42
mind me mincing this he said it publicly the force
6:44
that he's been in a similar situation where
6:46
he has been diagnosed with cancer
6:49
and you know all of the that that the
6:51
training as you call it call
6:53
, takes you so far really big the
6:55
at the end of the day you are just ivory
6:57
the frightened person who doesn't know
7:00
What to do next when
7:01
you're sitting down with the doctors in the So
7:03
it talkin through what's happening to you
7:05
and what your options are. Do you tell
7:08
them? Hey, look, I'm
7:09
i a mess. I'm Titian, give it to me straight,
7:12
give it to Paul, give it to me. Different to how
7:14
you would give it to some of or other other that
7:16
you do you like. Do you you plead for
7:18
them to talk to you in a different
7:21
The normal? Yes, dropping
7:25
something. The other day, something thing that
7:27
interested a little secret
7:29
handshake. in but the problem with
7:31
this was that it was during ties it and
7:34
, i wasn't able to meet my team face
7:36
to face until i see when infiltration
7:39
and i think that this is
7:41
also in a january twenty
7:43
twenty one so the point
7:46
at which the nhs was at it's most stretch
7:48
to the point at which does the crisis
7:51
was was it in its fullest and so
7:53
the schools and so
7:55
i just various to eat felt like felt
7:57
like want to waste that
8:00
the time i don't want to a
8:02
know take more than i
8:04
was allotted you know take take more than my
8:06
allotted slot and so i didn't push
8:08
yeah i didn't ask ask the questions i didn't it
8:11
might have you ever the phone then it would be in person anyway
8:13
by didn't do they signals as like a cake
8:15
two months to me
8:19
i haven't seen your tv program at but i have
8:21
read a very very excellent interview
8:23
with you in the telegraph recently which are linked
8:26
to as well it did come through
8:28
or i got the impression from the article
8:30
that you do have some
8:32
regret about how things played out yeah
8:34
i think if , is
8:36
quite the right words because
8:39
i think regret implies that if
8:41
i did it all over again i would have chosen
8:44
a radically different paths and i don't think
8:46
that that's necessarily true that to give you
8:48
just a bit more detail sites and
8:50
the big thing about my taste was that it
8:52
looked as though the concert go into my
8:54
lymph nodes suspect unknown to speak questions
8:57
can tell for sure whether it had or not and
9:01
the surgeon kid
9:03
four
9:04
the much risk reduction is possible they
9:06
decided to take out all of eliminate during
9:08
my pelvis and
9:11
the result of that is the i now have this lifelong
9:14
chronic condition called lymphedema were
9:16
asked where pressure comments every day and
9:19
i can't stand up for long periods of time and
9:21
it's something that can get progressively worse than some people
9:23
end up being really seriously am
9:26
having them ability seriously impacted
9:29
by this condition so
9:32
the thing i wish had happened differently is
9:35
that i wish that that calculation of list
9:38
of the balance between
9:40
my long term chances of survival
9:42
the , that the cancer was already him the
9:44
lymph nodes already given the evidence that that
9:47
was there and
9:49
the consequences of living
9:51
with lymphedema i wish i had
9:54
been more involved in that conversation
9:56
as as that calculation rights because
9:58
as it was we suit is told
10:01
what surgery to have i could have said no way
10:04
i could have been sort of quite for for every i'm not
10:06
suggesting for seconds that the
10:08
m that that that my says it did anything
10:10
wrong but as it was sort of presented
10:12
with here's the says real having and
10:14
then i was left feeling as though i had
10:17
paid a very very heavy price for
10:19
risk reduction in in the end
10:22
it turned out he would have my lymph nodes with claire
10:24
and i and i didn't need to list them and that
10:26
as it turned out as it turned out
10:28
i because they two counts
10:31
the they didn't say much i didn't need hockey
10:33
my rights that was sort of like the extra
10:36
the extra wind yes was removed
10:38
or the thoughts of your body assess assess
10:42
the , other upson was
10:45
ah be that cervical cancer so
10:47
so they could have just remove the cervix and
10:50
they said that if
10:52
they did that's and it
10:54
my admin i could have had another child but
10:56
the risk of miscarriage was really high of
10:59
a comp cases in pregnancy was really was
11:01
and all say that i would be i
11:03
really risking it with the cancer
11:06
is with them density and
11:08
i think that now having looked
11:10
into it loads since i think
11:12
that there are actually a number of
11:14
different options between those two extremes
11:17
of let's not take out very much at all and
11:19
really risk it's and let's
11:21
just minimize risk as much as possible and just
11:23
take out everything everything everything and
11:25
then some and then some and then some
11:28
and i think that it's just some think that
11:30
you want to the a cancer
11:32
patient to , able to look
11:34
back and feel as though you had agency
11:37
but true agency real
11:39
agency rather than between two
11:43
food choices you know it wasn't a
11:45
binary choice and it and it felt like
11:47
it was and i think the i may well have
11:49
the that not enough for the same radical surgery
11:51
anyway but i think that if you're really
11:54
really giving informed consent than it means
11:56
being really really informed and
11:58
some me that meant really understand
12:00
they both the benefits
12:02
of the treatment in terms of just
12:05
how much of a difference it would make to my risks
12:07
but also really the costs of it so
12:10
people who don't know you do you have
12:12
children to go with i find that are you
12:14
in your husband were open to the idea of
12:16
having another one that one that was something that was
12:18
obviously something you had to weigh up because that that
12:20
would cease to be an option as i understand yeah
12:22
option agree i really wanted really sad as anyone
12:24
said that that yeah
12:26
said think this is one of the things the have to come
12:28
to terms with come talk about those sort of
12:31
risking you know weighing
12:33
up all these things but i guess when when
12:35
the stakes are this
12:38
man's and things like children
12:41
and family in i totes who was the two
12:43
of the most important thing with the universe
12:45
as him and nine it must be really hard
12:47
to just how to apportion waiting to these
12:50
things like it's not just it's not like betting
12:52
on a horse sore looking ,
12:54
traffic fly like sort of suddenly the
12:56
stakes are so different out out
12:58
imagine normal kind of risk reward
13:01
assessment suspects it must be really hard
13:03
to apportion waiting to these things here
13:05
it's to then i think that the only person who can possibly
13:08
do is is the patient themselves i don't
13:10
think the eating you can create an equation
13:12
as a population level analysis
13:15
is this that applies to everybody i think i
13:17
think the only person who can really way
13:19
up their own values is the patient
13:22
themselves and i think they really
13:24
that the
13:25
this is sort of either i was left with after this
13:27
experience with that we have all of these was cut
13:30
license but they're based on things like
13:32
the number of people who survived ten years or
13:35
i'm you know that the number of people
13:37
for whom the cancer doesn't return and
13:40
, they don't include thing
13:42
site i don't know just that the heavy
13:44
heavy cost of treatment treatment a
13:47
i mean in terms of you're paying
13:49
with your organs are suffering ascent
13:51
suffering mean crossing that them mean crossing sort of
13:54
visceral sense it also
13:56
i think that there are times where the none
13:58
they do this to the numbers there
14:01
that you can look at but it's it's how you
14:03
interpret them that is different
14:05
for different people think that was the impression
14:07
that impression ended up with either
14:09
the course of this experience with this
14:11
this this formally that we have at the moment
14:14
for you shouldn't shouldn't have treatment
14:16
and how to reduce risk and what risks were
14:18
taking what prices are worth playing
14:20
i just don't think that they are designed
14:23
to take the individual patients
14:25
values into account enough and
14:27
i really noticed this when this i
14:30
went on to to make this film and
14:33
and spent a lot of time and can't connect
14:35
and took a chance patience and there was one
14:37
day was i think i will never
14:39
ever forget so i was in
14:42
this transits in it and there was
14:44
a woman who had just been diagnosed
14:46
with breast cancer and she had a lumpectomy
14:48
had a chance that taken out and
14:51
they were discussing whether or not she not she and
14:53
have chemotherapy and sir
14:56
issues in her late sixties had chances
14:59
of living another ten years if she
15:01
did nothing right she literally stops human there at
15:03
that that was it a chance of living another ten years
15:05
were eighty four percent boss
15:08
if they took everything
15:10
that that medicine haven't throughout her oh
15:12
my new treatments chemo everything
15:15
they could increase it eighty eight percent
15:18
so humor therapy and
15:21
i mean chemotherapy is not fun right
15:24
but it could increase our chances by
15:26
just this four percent
15:28
and that number might mean something completely different
15:30
to you than it would to me means something
15:33
completely different to somebody who who
15:35
has a young family versus somebody who is
15:38
you know in at the and later years
15:40
and actually just wants to enjoy the time
15:42
that they have less try to kind of means different things
15:45
and so i think that that population it's
15:48
, not enough to just put it in terms of numbers
15:50
yours has to take into people into account people funny
15:52
is is the reason why that day
15:55
will stick in my mind for other is
15:58
because or is there in or room when the doctors planning
16:00
this to the patience and then i went
16:02
outside and i had a chat with her and i said
16:05
that's that's a tough one right like that's
16:07
really hard you know what to those who have
16:09
that sets as such that small number
16:12
that that's tough rights and
16:14
have response she said oh we'll have
16:16
to have chemotherapy because otherwise i'll die right
16:22
no no
16:24
that's not what was said some situation
16:27
in , amino the says imposes she said she's you know
16:29
she's in crisis right sir i went back into the
16:31
doctor doctor i said see
16:34
didn't understand what you're telling her
16:37
and the doctor was like yeah like mean you
16:39
know
16:40
you're much more come to about this than i am
16:43
it is because i know i'm the one who has
16:45
to sit here when and see those four percent
16:47
as to see those people who could have stopped their cancer
16:49
coming back and then they have to come see me again
16:52
and i have trying to eat them but i know it's incurable about
16:54
stage and , like a mere
16:56
okay so like i appreciate that you've got this
16:58
population view as the statistics on
17:00
talking about the individual view but
17:03
i just a really tight so
17:05
hunt for by the fact that she doesn't understand
17:08
what she's letting herself him for and
17:10
the doctor replies if they understood
17:13
they wouldn't go through with it
17:15
and i just found that the most incredible
17:19
statement because i'm
17:21
definitely not saying people shouldn't have treatment
17:24
here by the way by i had treatment at
17:26
all the treatments and know it's safe my life
17:28
i'm deathly not saying them but saying i
17:30
really do feel uncomfortable about
17:33
the idea that with sources
17:35
making decisions on behalf of people
17:38
and not really taking the time
17:41
to understand what it is this important
17:44
to them and what they want to preserve
17:46
about their lives going forward whether
17:48
it's time or quantity of time
17:53
did you come away from this process and and
17:55
the film making process with
17:58
a suggestion the an idea like if
18:00
you were put in charge of the national health service
18:03
tomorrow is or answers or something
18:05
you would do something you would change on
18:07
day one to deal with problem
18:10
yeah by the yes mrs she
18:12
says that i think
18:14
In that room with your kids. When
18:16
you get diagnosed, you get a nurse
18:19
who sits with you and you
18:21
can ask her anything you like and
18:23
you can see there's no pressure on time. You
18:25
have as much time as you want. And
18:27
that's a really helpful thing
18:29
because it's just gives YouTube the breathing room
18:31
to things through properly. And
18:33
I think when it comes to making treatment decisions, actually,
18:36
it's almost the opposite. You have 15
18:38
minutes with your surgeon. At the beginning. When
18:41
I this is what we The risks of a
18:43
is Sister, Sister sister's name is still
18:45
working in. The same away saying, do you to sign him if
18:47
he got? And I think what I would
18:49
have would like to see is that you have
18:51
that consultation with the the the consultant,
18:54
and then you go off to another room.
18:56
But in that room, somebody
18:58
sits down. And just says, what
19:00
is most important to you? What
19:03
you have on you is, what do you want
19:05
to preserve a buffalo house? And
19:07
how do we work out? What you
19:09
should do going forward based
19:12
on on on your life? and
19:14
what matters to you too are as
19:16
someone who's currently going through the national health
19:18
service to have a baby with my
19:20
was everything you're saying about
19:23
your cancer
19:25
applies to the as well the number of times
19:27
i've sat in a room and i've had a bunch of stats
19:30
and numbers thrown at me and then
19:32
been told to make an instant decision
19:34
or have a decision made her is it is exactly
19:36
the same situation and yeah i really noticed
19:39
that as well when i was having
19:41
might say these i think that's
19:43
any women and my parents
19:46
had gotten quite good understanding
19:48
the in that situation you have to stand up for yourself
19:50
right you have to sort of gas it on and find yourself
19:53
right i mean i'm so you've been told
19:55
this a thousand times like when your it during
19:57
labor is something isn't right
19:59
you need
20:00
that gives up as you need to sit as good as his
20:02
you have your own advocates your own health
20:04
and actually in kansas has
20:06
specially the beginning with diagnosis doesn't
20:09
you , neither as well right you need
20:11
like in a that that's that i'm
20:14
under no confidence to be able to say say
20:16
to stop i need to think that this but
20:19
you're so frightened and
20:21
so grateful for
20:23
people who go to save your
20:25
life that this your life of that
20:27
that that none of that says is is at home address
20:30
a thinker or it may be around birth and having
20:32
children there is this new infrastructure
20:34
this popped up all the baby boom since
20:36
you get involved and the so much to talk
20:39
and chatter in those groups about how
20:41
to play system this is gonna happen
20:43
but this is how you count for it you gotta stand up for so
20:45
from you've gotta do this and maybe that has sprung
20:47
up around cats at the same way as around
20:50
having babies think you intensive care
20:52
for quite some time in i think that people who have
20:55
long term treatment center and chemotherapy
20:57
more than once i think actually they become quite good
20:59
at at speaking up for themselves and
21:01
and demanding second opinions and it's am
21:04
and precincts essential business and scans and things
21:06
think it's sister you know you're thrown into this
21:08
world and and time is really of
21:10
the essence i mean there are support groups out there
21:12
think get me wrong that macmillan for example
21:15
oh my goodness macmillan are incredible
21:17
they're absolutely amazing
21:18
i don't think anyone's necessarily doing anything wrong
21:21
here but you know you are ultimately
21:23
talking
21:23
about to , us on
21:26
is quite least my heart rate which is an interpretation
21:28
of numbers and am
21:30
i don't think this don't think the support their
21:32
said that as there is set us
21:35
back
21:35
it also have like again attaching
21:38
members defense is easy to attach numbers on
21:40
how many years you might leave after this
21:42
what the percentage shots as of this and
21:44
terms of where the people our allies or
21:46
dying or have the cancer cells of don't
21:49
have the cat south ahead you attach
21:51
a number to how easily you walk
21:53
how you know those other things
21:55
that you're having to attach values to how
21:57
important it is few to her
22:00
a third child or the
22:02
, you can't there's no there's no number too
22:04
attached to that really because it's it's fuzzy
22:06
know of course at which is why you'd be individually
22:09
anyone who can never make that clinton a sense
22:11
i think they have one thing i would say
22:14
is is actually those numbers
22:16
about you know your chances to five alone
22:18
than the number of years you live or whatever whatever
22:21
or not this that the number that you
22:24
pick as your metric ends
22:26
up making a big difference as to how
22:28
things let's say for example
22:30
with that story that i told you about stories on
22:33
had breast cancer and and and between a sports
22:35
and eighty eight cents and i
22:38
was in a pump with a the speaker has her nose
22:40
science her by exactly this and
22:42
he says sets at the moment the metric
22:44
they use his at your chances
22:46
living another ten years passing
22:49
it that way it looks like you're better off having
22:51
teammates but he thinks that
22:53
the evidence has been collected the moment as if
22:55
instead you say your chances
22:58
of being alive at sixteen years actually
23:01
chemotherapy damages
23:03
your long term survival the you have been worse
23:05
off by having the team it there so
23:08
you know that
23:08
the the chemotherapy at that stage
23:11
in life is such a severe process
23:13
to go through the never really recovered from
23:15
it and so i think it's just
23:17
you know it's partly that you can't make
23:19
this make this hard to make this balance between
23:22
concrete numbers and
23:23
motion which is what we took him by his but
23:26
i think it's also adding in the fight the athletes
23:28
these aren't concrete numbers
23:30
anyway these odd numbers are totally
23:32
dependent on the prices metric that your choosing
23:43
the thing you did during your process which
23:45
is perhaps not common
23:47
is you did documentary films lots
23:49
of the steps which ,
23:51
the reason you've been able to create this film
23:53
about it that were that we're gonna say soon hopefully
23:56
why we filming it the really
24:01
early on when i first got the diagnosis no
24:04
way which the and no idea which means gonna
24:06
go right like a and they
24:08
were death
24:09
point where it looked very very very serious
24:12
and so i think
24:14
i started writing a diary just
24:16
because i wanted a record
24:19
us as how i was feeling and feeling
24:22
and was going on but i also found
24:24
it quite therapeutic sister he
24:26
can eight
24:27
my emotions aside that can they see my
24:29
constructed says of giving my constructs
24:32
incest something today and
24:34
then i started filming to because it's your documenting
24:36
it your know mumbling methods of meant
24:38
to the other and it
24:40
wasn't until a bit later
24:43
if you be face and i'm talking to my friends
24:45
who owns tv company and he
24:49
persuaded me
24:50
the you take something a bit more seriously
24:53
and when i went into hostile and and
24:55
and and and so on the
24:57
kid he said that's the difference
25:00
about the city's to other cities it's
25:02
all the difference about this film that i ended
25:04
up making compared to it at another
25:06
some about cancer is that this wasn't
25:08
just somebody who who had cancer this
25:11
is somebody who spend their entire lives thinking
25:13
about numbers and about risks about probabilities
25:16
and about how to wait there's up and how to combine
25:18
them with that with being human
25:21
the even not person
25:25
that that that isn't necessarily
25:28
ah mom i haven't necessarily seen it covered
25:30
not much else let's say
25:32
that's really where the film came from but
25:34
but i think that the once i was out the other side's
25:37
i realized all the things i've been talking to you about
25:39
a just a story that much bigger than my own
25:42
and so i think i think and when you watch the film
25:44
there is some of my story in an interview
25:46
at that that the way i see any way is
25:48
this that my story is the thing that gives
25:51
me
25:51
permission to talk about these much
25:54
wider issues about how we
25:56
view cancer and how our
25:58
view that in our series it
26:00
changes the way that we deal with it and
26:03
how bad we are combining
26:08
numbers and emotions when it comes to something
26:10
like this the river part of the that thought
26:14
you might not be watching the film at the end we might
26:16
be what's in your film and you wouldn't be as
26:18
has like right right to the i mean that was so if one of
26:20
the reasons why started filming it because i have psych
26:22
well
26:24
if it doesn't work out for me then
26:26
, kind of want my daughter's to has
26:29
amina and not so it wouldn't
26:31
be sensitive to sit down and what's on your and st
26:33
best sex or he says sussex
26:36
to sort of know to ,
26:38
like they were passes it's
26:41
or had something some sort of document since
26:43
way to let them what's that like for you watching
26:45
it now watching that footage that you recorded
26:52
there's one bit that still quite tough to watch
26:55
you'll you'll know when you said i
27:01
could say that i think it's a camera watch
27:03
it will watch out for that and this book
27:05
that nothing else the cancer free yes
27:07
is making mistakes minty an
27:09
isolating thought process of being
27:12
an intellect slices
27:14
i'm really think through everything
27:16
is this is completely for me that's life so
27:19
, i don't i mostly don't
27:22
i i mostly time find the fuss is difficult to
27:24
watch because i think the attorney
27:26
it's been a really been a for assess
27:28
making it to me i think we should they
27:30
should offer that on the nhs right for everybody
27:32
that to the of say work see the
27:35
emotions of their treatment is the difference
27:37
is scarce film crews defensive
27:39
sort of been around for yeah what do you hope
27:41
is going to be accomplished as a result of this
27:43
filming put out i think all i would
27:46
like the
27:48
the people when they are going
27:51
to cancer to see a little bit
27:53
more empowered
27:54
who are more questions and
27:57
to put themselves first nothing
27:59
just making the first thing is offered to them and
28:01
i think i would also like
28:04
it to be a little bit of a reminder maybe
28:07
this you know i think if you're a doctor
28:09
who works in this in in in on quality
28:12
i mean that they're amazing by the way right like they're
28:14
really sympathetic and that and
28:16
that and some of them at the nazi store
28:19
me but i but i also think that i
28:21
see is it is
28:22
is your nine to five right like you're sat
28:24
that and every day you see patient
28:26
patient impatient impatient inpatient outpatient patient
28:29
and , think he's quite hard to remember the asymmetry
28:32
of thought of that encounter encounter
28:34
for you it's just your your ninety five
28:37
but for them at i
28:46
a a a
28:54
in a little bit more infinite
29:11
because you've put it out there so much you
29:13
know you've made the decision to to talk
29:15
about it and try and get these messages out there obviously
29:18
everyone now knows oh these
29:20
intimate details of your pants in
29:22
your favor of us what's unless you
29:24
know when you go to meetings and meetings people
29:26
and that sort of stuff is that what's what's
29:28
that like as like created i a a or
29:30
and openness is that hard for you is easy is
29:33
the clearest example i can to see possible
29:36
off of wine think these conversations
29:38
importance says he is day
29:40
they did a study on prostate cancer or
29:42
they had a sounds and men his hands
29:45
and been diagnosed with early states
29:47
prostate cancer other thing is is the
29:49
if you've got hansen your body right i'm so
29:51
you instinct would be the same as mine was get
29:53
rid of it cut it now i don't wear my body chemistry
29:55
so in this trial at
29:58
a group of people went off to his
30:00
that three a group of people ah
30:02
instead didn't nothing
30:04
it was just let's watch on weight as keep an eye
30:06
on it see how it progresses and
30:08
after ten years there
30:11
was no different survival
30:13
between us to
30:14
what however during the surgery at
30:16
that stage made you know it it's it
30:19
didn't save anybody's life and
30:21
yet for all the hundreds and hundreds
30:23
of man he had that surgery they
30:25
were since she left with non
30:26
functioning penises rights that erectile
30:29
dysfunction that urinary incontinence
30:31
and they also had i'm a bonus is
30:33
really high probability of all of those things
30:36
this is stuff that the unity surgeries
30:38
it's not like hayes is story
30:41
about your pants a scam you know
30:43
it's like none un anno my life is profoundly
30:46
changed as
30:47
though of this and of what happened
30:49
and , think that it's so important
30:52
to have these conversations outwardly
30:54
an overlay yeah i think the detail
30:56
his paws the it i think the detail as part
30:59
of it i can imagine they will be people who weren't
31:01
thank you for pointing that out though it sounds
31:03
like a little like anti vax
31:05
at other it sounds like what to be and treatment
31:07
yet to be like and i don't have treatment
31:10
in a huge it's distance of damaging
31:12
even doesn't say the last anywhere on ryan
31:14
are no that's not what you're saying but no it's
31:16
definitely definitely not one saying assessing
31:18
the one saying i'm not saying this team is a a
31:20
bad things i think i'm saying
31:22
the attorney with instead of
31:24
cancer which you know it's it's terrible
31:27
sat right next some people say skin and the
31:29
big see because you connie's and say is i'm
31:31
voldemort right like canace to say the
31:33
worse with the terrified of this disease
31:36
the all about our instincts
31:39
sometimes or to do something to
31:41
sleep runs counter to
31:43
our best interests i think that's what
31:45
i'm saying is this that that the urge
31:47
is to just be read as this as quick
31:49
as you possibly can can yet
31:51
i think what i'm trying to say is is
31:53
sometimes used to slightly fight the urge
31:56
is one urge thing tied to i'm sorry it's
31:59
is to sustain
32:00
they did you study in in denmark and
32:02
nineteen seventies and
32:04
those agree with that dollars is he wanted to
32:06
try and work out how many people were
32:08
wandering around with cancer that they
32:10
didn't know about so ,
32:12
they did is they had seventy seven women
32:14
cities women had died very recently
32:16
from from things i heart
32:19
attack for car crashes are
32:21
all kinds of different causes they were all a big range
32:23
of ages as well and with the permission of these
32:25
to disseminate these pathologist
32:28
they performed double mastectomy on these women
32:30
and they set to all of their breast tissue
32:32
to try and find any abnormalities
32:35
the none of these and and had been diagnosed with cancer and
32:37
whether alive rights and i
32:39
don't know what it's like woody thing how many of them
32:41
are tons of maybe one like maybe two
32:43
and seventy seven actually
32:46
about a quarter of these women
32:48
had abnormalities that would
32:50
have chances are the cancer so precancerous
32:53
diagnosis had it been discovered what their allies
32:56
set , they've repeatedly studies rights
32:58
a thyroid cancer prostate cancer and for breast
33:00
cancer then then the best
33:02
estimates them it's the numbers are a bit lower court
33:05
below se but the best estimate said the between
33:07
about two and seven percent of us
33:09
at any time a wandering around with cancer in a
33:11
party that we have no idea about and
33:14
that doesn't mean
33:16
that we've got this really scary
33:19
thing at this epidemic does it
33:21
always super going to die right doesn't mean that all
33:24
actually means the opposite that in fact
33:26
quite often cancer will
33:28
sit in your body and no
33:30
trouble you for your entire
33:32
life right earth sometimes the kansas
33:35
so slow growing that you
33:37
will
33:38
dead from something else way
33:40
way way for it will
33:42
end up causing you trouble and
33:44
you are going in and cutting out every
33:46
single one of these slow growing tenses
33:48
student in the neck
33:50
intensify recap that in a know in
33:52
the prostate i'm in a or
33:54
and oh are you know or or in the past
33:57
the country you're you're not say
34:00
anybody nice and
34:04
this is better to fight the urge
34:10
the survey where they
34:13
, cancer patients if
34:15
they would have a chemotherapy
34:17
that was unlikely to prolong
34:19
their life life what the threshold
34:22
would be that they would consider i'm having
34:24
it's and the people who had cancer
34:27
or for members it's public the
34:29
numbers where i'm at
34:31
that the most common answer was oh i would have
34:33
i would have chemo even if it gave me a note point one
34:36
percent chance of prolonging my prolonging and
34:38
then they are oncologists than
34:41
they asked the people who actually
34:43
are the ones getting out these treatments and
34:45
says them the most common answer
34:47
was i wouldn't have it unless there was
34:49
over fifty percent chance that working and
34:52
working do i do think that pretty extraordinary do
34:54
think that there's this sought said gap
34:58
what kind is gap have we created
35:01
by the people who are offering the shipments wouldn't want
35:03
it for themselves what's your current status
35:05
now what what what lot like were things
35:07
that for you now after you've had your surgeon
35:09
everything a euro clear and things are good
35:11
and what's what's what is the future holds yeah i'm
35:14
all clear things kids and
35:16
that is a one sentence
35:18
and it will come back although that was a single
35:20
number that they gave me and i suspect that
35:23
it decays i've time i haven't hung up because
35:25
since since ,
35:27
things rooted i am it's not
35:29
something that bothers me is that it's not something
35:32
i wake up and middle of the night thinking about and
35:34
actually i have been i'm really
35:36
really count myself among the lucky ones
35:39
not only intensify the success that
35:41
my treatment went well and i
35:43
don't have to live with this live with
35:46
but also because i think the
35:48
i've had that the opportunity said have
35:50
the gift of it as someone said think it's
35:52
just give me this amazing the
35:55
defective on on what's important and
35:58
how how nice is
36:01
ah something to enjoy
36:07
this film making sense of cancer will
36:09
be broadcast on bbc to
36:11
here in the uk on june the second
36:14
check your local gods it will
36:16
of course also be available on the bbc
36:18
i apply for streaming i'll
36:21
include useful links information links
36:23
the podcast description about the tv
36:25
show about cancer and
36:28
more about what has upto
36:32
number file is supported by the mathematical sciences
36:34
research institute i'm
36:36
brady heron thank you very much for listening today
36:39
and we'll be back with another episode very soon
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